Hep C - started treatment December 7th 2015 at 9am

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RoseAnn
Regular Member


Date Joined Dec 2015
Total Posts : 38
   Posted 12/9/2015 3:10 PM (GMT -6)   
I don't have my numbers to post - all I know is I have lived with this since 1977 - I don't drink so I am guessing that is a factor on the HEP C - not progressing. Just a guess.

I truly thought since back in 1977 - diet cured the illness. or at least left the illness dormant. (again back in 1977 was sent home with "got to eat right" and not drink) - no mention of any type of treatments

To my surprise a visit to the doctor brought up the "new" treatment available.

Well - I will post my progress - supposed to be on this for 12 weeks - ribavirin & solvadi

Day 2 - nothing noticeable on any side effects yet.

I enjoyed reading the posts out on this website already - grateful that I have a place to vent.

Respectfully

I am 59 years old - female

themiz
Forum Moderator


Date Joined Feb 2013
Total Posts : 1891
   Posted 12/9/2015 8:16 PM (GMT -6)   
Welcome to the hep forum, RoseAnn. I am very glad you found us!

You have read our stories and likely know many of our members here have successfully treated with Solvaldi/riba. Most have few, or no side effects. Especially those on the 12 week treatment plan.

A couple of tips for you. With ribavirin, try to eat something a little fatty with your pills. It doesn't need to be much. A couple of saltines with some nut butter or avocado. And drink 1/2 your body weight in oz. of water, per day. (100 lbs = 50 oz water, per day). This seems to help keep the sides away ;)

You are on your way to being cured! Keep in touch and again, welcome. Big Hugs
themiz-Forum Moderator-Hepatitis
Wife of themister, a fine man living with ESLD. Transplant list-2013

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.” Kahlil Gibran

Rubi
Regular Member


Date Joined Sep 2015
Total Posts : 79
   Posted 12/10/2015 8:16 AM (GMT -6)   
Welcome RoseAnn,

You are definitely in the right place. I am in week 11 of a 12 week treatment. I saw signficant changes in my labs at the 2 week mark and Viral Load at 4 weeks was down from 5.6 million to 42. I am expecting to have a 'not detected' showing on my next labs. Wishing you the best.

Rubi
F 59
GT 2
Viral load 5.6 million as of 7-24-15...42 as of 10-21-2015
Sovaldi/Ribavirin start date 9-28-15


"They sicken of the calm that know the storm." Dorothy Parker

RoseAnn
Regular Member


Date Joined Dec 2015
Total Posts : 38
   Posted 12/10/2015 9:32 AM (GMT -6)   
Thank you for the welcome. I started walking at least 2-3 miles every 2 or 3 days - just to keep body from getting tight. Also the water thing - yes I do drink a lot of water anyway. I have upped my intake. This is day 3. Feeling quite OK.

RoseAnn
Regular Member


Date Joined Dec 2015
Total Posts : 38
   Posted 12/11/2015 1:55 PM (GMT -6)   
Day 4 - feeling pretty good
I little bad taste in mouth, brushing teeth often.
Eyes are a little dryer - going to stop for some eye drops to offset the dryness (don't know it that is a side effect at this point). Just posting.

Respectfully

Barrylink
Regular Member


Date Joined Mar 2015
Total Posts : 124
   Posted 12/11/2015 2:38 PM (GMT -6)   
RoseAnn welcome to the forum!!! I hope you do well and beat this sneaky devil.. I took the treatment and had no sides.. hope this is how it goes for you also.. i don't know if i'm clear yet but odds are in my favor.. Any questions and i'm sure you will get response quickly here,, welcome again and smile!! things are getting better..
I hope everyone that is reading this is having a really good day. And if you are not, just know that in every new minute that passes you have an opportunity to change that.

RoseAnn
Regular Member


Date Joined Dec 2015
Total Posts : 38
   Posted 12/11/2015 2:49 PM (GMT -6)   
Thank you Barrylink

I am hoping no side effects. This website does seem to take the "worry" off about taking medication. This is the first time ever to have to take medication more than a few days like an antibiotic.

