Thanks for your reply.
mom was living with my dad and I was there every day and I arranged for other home health care for her there. She isn't on Hospice yet because she stiil has days that she is pretty alert and can get up and walk around, if she gets a small infection, I'd hate her not to get the care cause she's on Hospice. since my post mom was hospitalized because she was unconcious and they couldn't wake her in the nursing home. Her ammonia level was 149, the next day she passed a fist sized blood clot and has a uti.I feel like her health situation got away from them for her lvel to get that high, as you know it's controlled by the lactolose and by paying attention you can ward off the spikes.I wish the nurses knew more about liver disease than me, but they don't; I'm not sure if they want to learn.She went back yesterday to different floor, so we'll see.
I'm sorry about your Mom - Nursing home care is so hard to manage - I wish I had more advice or a secret tip for you - How is your Dad doing with all of it? How are you is it more stressful now than when she was at home?
My Dad doesn't have any bleeding yet his symptoms don't seem as severe as most people list - he got the call from the nurse today and his a bit anemic and he has a Dr. appt. Monday so maybe we'll have a clearer picture. I do wish had a crystal ball but I know I just have to take it as it comes.
Thanks and good luck with your Mom
So far so good this time. I think they are paying more attention now. Dad is doing okay, he goes to visit every day. I do think he is lonely though. I try to visit when he's with mom so I'm not running all over town and I still see them both.
Keep me posted on your dad! Thanks.
Welcome to the forum; you will receive support and helpful information.
My husband is also in home hospice care. Right now we are awaiting a visit from the nurse and chaplain (for me) to get us through this crisis. Gene's latest problems result from iron toxicity caused when a lab error showed iron levels low when in fact they were normal. For the past six weeks my husband has been on a rollercoaster ride. We are hoping that having hospice services available will spare trips back and forth to see his Doctors and get lab results.
I hope your hospice experience is positive. The jury is still out on the Hospice we selected but it's been less than two weeks and they are trying to work things out for us.
You are in my thoughts and prayers,