The journey begins today

New Topic Post Reply Printable Version
80 posts in this thread.
Viewing Page :
 1  2  3  4 
[ << Previous Thread | Next Thread >> ]

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4786
   Posted 2/24/2015 4:04 PM (GMT -6)   
la..more great news. Undetected is my favorite word.
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

LAsurvivor
Regular Member


Date Joined Oct 2014
Total Posts : 58
   Posted 3/4/2015 4:16 PM (GMT -6)   
8 down, 4 to go.  Saw NP for last time today; labs should be in next week.
Still proceeding as usual,  nothing really to report

themiz
Forum Moderator


Date Joined Feb 2013
Total Posts : 1891
   Posted 3/5/2015 10:48 AM (GMT -6)   
Thank you for checking in. As we continue to witness, the new Hep C treatments lack much in the way of negative sides. Certainly tolerable for most. We love that you have nothing new to report, LA! Big Hugs
themiz-Forum Moderator-Hepatitis
Wife of themister, a fine man living with ESLD. Transplant list-2013

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.” Kahlil Gibran

Arizona
Regular Member


Date Joined Jan 2015
Total Posts : 35
   Posted 3/5/2015 11:24 AM (GMT -6)   
So glad things are going so well for you. Heck, your 2/3rds done! I'm waiting on my one month lab report now.

LAsurvivor
Regular Member


Date Joined Oct 2014
Total Posts : 58
   Posted 3/13/2015 2:09 PM (GMT -6)   
Hi All
 
Well better late than never.
 
the 8 week test came back, still undetected. Platelets; Hemo-globin -crits are holding steady.
 
Sides still continue to be a non-issue. (very grateful)
 
Only 19 days to go.  Time flies when you are having fun.
 
Best to All.
 
 
 
 

Post Edited (LAsurvivor) : 3/13/2015 5:33:20 PM (GMT-6)


MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4786
   Posted 3/13/2015 4:00 PM (GMT -6)   
turn turn turn turn turn turn turn turn

This is the kind of news we love to hear.

Keep up the good work.

Hugs,

Mama Lama
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

LAsurvivor
Regular Member


Date Joined Oct 2014
Total Posts : 58
   Posted 3/13/2015 5:39 PM (GMT -6)   
Thanks Mama.
I hope I can continue to provide positive results.

I read someone else's blog about contracting HCV with Jet-pak vaccines while in the service. Makes me wonder if that's how I contracted this (in the late 70's). Since they really didn't have any testing until the 90's; I may have been one of the many guinea pigs the Army used and abused. I guess it would be hard to prove one way or another. But it would be nice to obtain a service connected disability (tax free) check every month.

LAsurvivor
Regular Member


Date Joined Oct 2014
Total Posts : 58
   Posted 3/24/2015 5:49 PM (GMT -6)   
Cant believe I only have one week to go.  That was the quickest 11 weeks I can remember, other than the last 35 years going by very quickly.
 
Still continue to be relatively side free. 
 
I have basically told myself, that I had to do this for "lent", especially the NO Soda rule. So Easter cant get here fast enough.  
 
I wish all those out there with similar treatments, that it all goes smoothly for you, and that you receive the UNDETECTED Result in every follow-up test.
yeah   turn cool

themiz
Forum Moderator


Date Joined Feb 2013
Total Posts : 1891
   Posted 3/24/2015 9:37 PM (GMT -6)   
That WAS a fast 11 weeks, LA. Don't forget to let us know your final VL at 12 weeks post end of treatment . Almost done. Big Hugs
themiz-Forum Moderator-Hepatitis
Wife of themister, a fine man living with ESLD. Transplant list-2013

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.” Kahlil Gibran

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4786
   Posted 3/25/2015 12:02 AM (GMT -6)   
Wo hoo.
11 weeeks.
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

Arizona
Regular Member


Date Joined Jan 2015
Total Posts : 35
   Posted 3/25/2015 8:53 AM (GMT -6)   
Congratulations. You can see the finish line up ahead! And undetected too. Bet you feel awesome.

LAsurvivor
Regular Member


Date Joined Oct 2014
Total Posts : 58
   Posted 3/25/2015 2:07 PM (GMT -6)   
Feels great knowing only 1 week to go.

I am confident that the undetected results will continue at 3/6/9 months.
Cross that bridge when we get to it, if not.

lovinglife2014
Regular Member


Date Joined Nov 2014
Total Posts : 34
   Posted 3/25/2015 6:00 PM (GMT -6)   
Hi LA - noticed your story here and there through out my journey so far and was told today for me I was NOT DETECTED at 8 weeks and 3 days of Harvoni!!! Am I freaking lucky or what?!   Best to you!!

PS: I love LA!
PSS: I'm so darn grateful today and lately that I love everywhere - lol!!!!!!! (but LA still does rock).

Post Edited (lovinglife2014) : 3/25/2015 6:03:09 PM (GMT-6)


LAsurvivor
Regular Member


Date Joined Oct 2014
Total Posts : 58
   Posted 3/26/2015 12:03 PM (GMT -6)   
CONGRATS LL.
May your results continue to remain detected. (as well as everyone else going through the treatment).

