havoni treatment

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**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 5/4/2015 10:57 PM (GMT -6)   
The Bruins, Celts and Sox have gone down the tubes this year, but at least the Pats came through. It will be interesting to see how their draft choices turn out.
nullum beneficium impunitum...

Barrylink
Regular Member


Date Joined Mar 2015
Total Posts : 124
   Posted 5/6/2015 10:42 AM (GMT -6)   
amazing day in Alberta Canada!! the political party that has been in power for 43 years has been dethroned!! this party has been responsible for cuts to hospitals and programs to help people like us..cuts to education...cuts to Seniors..but we are the richest Province in Canada!! like what the fug? Finally we will see some changes that will make sense to the working stiff and programs that help seriously ill people!! Awesome day!! the future looks alot brighter!! ...have a good day all!!

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4786
   Posted 5/6/2015 11:01 AM (GMT -6)   
Barry, I do some political work here in Florida and the people can make a difference if they care and get ot to vote. The US has a poor record for voter participation. I wish the Albertians (or however that works near you) the best in improving conditions in health care for those who need it. ML
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

Barrylink
Regular Member


Date Joined Mar 2015
Total Posts : 124
   Posted 5/6/2015 11:32 AM (GMT -6)   
we had the best voter turnout in 30 years!! over 60%.. Finally people had enough of a non caring, self serving party!!! I guess like you said people just stick their head in the sand ... but yesterday on voting day there must have been an earthquake and shook them out of the sand and they went and voted!!! A great day for everyone who lives here...I,m thinking it shows that if you leave a party in power for so long they get oblivious to the needs of the people and think that anything they do is right...maybe you can use us as an example of what can be, opposed to what you decide to just accept? You have a awesome day MamaLama!!! may god bless your day with smiles and laughter!!

Barrylink
Regular Member


Date Joined Mar 2015
Total Posts : 124
   Posted 5/11/2015 7:53 AM (GMT -6)   
MamaLama !! geez your partner has had some bad luck..I hope things turn around!! hep-c must have attacked hard after transplant, I was warned of that before mine..but thank god it never happened.I am kinda wondering why at 65 they would not do another transplant? here in Canada if your clear of hep-c they will no problem...to me thats unfair as the average age that a person lives is 80 now...

Barrylink
Regular Member


Date Joined Mar 2015
Total Posts : 124
   Posted 5/13/2015 8:13 AM (GMT -6)   
themiz you an your significant other are doing well I trust? and MamaLama I still can't make website links "hot" I guess the nerd in me isn't working must have taken the month off . Harvoni is still being kind I don't have any sides...to speak off , afew headaches but teynol took care of that!! have a great day all!!
I hope everyone that is reading this is having a really good day. And if you are not, just know that in every new minute that passes you have an opportunity to change that.

Post Edited (Barrylink) : 5/13/2015 8:16:15 AM (GMT-6)


themiz
Forum Moderator


Date Joined Feb 2013
Total Posts : 1891
   Posted 5/13/2015 9:38 AM (GMT -6)   
To make a hot link, try this:

Key in [ u r l ] (leave no spaces)

Then paste your link immediately after.

End with [ / u r l ] (again, leave no spaces)

After you submit your post or reply, check your link and make sure it is hot. Be certain to follow Rule 4 when linking websites.


Rule 4. No advertising or links to advertising or "Spam" is permitted.
Advertising or spam is defined as posting a link for the purpose of selling, soliciting or promoting something.
Links promoting fundraising, advocacy, etc. are not permitted.
Links to personal blogs/homepages are allowed in member profiles and signatures
Sharing of links to helpful and relevant web sites and resources is allowed if they are not used for a promotional purpose.

Let's see if that works! Big Hugs
themiz-Forum Moderator-Hepatitis
Wife of themister, a fine man living with ESLD. Transplant list-2013

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.” Kahlil Gibran

Barrylink
Regular Member


Date Joined Mar 2015
Total Posts : 124
   Posted 5/13/2015 1:29 PM (GMT -6)   

forums@healingwell.com
that worked!! thank you!!

imbb
Regular Member


Date Joined Apr 2015
Total Posts : 65
   Posted 5/13/2015 7:59 PM (GMT -6)   
I am envious of your lack of sides, although mine do seem to be leveling off a bit. No headache but my joints ache and I tend to hit a wall where I just have to crash for a bit. beneath the sx I do feel sooo much better. I had no recognition of just how bad hep c made me feel. I though it was just because I am pushing 60.

