My Hep C Journey

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Allison K
Regular Member


Date Joined Dec 2015
Total Posts : 58
   Posted 2/23/2016 8:59 PM (GMT -6)   
Woofer5,
I just tried it with quinoa milk, er non-dairy beverage. Yummy! Haven't put espresso in yet, but that could be good. I just warm the golden paste with some cinnamon in 'milk'. My friend called it chai and it stuck.
I'm planning on using hemp milk at some point. I think the spices will overpower the base flavor so it will probably be fine too.
It's become my morning routine since I decided to follow my doctor's advice about the protein powder smoothies until I'm done with treatment.

Let me know how you like it!

Allison

woofer5
Regular Member


Date Joined Jul 2015
Total Posts : 87
   Posted 2/24/2016 8:19 AM (GMT -6)   
Hmm, I never tried quinoa milk. I like quinoa, but I sure love my coconut milk. Dragging out the espresso machine was just so I can put a good froth on the coconut milk... :)
I hadn't thought about adding espresso, but maybe I'll give it a shot after trying the original recipe.
Haven't tried hemp milk either...you're full of cool ideas...haha.

Hey, what day do you actually take your last dose?

woofer5
Regular Member


Date Joined Jul 2015
Total Posts : 87
   Posted 2/24/2016 8:25 AM (GMT -6)   
Hey tblount,

Cut and hauled 20 tons of pulpwood by your lonesome...Jeepers!
You got me singing along to Eye of the Tiger from Rocky...hahaha.

Seriously man, you sound like you're doing great.
Really happy for you!

tblount
Regular Member


Date Joined Oct 2015
Total Posts : 82
   Posted 2/24/2016 4:08 PM (GMT -6)   
Allison, you'll be feeling so much better in 2 months. It will be easy to get in shape.
M 64, detected after taking a 10 panel STD blood test
Started 12 week treatment with Solvaldi and Ribavirin 9-28-15
Genotype 2b -- Load Count 17,000,000
NOT DETECTED 12-22-15
Thank You Gilead

tblount
Regular Member


Date Joined Oct 2015
Total Posts : 82
   Posted 2/24/2016 4:21 PM (GMT -6)   
woffer5

Well I should mention I had a tractor that put the logs on the trailer.

Yes, feeling good, getting in shape. Thanks for your support.
M 64, detected after taking a 10 panel STD blood test
Started 12 week treatment with Solvaldi and Ribavirin 9-28-15
Genotype 2b -- Load Count 17,000,000
NOT DETECTED 12-22-15
Thank You Gilead

Allison K
Regular Member


Date Joined Dec 2015
Total Posts : 58
   Posted 2/25/2016 6:11 AM (GMT -6)   
My last dose is a week from Friday. March 4th. 9 days counting today.

I have done a little bit with making my own non-dairy milks. I have been making coconut. My Vitamix does a decent job grinding it down enough. Although according to this Qi Gong nutrition book I have it says you should have a 3 horsepower blender to really pulverize it down enough. (I put avocado pits in my smoothies too) The Vitamin is 2.25HP, but it has the grinding container.
You are supposed to strain the milk afterwards to get it good and smooth. Haven't done that as I usually do all this at 0'dark thirty before I head to work. I'm going to do my own quinoa milk next.

Have a great day,
Allison

Allison K
Regular Member


Date Joined Dec 2015
Total Posts : 58
   Posted 2/25/2016 6:20 AM (GMT -6)   
Perhaps someone knows more about this than I do. I will have about half a bottle of ribavirin left over at the end of my treatment. My doctor told me to cut my dosage but did not rewrite my prescription. I had read a year or more ago of a person who had begun collecting unused drugs through their community in order to provide them to people who could not afford their medications. Is anyone aware of a place like that? I am sure I will not have any use for the leftover ribavirin myself.

Update: Went to search about this and found that any medication would need to be unopened. Oh well. Going to find where to recycle this medication. I'm sure I mentioned that our county has trace amounts of antidepressants and probably hormones in our water supply due to the inability to filter out such small molecules. Don't want my meds to end up adding to the problem.

