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kiml
Regular Member


Date Joined Sep 2005
Total Posts : 38
   Posted 9/13/2005 1:11 PM (GMT -7)   
Hi,

I have been having some pain in my liver area & I am not sure if its liver or ibs. My doctor wants me to try urso forte. Does anyone know what it has, Has anyone tried it. does it seem to help. my doctor said its like "grease for the liver", It could also regulate my liver functions & get them in normal range. I'd loved to hear back.

Thanks,

Kim L.

DesertJules
Regular Member


Date Joined Mar 2005
Total Posts : 142
   Posted 9/13/2005 5:27 PM (GMT -7)   

Hi, kiml.

URSO Forte is a trademark name for ursodiol. According to the manufacturer, it's generally used to treat a condition called Primary Biliary Cirrhosis.  But, it's used in other circumstances, as well.  From the URSO Forte patient information page: "Ursodiol is a naturally occurring bile acid. Bile acids are made in the liver and flow down the bile ducts to the intestine where they are needed to help digest the fats in the food we eat."

I don't remember if Mark was given ursodiol before, but he was on it for several months after his transplant. 

If there is blockage in the bile ducts, or the liver isn't able to make enough ursodiol, this will help.  Mark could actually feel when there were problems in his bile ducts. He would get pain, then at some point there would be a little 'pop' sensation and he could feel things start to flow again.

I don't know about it regulating liver functions. But it will definitely help if you have any bile-related problems and may well resolve some of your pain.

Good luck and God bless.


DJ

Fiance had HCV, cirrhosis, ESLD, ascites, and portal hypertension. Was transplanted June 2004.  Now, on interferon and ribavirin. Hepatitis C is back.

If God brings you to it, He will bring you through it.

kiml
Regular Member


Date Joined Sep 2005
Total Posts : 38
   Posted 9/14/2005 6:46 AM (GMT -7)   
Hi DJ,

Thanks for all the info. You have been a great help! I am supposed to back to the dr. next week & they are going to give me some samples. You know, I am really not sure if the pain I am having is liver or colon, cause i do have IBS. Though I have also experienced this kind of discomfort before. Once again, thanks for all your input!

Take Care, Kim

kiml
Regular Member


Date Joined Sep 2005
Total Posts : 38
   Posted 9/14/2005 1:03 PM (GMT -7)   
HI Dj,

Back in June when i was not feeling good. I had a bunch of tests done. I had a hida scan & everything came back normal. I know that shows something with the ducts. Also, I spoke with the nurse, & by bloodwork came back, My ANA came back positive, which has to do with autoimmune, the SMA came back negative. Everything else was just about normal but the Alkaline Phosphate came back doubled. I think that has to do with scarring. The nurse also said the only way to tell for sure whats going on is to have a biopsy, which I will probably do in the nezt few months.

I am really scared though. Its almost like I do not want to know. When I had the biopsy 4 years ago, it said I was in Stage 2, which the nurse said it was like"the middle of the road". This problem was discovered about 13 years ago & for the most part, I really have had zero symptoms & I am never really sick. Do you know how long it takes to get to each Stage. Could it be possible, that I have had this my entire life. MY question is if I dont have AIH, whay else could be wrong? She also recommended that I be vaccinated for Hepatitis A & B.

I go back next week to meet with the Nurse again to go over everything & the Doctor is going to pop in. I cant wait to see what she has to say. I gueess I am just so scared of taking any steroids. Its my biggest fear.

Thanks for listening to me ramble!

Kim L.

DesertJules
Regular Member


Date Joined Mar 2005
Total Posts : 142
   Posted 9/15/2005 12:09 AM (GMT -7)   
Jennifer -
 
That link doesn't work for me.  There are a couple of others on the FDA site, but I didn't post them because I didn't know to which one you were trying to link.
DJ

Fiance had HCV, cirrhosis, ESLD, ascites, and portal hypertension. Was transplanted June 2004.  Now, on interferon and ribavirin. Hepatitis C is back.

If God brings you to it, He will bring you through it.

DesertJules
Regular Member


Date Joined Mar 2005
Total Posts : 142
   Posted 9/15/2005 8:41 AM (GMT -7)   
Good morning, Kim
 
To answer your question (as best I can), the progress from stage to stage in liver disease is really, really variable.  There are 6 stages in cirrhosis, with stage 2 being more (to my mind) an early stage; but I don't know about AIH.
 
If a person does all the 'right things' - no alcohol, proper diet, exercise, etc. - it can help slow the progress of liver disease.  Depending on the cause, medications are often (as you know) an important part of the 'right thing.'
 
Of course, anything that makes the liver work harder will make things worse. That's the most frustrating thing about liver diseases, they are just so unpredictable.  Given half a chance, the liver will try to repair itself.  So, we just have to help it do that as much as we can.
 
You definitely want to be vaccinated against HepA and HepB.  If your liver is 'unhappy,' contracting hepatitis can make you very ill, very quickly.  When Mark got sicker and started getting aggressive medical care in December 2003, the first thing the doctor did was vaccinate him against flu, pneumonia, HAV, and HBV.  He already had ESLD at that point and the flu would have, literally, killed him.
 
As for alkaline phosphatase, that is an enzyme that is elevated when bones are growing, liver cells are damaged, or there is blockage in the bile ducts.  That's probably why your doctor suggested URSO Forte (ursodiol).
 
I would definitely ask your doctor these questions, too.  She'll have much more information and can help ease some of your fears.  Corticosteroids aren't exactly the most 'fun' meds you'll ever take, but if they help, then that's what is good.
 
God Bless.  Let us know how you're doing.
 


DJ

Fiance had HCV, cirrhosis, ESLD, ascites, and portal hypertension. Was transplanted June 2004.  Now, on interferon and ribavirin. Hepatitis C is back.

If God brings you to it, He will bring you through it.
desertjules@healingwell.net

Post Edited (DesertJules) : 9/15/2005 10:53:56 AM (GMT-6)

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