Respectfully

themiz
Forum Moderator


Date Joined Feb 2013
Total Posts : 1891
   Posted 12/11/2015 7:35 PM (GMT -6)   
Glad to hear you are moving toward being cured. You will be done before you know it! Big Hugs
themiz-Forum Moderator-Hepatitis
Wife of themister, a fine man living with ESLD. Transplant list-2013

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.” Kahlil Gibran

tblount
Regular Member


Date Joined Oct 2015
Total Posts : 82
   Posted 12/11/2015 11:15 PM (GMT -6)   
Best wishes for an easy treatment. The riba was tough for me but I have survived. I have one last week of 12 weeks left.

I'm thinking of advice that I might offer from my experience.

1. If you aren't peeing every couple hours you might want to drink more fluids. Yeah, night and day.

2. If you don't eat when you take ribavirin you'll probably get jittery and a easily agitated. After a few days I never took the riba all at once, I waited a half hour to an hour between pills.

3. Look up foods high in ammonia and avoid them because a weak liver won't break down ammonia efficiently and elevated levels are toxic to the brain. Foods like wheat and soy and cheese are high in ammonia and the effects of the meds like lethargy, confusion, light headedness and brain fog were multiplied when I ate them. My ammonia test were 4 times normal. I was confused most of the second month.

4. Keep salt to a minimum. Rest a lot more. Everything else is secondary to getting cured.

5. Test anyone/everyone you might be having contact with because you don't ever want to have to try to get these expensive meds and go through this treatment again.
M 64, detected after taking a 10 panel STD blood test
Started 12 week treatment with Solvaldi and Ribavirin 9-28-15
Genotype 2b -- Load Count 17,000,000
Probably got infected 45 years ago

Barrylink
Regular Member


Date Joined Mar 2015
Total Posts : 124
   Posted 12/12/2015 4:20 AM (GMT -6)   
taking meds is kinda like throwing dice sometimes you win ..sometimes it bites, it all depends on your body;s acceptances of the med . I have survived two hits of cancer, a liver transplant and taken multiple meds. I have to take a immune depressant every day till..? and so far the worst thing has been i forget the darn pills LOL So relax.. you maybe??? LUCKY , if not i would ask for a new deck of cards!! like who wants a lousy deal? the truth is we all respond different..cross your fingers and toes.. remeber a funny thought helps.. !! think of your boss in a pink tutu.. laughter is the best medicine
I hope everyone that is reading this is having a really good day. And if you are not, just know that in every new minute that passes you have an opportunity to change that.

RoseAnn
Regular Member


Date Joined Dec 2015
Total Posts : 38
   Posted 12/14/2015 8:02 AM (GMT -6)   
It has been a week on medicine - feel pretty good. I am feeling like there is a haze around me. My thought process seems a little slower than normal. I am going to be walking 3 miles now just about every other day (thread mill at work). Appetite normal still. slight headache due to the "haze" that I am feeling. Other than that feeling pretty good.

Respectfully

Barrylink
Regular Member


Date Joined Mar 2015
Total Posts : 124
   Posted 12/15/2015 8:28 AM (GMT -6)   
RoseAnn Hi!! youyr feelings of a "haze" should pass, I had a few headaches at first and there were days I felt like I was so weak..but this only happened once in a blue moon and only lasted for about 2 hours. I sat down and rested during this time and i took tylenol(2 of them,extra strength) that seemed to help. I have to admit for the first week i took tylenol every morning and it helped. i asked the Doc if this was a bad idea and he said not to worry it is fine.. Have a good day and hopefully all your sides leave!!
I hope everyone that is reading this is having a really good day. And if you are not, just know that in every new minute that passes you have an opportunity to change that.

RoseAnn
Regular Member


Date Joined Dec 2015
Total Posts : 38
   Posted 12/15/2015 8:59 AM (GMT -6)   
Thanks Barrylink
I am seeing doctor next Wednesday after blood work on Monday the 21st. I will ask about headache medicine.
I am feeling pretty good today - again just a slight "hazy" feeling. No real headache.
One noticeable thing is I am blowing nose more often like I have a cold or flu. Just went thru a box of Kleenex and opened another both here at work and at home.