Post Edited (Allison K) : 2/25/2016 5:27:58 AM (GMT-7)


themiz
Forum Moderator


Date Joined Feb 2013
Total Posts : 1891
   Posted 2/25/2016 10:25 AM (GMT -6)   
Check with a chain pharmacy, Allison. Our Walgreen's has a drop off. Big Hugs
themiz-Forum Moderator-Hepatitis
Wife of themister, a fine man living with ESLD. Transplant list-2013

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.” Kahlil Gibran

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4786
   Posted 2/25/2016 10:29 AM (GMT -6)   
This kind of a hush hush topic.

The nurses at Mikes tp center take his extras....shhhh.

ML
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

tblount
Regular Member


Date Joined Oct 2015
Total Posts : 82
   Posted 2/26/2016 9:49 PM (GMT -6)   
All meds will be extremely valuable should there be a failure in the distribution system. Ribavirin also treats pneumonia... and about a million people have pneumonia per year. I would keep anything that has a high barter value in a national crisis. The military and FDA say that 6 out of every 7 medications are good for 40 years. The military has saved millions by using drugs past their expiration date. There has never been a medication found that turned toxic after it's expiration date.

But if you sell meds you want people and the government to destroy them and buy more.... obviously.
M 64, detected after taking a 10 panel STD blood test
Started 12 week treatment with Solvaldi and Ribavirin 9-28-15
Genotype 2b -- Load Count 17,000,000
NOT DETECTED 12-22-15
Thank You Gilead

Allison K
Regular Member


Date Joined Dec 2015
Total Posts : 58
   Posted 2/27/2016 12:30 AM (GMT -6)   
Thank you all for the input on meds. Good to know...

Allison K
Regular Member


Date Joined Dec 2015
Total Posts : 58
   Posted 2/27/2016 12:34 AM (GMT -6)   
Starting Week 12!!!!!! Yay!!!!

Allison K
Regular Member


Date Joined Dec 2015
Total Posts : 58
   Posted 3/1/2016 6:40 AM (GMT -6)   
oops, this posted before I was finished

Post Edited (Allison K) : 3/1/2016 5:53:46 AM (GMT-7)


Allison K
Regular Member


Date Joined Dec 2015
Total Posts : 58
   Posted 3/1/2016 6:51 AM (GMT -6)   
4 days to go!

I thought I'd run down my symptoms one more time as finding a post like that here really helped me come to terms and be less frightened with this process.

I have gotten pretty forgetful. I'm still functioning at work, but it's not my best work. Kind of flighty.
I have the riba rash on the front of my shins mainly. It continues with random bumps along my arms and it have a patch on my chest. I also have some along both sides of my face on my cheeks next to my ears. I found a detoxifying face soap with activated charcoal in it at a whole food store. That helped on my face. Not as much on my chest.
I have rarely had any nausea. I have been very careful with my diet, eating less meat and processed foods. I actually put on 5 pounds, unlike most people taking sovaldi and ribavirin.
I have found myself getting more agitated just recently. Perhaps it is the situation of parent conferences and parents having a temper tantrum when their child decides not to do her work and gets a 0. Anyway, I found myself pretty agitated and felt like I was just aching to lash out. If I'd been pushed any further I may have demonstrated a little riba rage.
Physically, I took it easy and have lowered my activity level. I'm not sure that I needed to. That one bout with dizziness early on had me step back on intensity. I worried that I might push myself too far and I didn't have the luxury of being able to spend a lot of time in bed to recover. Besides, why would I want to do that to my body when it was already fighting a battle?
Anyway, I have to say, this has not been a horrible treatment. With what it is doing for me I feel a bit like a whiner complaining at all. Previous treatments were so much more unpleasant and had a significant lower chance of curing HCV.