I love LA also. (I am NY transplant, and never regretted moving here. No Bugs, No Humidity, No SNOW.)

LAsurvivor
Regular Member


Date Joined Oct 2014
Total Posts : 58
   Posted 4/1/2015 12:47 PM (GMT -6)   
Down and Out in Beverly Hills...
 
Out of meds that is.
 
Thanks god that 12 weeks went SOOOOO fast.
 
Thanks to all you out there for your kind words of Support and Advice.
 
Other than my boss and VA professionals, no one else in my life knew about this; so you all were a helpful source of inspiration.
 
Now the waiting game begins to find out my 3 and 6 month POST treatment results.  Everything crossed in hopes for continued positive results (undetected that is). And that all the post treatment sides were as minimal as the during treatment ones.
 
 

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4786
   Posted 4/1/2015 12:51 PM (GMT -6)   
turn turn turn turn turn turn turn turn turn turn turn turn

12 perfect weeks.

All of my stuff is crossed as well.

Hugs
ML
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

schimbare
Regular Member


Date Joined Mar 2012
Total Posts : 462
   Posted 4/1/2015 1:18 PM (GMT -6)   
I am so happy for you. Congratulations!

**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 4/1/2015 1:41 PM (GMT -6)   
Very nice!
nullum beneficium impunitum...

LAsurvivor
Regular Member


Date Joined Oct 2014
Total Posts : 58
   Posted 4/17/2015 4:49 PM (GMT -6)   
cool   cool cool cool cool cool yeah yeah yeah yeah yeah yeah
 
End of Treatment VL remains undetected. (Which I would have expected.)
 
I imagine the results in the SVR tests will be much more interesting and hopefully gratifying.
 
My best to all of you continuing treatment, and as they said in Adam Sandlers "waterboy" "YOU CAN DO IT". yeah

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4786
   Posted 4/17/2015 5:05 PM (GMT -6)   
Best News...happy weekend, happy life. Hugs, ML
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

themiz
Forum Moderator


Date Joined Feb 2013
Total Posts : 1891
   Posted 4/17/2015 5:55 PM (GMT -6)   
Congrats on EOT! Let us know when you get that next VL. I will be excited to see your SVR, LA. Big Hugs
themiz-Forum Moderator-Hepatitis
Wife of themister, a fine man living with ESLD. Transplant list-2013

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.” Kahlil Gibran

LAsurvivor
Regular Member


Date Joined Oct 2014
Total Posts : 58
   Posted 8/6/2015 4:59 PM (GMT -6)   
Hi All
Sorry I haven't been here for a while..
Took my labs at VA about a month ago, and then they lost the blood, so I had to redo the labs and get an ultrasound, oy.

So, the 3 month post treatment labs came back, UNDETECTED.
Good News, right..

Not sure at moment if that means I am in the clear permanently, or if there is another test 3-6 months down the road, but good news for now.

The only issue I have had was, about two weeks after treatment ended, I got a rash/eczema/psoriasis type if thing on my hands. It lasted a while, and there are still some residual dry skin, but seems to be gone now. Went to an outside Derma guy, but he couldn't pinpoint anything. I didn't even bother going to VA since it would take 2-3 months to get an appointment there. So mostly I just used regular hand lotion and took benedryl and that's it.

Thanks again for all the support during the treatment stage. I hope you all receive similar results in your treatments.

themiz
Forum Moderator


Date Joined Feb 2013
Total Posts : 1891
   Posted 8/6/2015 5:20 PM (GMT -6)   
This is a cure!

Cure means Hep C is not detected in blood 3 months after treatment has ended.

You eradicated the virus, LA. Congrats!! Wonderful news. Big Hugs
themiz-Forum Moderator-Hepatitis
Wife of themister, a fine man living with ESLD. Transplant list-2013

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.” Kahlil Gibran

Post Edited (themiz) : 8/6/2015 5:23:43 PM (GMT-6)


MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4786
   Posted 8/6/2015 8:11 PM (GMT -6)   
Congrats.

You did it!!!!!!!!!!!!
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

imbb
Regular Member


Date Joined Apr 2015
Total Posts : 65
   Posted 8/7/2015 4:40 AM (GMT -6)   
Congratulations on good news. Hoping to join your club in a couple of months.

Interesting about your rash as I had a sort of similar experience - about a week or so after treatment ended I began to develop hives/welts. Large itchy bumps that came up at random in random places and would recede a day or two later. They lasted for a couple of weeks and then stopped.
New Topic Post Reply Printable Version
80 posts in this thread.
Viewing Page :
 1  2  3  4 
Forum Information
Currently it is Saturday, October 21, 2017 11:26 AM (GMT -6)
There are a total of 2,885,193 posts in 316,568 threads.
View Active Threads


Who's Online
This forum has 157688 registered members. Please welcome our newest member, Mar68.
361 Guest(s), 13 Registered Member(s) are currently online.  Details
older guy, Heleneddworr, Lapis_29, mattamx, Dahlias, randrball1, Pirouette, Serenity Now, Mar68, TokyoPVCs, nponeil77, getting by, gabybee


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer