Fatty or autoimmune hepatitis

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crashley
New Member


Date Joined Oct 2005
Total Posts : 2
   Posted 10/6/2005 6:40 PM (GMT -7)   
Hi, I am new to all of this.  In June of this year I passed out and ended up going to the hospital.  Apparently, it was a saving grace, because otherwise I would have never found out my liver enzymes were high, three times the level I was told.  My dr. decided I had passed out from hypoglycemia (I didn't eat much that morning and got hot), so that wasn't related, but he felt that I had AIH and sent me to a specialist.  The specialist now thinks I either have fatty or AIH, but my ultrasound was clear and there was no fat (steaosis?) found in my biopsy.  My biopsy said Grade 2/4 Stage 2/4 Chronic Hepatitis.  I'm not a big drinker (now I'm a no drinker) and have never really been too sick in my life.  Most recently, the specialist had rerun all my tests and discovered a CMV reading of 2.54.  My liver function tests were 56 and 127 (I am guessing AST and ALT respectively).  I told him about some pain and discomfort I had recently and my regular doc prescribed me aciphex.  The specialist prescribed my Urso, 500mg, twice daily.  I had to come home and research what CMV was and what Urso was for.  It scares me.  Honestly, this whole situation does.  I've been seeing the specialist for about 3 months now, once a month.  I am concerned that I am not getting good care from him.  He talked of sending me to Shands (teaching hospital) for possible experimental medicines, I think he said if Urso doesn't bring this down.  I have expressed my concern about prednisone, but he doesn't seem as if he wants to put me on that anyway.  I am just concerned all around.  I don't know what is in store for me.  I have read many of these forums and they seem to be the best way to find things out.  I have had an ultrasound and it was fine (so no indications of fatty liver there either).  I am also being sent for a Gastroscopy in November.  My biopsy was done in the beginning of August, he had sent it out for a second opinion, but I don't know that he's got the results back yet.
Sorry this post has been so long.  I do appreciate any input or advice that anyone can share or add to this new experience for me. 
crashley

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 12/26/2005 8:36 PM (GMT -7)   
Hi crashly.None of us ever knows what the future holds or how long anything will last.They told me I had 2weeks to live with my liver disease .That was 9 years ago & am now in my 10th year. So hang in there & never give up.My thoughts & prayers are with you.
lerie


crashley
New Member


Date Joined Oct 2005
Total Posts : 2
   Posted 12/27/2005 12:01 AM (GMT -7)   

Thanks lerie for your reply.  I am still in the same position.  My gastroscopy has been rescheduled until the beginning of January now and I haven't seen the Doctor since the beginning of October.  I was finally told that I was negative for CMV (I had a high level, so the Doc tested me for it.)  I have just been taking my Urso and going about life.  I have pains periodically, possibly liver pains and other digestive pains.  Sometimes I suffer from heartburn and Urso says not to take Tums/Rolaids with that medication, so I suffer there.  I did recently buy Prilosec, cause I was told it was comparable to Aciphex, which I was prescribed by my regular Doc, but used it up. 

Anyway, I do appreciate your reply and you will definitely be in my thoughts.  You keep strong and keep proving those Docs wrong.  Take care.


lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 12/27/2005 11:39 AM (GMT -7)   
crashly, let me know what your test results are when you have your tests in january. I'll be thinking about you & keep you in my prayers.I will do what I can to prove the Drs. wrong just for spite as long as possible but sometimes I get so tired.Take care.
lerie

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