All in all, I feel decent and happy about this. I have a lot of people to thank who encouraged me here. THANK YOU!!!!
F, 57, diagnosed 9/15, undetermined source,
12 Week Treatment with Sovaldi and Ribavirin start date 12/12/15.
Week 4 blood tests :
-HCV Not Detected
-Liver function in Normal range
***EOT on March 4, 2016***

woofer5
Regular Member


Date Joined Jul 2015
Total Posts : 87
   Posted 3/1/2016 7:55 AM (GMT -6)   
Way to go Allison...really happy for you!
I can almost taste that turmeric, cinnamon chai toast already...hahaha

tblount
Regular Member


Date Joined Oct 2015
Total Posts : 82
   Posted 3/1/2016 10:45 AM (GMT -6)   
Hep C cures now as cheap as $6.20

Breakthrough cheap hepatitis cures are now available to Australians,
M 64, detected after taking a 10 panel STD blood test
Started 12 week treatment with Solvaldi and Ribavirin 9-28-15
Genotype 2b -- Load Count 17,000,000
NOT DETECTED 12-22-15
Thank You Gilead

Allison K
Regular Member


Date Joined Dec 2015
Total Posts : 58
   Posted 3/2/2016 7:00 AM (GMT -6)   
3 days...

woofer5
Regular Member


Date Joined Jul 2015
Total Posts : 87
   Posted 3/2/2016 10:04 AM (GMT -6)   
Allison K said...
3 days...

Yeah, who's counting... tongue

Allison K
Regular Member


Date Joined Dec 2015
Total Posts : 58
   Posted 3/4/2016 2:08 AM (GMT -6)   
Tomorrow...
F, 57, diagnosed 9/15, undetermined source,
12 Week Treatment with Sovaldi and Ribavirin start date 12/12/15.
Week 4 blood tests :
-HCV Not Detected
-Liver function in Normal range
***EOT on March 4, 2016***

Allison K
Regular Member


Date Joined Dec 2015
Total Posts : 58
   Posted 3/4/2016 9:18 AM (GMT -6)   
End of Treatment!!! TODAY!!!

I'm taking the day off to rest, before I begin the celebration!


Hope everyone is as happy as I am today!
Allison
F, 57, diagnosed 9/15, undetermined source,
12 Week Treatment with Sovaldi and Ribavirin start date 12/12/15.
Week 4 blood tests :
-HCV Not Detected
-Liver function in Normal range
***EOT on March 4, 2016***

woofer5
Regular Member


Date Joined Jul 2015
Total Posts : 87
   Posted 3/4/2016 12:04 PM (GMT -6)   
Yippee Ki Yay...you go girl!

themiz
Forum Moderator


Date Joined Feb 2013
Total Posts : 1891
   Posted 3/4/2016 1:16 PM (GMT -6)   
Don't forget to check in with your labs at 12 weeks post end of treatment. If you remain undetected at that point, you are considered cured! So glad your treatment side effects were tolerable. Big Hugs
themiz-Forum Moderator-Hepatitis
Wife of themister, a fine man living with ESLD. Transplant list-2013

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.” Kahlil Gibran

tblount
Regular Member


Date Joined Oct 2015
Total Posts : 82
   Posted 3/4/2016 4:06 PM (GMT -6)   
Winner, Winner, Chicken Dinner!

You beat it. Way to go!
M 64, detected after taking a 10 panel STD blood test
Started 12 week treatment with Solvaldi and Ribavirin 9-28-15
Genotype 2b -- Load Count 17,000,000
NOT DETECTED 12-22-15
Thank You Gilead

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4786
   Posted 3/4/2016 8:15 PM (GMT -6)   
yeah yeah yeah yeah yeah yeah yeah yeah yeah

great news

mamalama
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

getcured
Regular Member


Date Joined Jan 2015
Total Posts : 64
   Posted 3/7/2016 9:36 PM (GMT -6)   
Congrats on finishing treatment Alison!!! So happy for you.
I finished close to this time a year ago and all good.
For what its worth- I also gained weight on Sov and Riba. Thinking back, I think I ate more then I needed for fear of being nauseous and was less active because I was tired a lot. Not such a terrible sacrifice for a potentially lifesaving result. Lost weight pretty quickly afterwards. Also, it did take me a while to feel better so be sure to give yourself time!! In the meantime, enjoy your freedom from the medicine everyday and happy almost spring. HW
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