Hep C, Autoimmune Hep, Billirubin disease

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Joycers
New Member


Date Joined Oct 2005
Total Posts : 1
   Posted 10/20/2005 8:27 AM (GMT -7)   
Hi, I'm new to this but I've been looking for a support group for the last month.  There is not one around where I live.  In April of this year I was diagnosed with Hep C (due to a tainted blood transfusion 34 years ago) Autoimmune Hep, billirubin disease, liver disease and fatty liver.  I, also have diabetes II and high blood pressure.  When the doctor told me about the Heps I was totally in shock!  I could not believe it!  I was in the hospital for about a week and half while they were trying to figure out what was wrong with me.  I had sevear (sp.) jaundice and was completely fatigue along with chills. I had the liver biopsy.  I knew something was wrong with me for about two years before this because I kept getting chills and was extremely cold even when it was hot outside. I started having tremors about 10 years ago and then ridgness on my left side.  I thought it was Parkinsons.  I went to several doctors where I had MRIs, CAT scans, and all kinds of other tests. Why couldn't they have picked up on the Hep C then when they took so many blood tests?  After I was diagnosed the doctor put me on 40mg predisone and I thought I was going crazy!  I was so sick.  I had no energy what so ever.  He tried lowering it and when I got down to 10mg. my blood levels shot back up.  When I was in the hospital my blood levels was in the thousands like 1,000 and so forth.  And now I'm taking 7.5 mg of Prednisone along with Imuran 50mg. I'm losing my hair, I have headaches, the itchness have returned, problems with gas and constipation has returned, I have lower back problems, my liver hurts, sometimes pain on the right side and fatigue.  Sometimes I have spurts of energy.  But overall if I do too much one day I'm exhausted the next day.  There are days I feel so depressed and confused. I've noticed my spelling is not like it used to be and I'm more forgetful.  And it seems like I do things backwards. I just feel like I'm going crazy!
I'm sorry for writing too much but when you don't have someone to talk to, that knows what you are going through, then you have alot to say.
Thank you,
Joyce

keithr
New Member


Date Joined Oct 2005
Total Posts : 2
   Posted 10/21/2005 8:10 AM (GMT -7)   
i had aih and had emergency liver transplan & spleenectomy 2003, this is my 1st contact on this site, would welcome any contact with people who had or has the same problem- keith.

keithr
New Member


Date Joined Oct 2005
Total Posts : 2
   Posted 10/21/2005 8:11 AM (GMT -7)   
i had aih and had emergency liver transplan & spleenectomy 2003, this is my 1st contact on this site, would welcome any contact with people who had or has the same problem- keith.

Marg57
Regular Member


Date Joined Dec 2005
Total Posts : 446
   Posted 3/20/2006 2:55 AM (GMT -7)   
Fortunately I have not reached the stage of liver transplant Keith. I hope you are still doing well.
Marg.
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