Barrylink
Regular Member


Date Joined Mar 2015
Total Posts : 124
   Posted 5/14/2015 8:17 AM (GMT -6)   
imbb good to ear from you!! I also thought that any pain or feelings of lack of drive were because of pushing 60!! I have discovered one side.. inability to get a good nights sleep!! But that's a small thing compared to what Hep_c delivers...I hope your doing well!!!
I hope everyone that is reading this is having a really good day. And if you are not, just know that in every new minute that passes you have an opportunity to change that.

Barrylink
Regular Member


Date Joined Mar 2015
Total Posts : 124
   Posted 5/22/2015 8:45 AM (GMT -6)   
Hello all!! I started having sleep issues with harvoni and i switched it from taking them at night to taking it in the morning...Issues GONE!!!i told my Team of doctors before i did it what I was going to do,they said no problem..I thought this bit of knowledge might help someone else..Have a great day all!!!
I hope everyone that is reading this is having a really good day. And if you are not, just know that in every new minute that passes you have an opportunity to change that.

imbb
Regular Member


Date Joined Apr 2015
Total Posts : 65
   Posted 5/23/2015 5:00 AM (GMT -6)   
Somehow it seems very ironic that two of the listed side effects are insomnia and fatigue. Go figure.

I take my dose around 9 a.m. And insomnia has been no more of an issue than normal for me. Have had a bit of it all my life. Did find out while going through the refill hoop that one can go up to three days without a dose and not break the continuity of treatment. Not something to strive for but It was a relief when I was stuck thinking I would be missing a day. And then it all worked out and that worry was for naught.

themiz
Forum Moderator


Date Joined Feb 2013
Total Posts : 1891
   Posted 5/23/2015 7:30 AM (GMT -6)   
Barry and Barb,

I have some info on sides I have kept from Harvoni and will not list all of it, but it looks like the insomnia does plague a few who treat.

Harvoni Side Effects:

More common
Diarrhea
headache
nausea
trouble sleeping
unusual tiredness or weakness

And this from earlier trials information on adverse side effects:

HARVONI 12 WEEKS

Fatigue 13%
Headache 14%
Nausea 7%
Diarrhea 3%
Insomnia 5%

Soon the sides and Hep C hopefully will be but a memory :) I am pulling for you both, Big Hugs
themiz-Forum Moderator-Hepatitis
Wife of themister, a fine man living with ESLD. Transplant list-2013

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.” Kahlil Gibran

Barrylink
Regular Member


Date Joined Mar 2015
Total Posts : 124
   Posted 5/25/2015 8:47 AM (GMT -6)   
thank you for the info..I was talking to the RN that monitors me and she told me Calcium and Harvoni are a bad mix..the Clacium makes it hard for Harvoni to work...I take a bone pill everyday because Hep-c brought on the onset of Osteoporosis,so i had to switch it to 12hrs later..apparently calcium changes the PH of your stomach..I figured i should share this so anyone else who is taking calcium can adjust the time when they take it so it will not effect your chances!! Also Lopressor, metoprolol tartrat not be taken with Harvoni you must give 12hr spacing between the two
I hope everyone that is reading this is having a really good day. And if you are not, just know that in every new minute that passes you have an opportunity to change that.

Barrylink
Regular Member


Date Joined Mar 2015
Total Posts : 124
   Posted 5/26/2015 8:00 AM (GMT -6)   
after 4 weeks of Harvoni i got my first blood test and the results are awesome!! all my levels are close to normal , my liver is sooo close to normal.. it was good news!!
I hope everyone that is reading this is having a really good day. And if you are not, just know that in every new minute that passes you have an opportunity to change that.

imbb
Regular Member


Date Joined Apr 2015
Total Posts : 65
   Posted 5/26/2015 1:31 PM (GMT -6)   
Congratulations to you! Those changed numbers certainly outweigh the sides for me. Envious of your lack of them but really, you've been through enough. I'll take my sides over your transplant any day.

The list the miz sent is not very complete IMHO. I am having chills, joint pain, muscle aches and hot flashes along with occasional nausea. From reading a different hep forum I am certainly not unique with those symptoms. I may be a bit unique in treating with keytruda as well and I really can't be sure which is what but they all came on after starting harvoni. And despite them I feel very fortunate to have bypassed interferon. Oh, and to have melanoma tumors disappear...

Barrylink
Regular Member


Date Joined Mar 2015
Total Posts : 124
   Posted 5/27/2015 12:34 PM (GMT -6)   
imbb 3 days? without Harvoni and still it would be ok? the pharmacy told me 18hrs max... but like you say not something i would do..I have and will be on time each day till the end..Only cause I absolutely hate Hep-c!!!Oct 10th is last dose..that day I plan to Celebrate!!!and lay a wreath of Black roses on grave marker inscribed Hep-c may you rest in oblivion!!lol
I hope everyone that is reading this is having a really good day. And if you are not, just know that in every new minute that passes you have an opportunity to change that.

Barrylink
Regular Member


Date Joined Mar 2015
Total Posts : 124
   Posted 5/28/2015 7:38 AM (GMT -6)   
i just thought i would tell all of you that I,m headed back to work..With no sides to speak of its time to make some cash!! So i will stop in when i can and keep all of you in my thoughts! My work doesn't give me much time off so... my visits will be intermittent Everyone has left a lasting impression on me in this forum..So with no further ado I bid you all a heartfelt goodbye for awhile..Ps..I hope and pray all of you get well!! keep strong in the face of adversity and never give in!!Your friend Barry....
I hope everyone that is reading this is having a really good day. And if you are not, just know that in every new minute that passes you have an opportunity to change that.

themiz
Forum Moderator


Date Joined Feb 2013
Total Posts : 1891
   Posted 5/28/2015 2:28 PM (GMT -6)   
I am thrilled you are returning to work. Such wonderful news.Harvoni has been good to you! Please pop in and out as you can, and be sure to let us know when you get your end of treatment labs and SVR :) Big Hugs
themiz-Forum Moderator-Hepatitis
Wife of themister, a fine man living with ESLD. Transplant list-2013

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.” Kahlil Gibran

imbb
Regular Member


Date Joined Apr 2015
Total Posts : 65
   Posted 5/29/2015 5:38 AM (GMT -6)   
Wow Barry I feel like we just met and you are saying goodbye already? Blessings to you and a sincere wish that we all end up virus free forever. Amazing that it is now a likelihood versus a slim hope...

Don't work too hard! Unless of course you love what you do...

Barbara

Barrylink
Regular Member


Date Joined Mar 2015
Total Posts : 124
   Posted 5/29/2015 2:13 PM (GMT -6)   
Barbara had to say I hope your sides go away...You don't need to experince trouble like some of have...and themiz your right!! harvoni totaly seems to like me..Thank you both for your kind words!! Hugz right back at you!!!
I hope everyone that is reading this is having a really good day. And if you are not, just know that in every new minute that passes you have an opportunity to change that.

Dog LeDon
Regular Member


Date Joined Apr 2014
Total Posts : 191
   Posted 5/31/2015 7:47 AM (GMT -6)   
It's great that you experiencing an improvement in your situation.
Stay in touch. We would like to know how things are going.
If you have the information, please post information on the numbers, enzyme levels, blood counts, etc. BTW, are you scheduled for three or six months of Harvoni?
Good luck, Barry.
HCV 1985, Geno 1a
Current Treatment, Harvoni 24 weeks
Last Viral Load Dec 14: 387526 iu/ml Geno 1a
Past Treatments:
2014: PegInterferon, Ribavirin, Sovaldi (12 wks) Relapse / Fail
2000: Interferon, Riba (48 weeks) Partial Response / Fail
Fibrosure Test Dec 14:
Fibrosis Score .86 Cirrhosis
Infl Score: .96 A3 Severe Activity

Barrylink
Regular Member


Date Joined Mar 2015
Total Posts : 124
   Posted 6/5/2015 4:24 PM (GMT -6)   
imbb,MamaLama,everyone!! how are all of you? i hope your doing well!! I am doing good so far but work as usual is beating me up lol.. good thing they pay well..Barbara i saw your trouble with wallgreens and holy crap , I would have gone SNAP!!! and lost it on them..how is everyone else? Themiz?Dog LeDon? David? I will make sure to post next test results...I wish they had something to get rid of achy feet!!! The new project i am at i walk about 18 miles a day..(ya I'm complaining and i know suck it up princess..)BUt all is going good and i miss talking to all of you!! let me know how your all doing..Be safe and HURRY UP and get healthy!!! HUGZZZZ
I hope everyone that is reading this is having a really good day. And if you are not, just know that in every new minute that passes you have an opportunity to change that.

**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 6/5/2015 4:38 PM (GMT -6)   
Hi Barry,
All is well with me. Most recent labs show no viral load. That makes it over 3 years. I work every day, sometimes weekends, as this time of year everyone is in a rush to get their houses ready for summer. The good thing is that mid summer is my slow time, so fishing and beaching is on my schedule.

As far as achy feet, have you tried wearing TEDS (support stockings)?
nullum beneficium impunitum...

Barrylink
Regular Member


Date Joined Mar 2015
Total Posts : 124
   Posted 6/5/2015 4:47 PM (GMT -6)   
Good for you David!!! you build houses? kool!! i am a Carpenter too but i build petrochemical plants,Oil is big in Alberta Kinada like your Texas.. Have a great weekend!!
I hope everyone that is reading this is having a really good day. And if you are not, just know that in every new minute that passes you have an opportunity to change that.
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