Hep C Solvaldi update

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Billyblobb
New Member


Date Joined May 2015
Total Posts : 7
   Posted 8/17/2015 12:13 PM (GMT -6)   
I just turned 61 and I'm in the 18th week of a 24 week Solvaldi/Ribavirin regimen. Luckily NO side effects to speak of so far. Virus undetectable after 12 weeks.

I work full time and exercise regularly (run 3-4 mi every other day). I also take apple cider vinegar, molasses and Carlson's fish oil in the morning, as well as 2400 mg milk thistle morning and evening.

I am also a regular MMJ user.

6 weeks to go.

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4786
   Posted 8/17/2015 1:00 PM (GMT -6)   
B-b, Welcome to the forum. Glad you are doing so well on the treatment regimen of Sovaldi and Riba. And that you are side effects free. I am sure you know to drink lots of water or you might have some sides.

We'd love to hear whether your meds were covered by your insurance, in general where you are, and what you genotype is. The fact that you are undetectable at 12 weeks is really good news. Some have relapsed after 12 weeks and the longer protocol is working for certain genotypes.

Best to you,

Hugs,

Mama Lama
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

Billyblobb
New Member


Date Joined May 2015
Total Posts : 7
   Posted 8/17/2015 3:20 PM (GMT -6)   
Hi MamaLama,

Yes, I do make sure to drink lots of water, that is number 1!

My meds were covered by Aetna insurance with a $10 co-pay. I have Hep C genotype 3, hence the 24 week regimen. I am in Washington State.

Dee K.
Regular Member


Date Joined Aug 2015
Total Posts : 24
   Posted 8/18/2015 6:59 PM (GMT -6)   
Hi Billy , I am new hear, and I will be taking my meds next week. Sovaldi 400 mg - x1 a day in the morning, Riba 600 mg x2 a day. I have Genotype II , fatty liver. Had Hep C , since 1988, from hit& run accident. I am pray that I don't have bad side effects.

Questions:

How did you eat with these pills?

Dee K.
Regular Member


Date Joined Aug 2015
Total Posts : 24
   Posted 8/18/2015 7:01 PM (GMT -6)   
Congrats Billy for now being UD. So happy for you!

Billyblobb
New Member


Date Joined May 2015
Total Posts : 7
   Posted 8/24/2015 7:49 PM (GMT -6)   
Hi Dee,

I eat normally for me (some meat, lots of veggies, no processed food), and luckily I have home cooked meals everyday thanks to my wonderful wife. I try to eat healthy, and moderately on the sweets. NO alcohol. I take the pills with some food in the morning (a dollop of yogurt, banana, etc), and then with dinner. Be consistent. And always drink plenty of water throughout the day.

I think it is different for each person, so just try to be as healthy as you can. I am in my 14th week with no side effects to speak of.

Don't be scared. You can do it - 12 weeks ain't so bad, and a 98% success rate for your genotype!

Good luck and let us know how you progress,

Chris

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4786
   Posted 8/25/2015 9:03 PM (GMT -6)   
Bblobb...Great to hear you continue to do well. I was happy to hear that you had no problem with your commercial insurance. More and more are covering the meds and I wish they would all look at the reduction in risk to their bottom line to get ridof the virus thanto have folks as sick as some of our untreated members. Liver disease can be awful at later stages.

Hugs,
Mama Lama
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

Billyblobb
New Member


Date Joined May 2015
Total Posts : 7
   Posted 10/18/2015 8:10 AM (GMT -6)   
Finally finished 24 weeks of Solvaldi/Ribavirin today, still undetected. Hooray!!! Seemed to be feeling a little worse for wear towards the end, and maybe a little Riba rage in the mix, but more than likely it was just the ups and downs of regular life. All in all I feel pretty good!