I hope all that read this is having or going to have a great and wonderful day.

Respectfully

Barrylink
Regular Member


Date Joined Mar 2015
Total Posts : 124
   Posted 12/15/2015 9:15 AM (GMT -6)   
RoseAnn I had issues with my darn nose also but they went away thank god!! lol hopefully you end up the same!1 Its a little annoyance though and we can handle it ,anything that kills hep-c i can take lol !!I have , psoriasis ,Celiac disease and had broken hip ,liver transplant,cancer twice yet beat everything so far so a few annoyances are nothing!! :-) I have faith that your going to win ,have a great day and Smile
I hope everyone that is reading this is having a really good day. And if you are not, just know that in every new minute that passes you have an opportunity to change that.

Post Edited (Barrylink) : 12/15/2015 8:30:03 AM (GMT-7)


RoseAnn
Regular Member


Date Joined Dec 2015
Total Posts : 38
   Posted 12/16/2015 7:37 AM (GMT -6)   
Barrylink - thank you

I am pretty healthy - I smoke about 1/2 pack of cigs a day and those do not taste real good right now - so who know - might be quitting.

Everyone who reading this - have a great day.

Respectfully

tblount
Regular Member


Date Joined Oct 2015
Total Posts : 82
   Posted 12/16/2015 12:34 PM (GMT -6)   
Much of my brain haze declined when I cut out foods high in ammonia. There is no at-home test for ammonia but the test for aquarium ammonia will give a pretty good indication of the quantity of ammonia in you urine. The norms are 2 ppm (parts per million) to 8 ppm (in blood) and the water test measure from 1 to 6 ppm. During my worse brain fog period my ammonia (urine) was so far off the chart I know I was probably 4 times higher than normal. If your liver still has normal function it may convert the ammonia from food and caused by bacteria normally in the digestive system to urea and brain functions won't be so affected.

The lab (blood) test for ammonia aren't that expensive even if you have to pay out of pocket.... so if you experience a lot of brain fog, confusion and agitation you may want to get tested.

If you want to know more about the effects of ammonia on the brain, osha has done a lot of research to determine safe levels of ammonia for workers to be exposed to. This research is online and it's worth reading. Ammonia is highly soluble in water... this causes nose to run and eventually it will start causing a lot of flim in your bronchial tubes and throat.

In one particular research OSHA (or whoever was running the test for them) took stray cats and exposed them to elevated levels of ammonia. The cats that simply inhaled it had fluid buildup in their bronchial tubes but recovered. The cats that were exposed to the same levels of ammonia through tubes leading directly into their lungs suffered permanent lung damage.


Here is a snip from the government osha web site:

Ammonia forms a strong alkaline solution in water, and the high solubility and strong alkalinity make it especially irritating to the upper respiratory system. Exposure to ammonia can occur not only from the vapor but also from the liquid and from concentrated aqueous solutions. Depending upon the exposure, symptoms can range from mild upper respiratory irritation to inflammatory processes of the entire respiratory tract with complications of pulmonary edema and bronchopneumonia.

Here's more from a medical website database

An important job of the liver is to make toxic substances in the body harmless. These can include substances made by the body as well things that you take in (such as medicines). However, when the liver is damaged, these "poisons" can build up in the bloodstream. Ammonia, which is produced by the body when proteins are digested, is one of the substances normally made harmless by the liver. Other toxins may also build up. These things can cause damage to the nervous system.

When liver damage occurs, hepatic encephalopathy may occur suddenly, even in people who have not had liver problems in the past. More often, the problem develops in people with chronic liver disease.