I will update in 3 months whether or not I have achieved a SVR.

themiz
Forum Moderator


Date Joined Feb 2013
Total Posts : 1891
   Posted 10/18/2015 9:11 AM (GMT -6)   
Thanks for the good news update! Love good news. Look forward to your SVR in 12 weeks. Big Hugs
themiz-Forum Moderator-Hepatitis
Wife of themister, a fine man living with ESLD. Transplant list-2013

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.” Kahlil Gibran

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4786
   Posted 10/18/2015 9:16 PM (GMT -6)   
what themiz said! ML
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

Rubi
Regular Member


Date Joined Sep 2015
Total Posts : 79
   Posted 11/17/2015 4:40 PM (GMT -6)   
Billyblobb said...
I just turned 61 and I'm in the 18th week of a 24 week Solvaldi/Ribavirin regimen. Luckily NO side effects to speak of so far. Virus undetectable after 12 weeks.

I work full time and exercise regularly (run 3-4 mi every other day). I also take apple cider vinegar, molasses and Carlson's fish oil in the morning, as well as 2400 mg milk thistle morning and evening.

I am also a regular MMJ user.

6 weeks to go.


I wonder if I should try some of the things you're taking Billyblobb. I'm having horrible side effects and there is no way I could work and run. I have always been very active and only stopped running because of hip issues, but I continued hiking and other activities. How do you take the cider vinegar, molasses, etc?

gavemegrace
Regular Member


Date Joined Sep 2013
Total Posts : 23
   Posted 11/23/2015 1:40 PM (GMT -6)   
turn Greetings Friends,
I haven't been on here forever have questions though I was diagnosed with hepatitis C in 2000, I'm 53 years old and my enzymes have never been above 47, recently though they are starting to rise a little bit sixty, how do you know when it's time to go get treatment if your enzymes are low?

Forgive My Ignorance I just need to stop pretending I don't have this disease.
GivemeGrace♡

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1074
   Posted 11/23/2015 9:21 PM (GMT -6)   
It's time Grace!!
You need to have your liver staged for fibrosis. There are 3 acceptable forms of biopsy. Your dr will get your staging, genotype and baseline viral load.

Starting a new thread would be best.
Good luck
Barry

Barrylink
Regular Member


Date Joined Mar 2015
Total Posts : 124
   Posted 12/15/2015 9:09 AM (GMT -6)   
MamaLama That advice you gave about water is so correct!! everytime i went to Doctors that was what they said!! the nurse would call me and ask if i was drinking lots of water and give me crap if i wasn't
I hope everyone that is reading this is having a really good day. And if you are not, just know that in every new minute that passes you have an opportunity to change that.

Rubi
Regular Member


Date Joined Sep 2015
Total Posts : 79
   Posted 12/15/2015 2:10 PM (GMT -6)   
I agree with ppm guy. Now is the best time to get rid of this nasty virus.

My symptoms started mild and quickly grew to severe. I drink tons of water, so I'm afraid of what would have happened had I not. The only fairly common symptom I did not get was the headache. And, yes, I am grateful for that. It does, however, look like the side effects are going to haunt me through the entire treatment. I have Six days left and look forward to building up my strength and stamina.

Hugs,

Rubi
F 59
GT 2
Viral load 5.6 million as of 7-24-15...42 as of 10-21-2015
Sovaldi/Ribavirin start date 9-28-15


"They sicken of the calm that know the storm." Dorothy Parker

Billyblobb
New Member


Date Joined May 2015
Total Posts : 7
   Posted 1/24/2016 6:36 PM (GMT -6)   
Sad news. The hep c has returned 3 months post treatment. Back to square one, hopefully no worse for the wear.

Thanks for being supportive MamaLama and TheMiz.

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1074
   Posted 1/24/2016 7:46 PM (GMT -6)   
 hi Billy,
so sorry about your tx results. 
 
once youre ready to try again, the fda approved sovaldi+daklinza for 24 weeks for genotype 3..
that will give you 2 heavy hitters to fight that pesky g-3. 2 DAAs...
 
you can also check the retreatment guidelines for g-3 failure, when taking sovaldi + riba.
best to you
barry

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1074
   Posted 1/24/2016 8:00 PM (GMT -6)   
Billy,
hcv guidelines/full-report-view
you can discuss these options with dr
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