Hepatic encephalopathy may be triggered by:
•Dehydration
•Eating too much protein
•Electrolyte abnormalities (especially a decrease in potassium) from vomiting, or from treatments such as paracentesis or taking diuretics ("water pills")
•Bleeding from the intestines, stomach, or esophagus
•Infections
•Kidney problems
•Low oxygen levels in the body
(My note... remember the warning about hep c medicines... they destroy red blood cells.... the ones that carry oxygen)
•Shunt placement or complications
•Surgery
•Medicines that suppress the central nervous system (such as barbiturates or benzodiazepine tranquilizers)


...and there is a lot more info that I found helpful to deal with my brain fog. ....as always, your mileage may vary.
M 64, detected after taking a 10 panel STD blood test
Started 12 week treatment with Solvaldi and Ribavirin 9-28-15
Genotype 2b -- Load Count 17,000,000
Probably got infected 45 years ago

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1080
   Posted 12/16/2015 2:39 PM (GMT -6)   
hi
congrats on starting treatment. sounds like things are going well.
you are on a great treatment, that will eliminate that 17 million viral load in a few weeks.

Enjoy your holidays, and ask any and all ???s
best
barry

tblount
Regular Member


Date Joined Oct 2015
Total Posts : 82
   Posted 12/18/2015 2:20 PM (GMT -6)   
I don't think she posted here load count?
M 64, detected after taking a 10 panel STD blood test
Started 12 week treatment with Solvaldi and Ribavirin 9-28-15
Genotype 2b -- Load Count 17,000,000
Probably got infected 45 years ago

RoseAnn
Regular Member


Date Joined Dec 2015
Total Posts : 38
   Posted 12/19/2015 9:43 AM (GMT -6)   
No I did not post "load count" - I did not know what that was until I got into this support "group" page. I am going to the lab on Monday for blood work and the doc visit on Wednesday - I will ask the start numbers and the numbers now and post when I get them.

Yesterday I felt wonderful - like myself. The nose is still running - just blowing it - again using a lot of Kleenex. Other than that the haze has left my "head". Thank goodness.

Just the runny nose. But when I think about it - since my daughter moved in with her cats - I have had a runny nose - it just seems more since I have been taking meds. Love those cats not getting rid of them. I used to take a benadral once in a while - but cannot since I am on these meds. I am attributing the runny nose to the cats. but again it might be the meds and the cats.

Today - I feel pretty good.

I hope all who is reading this has a great day

Respectfully

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1080
   Posted 12/19/2015 5:34 PM (GMT -6)   
ooopps!!!
that was your count Tblount. sorry about that.

RoseAnn
Regular Member


Date Joined Dec 2015
Total Posts : 38
   Posted 12/21/2015 9:38 AM (GMT -6)   
Feeling pretty good today - just a slight headache - very slight headache

I will get my numbers from the doctor and Wednesday and post them.

Respectfully

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4794
   Posted 12/22/2015 4:10 PM (GMT -6)   
Good Luck...

Hugs,

Mama Lama
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

tblount
Regular Member


Date Joined Oct 2015
Total Posts : 82
   Posted 12/22/2015 6:26 PM (GMT -6)   
I finished 12 weeks of Sovaldi / Ribavirin two days ago and lab called today saying I'm NOT Detected for hep c
Yeaaa

God Bless Gilead, they gave me the medicine to save my life.
M 64, detected after taking a 10 panel STD blood test
Started 12 week treatment with Solvaldi and Ribavirin 9-28-15
Genotype 2b -- Load Count 17,000,000
Probably got infected 45 years ago

RoseAnn
Regular Member


Date Joined Dec 2015
Total Posts : 38
   Posted 1/4/2016 3:21 PM (GMT -6)   
Feeling pretty good - my starting number was a little over 6 million
the blood work that was done was just a general blood test. Another blood text in 4 weeks that tells me if the number is going down.

I am just a little tired most of the time. Eyes dried out.

I am feeling "fat" this week - I overate during the holiday
I am getting ready to walk on the tread mill - going to walk about 2.5 miles

I hope anyone who reads this - will have a wonderful day or night.

Rose

Barrylink
Regular Member


Date Joined Mar 2015
Total Posts : 124
   Posted 1/5/2016 8:54 AM (GMT -6)   
RoseAnn!!! How have you been? I hope everything is going well and you are in good spirits!! Just thought I would say hello and check in on you , hopefully your day is going well and a smile is upon you through out the day!!
I hope everyone that is reading this is having a really good day. And if you are not, just know that in every new minute that passes you have an opportunity to change that.
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