MAMALAMA has been absent

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MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4793
   Posted 12/16/2015 11:20 AM (GMT -6)   
Hi to all our HW friends.

I have been missing from the forum almost a month.

I have been in the hospital 3 times with C Diff. and had my appendix out as well.

I had great care and seem to be on the mend. I read lots of back posts today and miss you all.

themiz has been here covering for both of us...thank you so much...

today I am feeling semi ok for the fist time since mid November, though totally exhausted from being basically in bed.

wishing everyone a happy holiday...however you celebrste the winter solstice
.

hugs,

mamalama
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1080
   Posted 12/16/2015 2:19 PM (GMT -6)   
  Hi ML,
You are missed, big time. So glad to hear you are on the mend.
 
Wishing you a happy and healthy(improved health) holiday season.
barry
 

themiz
Forum Moderator


Date Joined Feb 2013
Total Posts : 1891
   Posted 12/16/2015 2:43 PM (GMT -6)   
I'm so glad you are feeling well enough to post today. We miss you when you are absent. Get better. Big Hugs
themiz-Forum Moderator-Hepatitis
Wife of themister, a fine man living with ESLD. Transplant list-2013

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.” Kahlil Gibran

**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 12/16/2015 3:44 PM (GMT -6)   
I knew there was something missing...

Rubi
Regular Member


Date Joined Sep 2015
Total Posts : 79
   Posted 12/16/2015 3:55 PM (GMT -6)   
Glad to see you feeling better.
F 59
GT 2
Viral load 5.6 million as of 7-24-15...42 as of 10-21-2015
Sovaldi/Ribavirin start date 9-28-15


"They sicken of the calm that know the storm." Dorothy Parker

Martijean1
Regular Member


Date Joined Sep 2014
Total Posts : 70
   Posted 12/17/2015 7:52 AM (GMT -6)   
Returning many hugs you've sent to me the past year...
Don't ask God to guide your footsteps of you aren't willing to move your feet.

woofer5
Regular Member


Date Joined Jul 2015
Total Posts : 87
   Posted 12/17/2015 9:33 PM (GMT -6)   
Hey ML, 3 hospitalizations and surgery in the last few weeks...UGH!
Glad you're back and on the mend.
Enjoy the holidays!

Hef
Regular Member


Date Joined Jan 2015
Total Posts : 44
   Posted 12/18/2015 8:33 AM (GMT -6)   
ML, I'm so sorry to hear about all you've had to go through. I've been radio silent for a while...imagine that. I think about you all the time. My mom got C Diff when she was in the skilled nursing center. We all loved dressing up to see her! haha. Have you gotten through the last bout of it? I hope so. It's nothing to take lightly. I have been doing better emotionally with my parents. I've gotten better at keeping telephone convos short and sweet. I don't engage her with her far fetched comments. There are some duzies. How is your sister doing without around?

Had I told you that mom and dad are drinking again? It didn't take long. We weren't surprised. It would be medical textbook ready if they stayed sober without any professional help. Anyway, I need to read themiz's posts in your absence. Hi themiz!

I want to wish you and your family a wonder winter solstice. Keep warm and happy as always!

Hugs,
Val
RSD, Radiculapathy L5 nerve, Degenerative Disc Disease.

Main reason I'm here:
both of my parents are ESLD and continue to drink.

schimbare
Regular Member


Date Joined Mar 2012
Total Posts : 462
   Posted 12/18/2015 1:41 PM (GMT -6)   
Oh dear! I am saddened to hear of your ongoing medical troubles. Being sick sucks! My thoughts and some long online hugs are heading Mike and your way!

xoxo
Susan

**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 12/18/2015 4:00 PM (GMT -6)   
How are you doing, Susan?
nullum beneficium impunitum...

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4793
   Posted 12/18/2015 4:13 PM (GMT -6)   
Thanks for all your good wishes,

I got my hair cut today and needed a nap afterwards...gosh I feel so weak.

I'm worried about some of my lab results...my lfts are elevated and the pathology report from that pesky appendix looks like it may be cancerous. Day by day...I have a call into Mike'S oncologist. Always something.

I'm still taking it easy...bed to Chair to bed again.

I can't believe our members post from their transplant beds...

Susan, would you send me an email, please?

Val, I'm sorry to hear your folks have relapsed, but thrilled to hear YOUR head is in a great place.
My sis is stable but I'm going from 30 hours per week for an aid to 60 hours.
I had been doing the weekends myself, but have been too sick. Mike has been trying to look after both of us and it is too much, I see that now.

Everyone have a happy weekend.
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 12/18/2015 5:41 PM (GMT -6)   
ML,
That's the Samson effect...

Take it easy and get well soon.
nullum beneficium impunitum...

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4793
   Posted 12/21/2015 6:13 AM (GMT -6)   
Hugs to everyone. ML
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

Hef
Regular Member


Date Joined Jan 2015
Total Posts : 44
   Posted 12/21/2015 9:03 AM (GMT -6)   
MamaLama, Gentle hugs to you. V
RSD, Radiculapathy L5 nerve, Degenerative Disc Disease.

Main reason I'm here:
both of my parents are ESLD and continue to drink.

RoseAnn
Regular Member


Date Joined Dec 2015
Total Posts : 38
   Posted 12/21/2015 9:40 AM (GMT -6)   
I don't know you but here is a hug xoxoxoxox

Respectfully

healthynow
Veteran Member


Date Joined Oct 2010
Total Posts : 1772
   Posted 12/29/2015 6:15 PM (GMT -6)   
MamaLama,

I hope you are resting and on your way to a full recovery. Keeping you and Mike in my prayers.

Big hugs,
Emma

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4793
   Posted 12/29/2015 6:47 PM (GMT -6)   
I'm doing better every day, thanks everyone. I hope to be back at my computer soon. Hugs. ML
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

DGinSD
Forum Moderator


Date Joined Apr 2007
Total Posts : 844
   Posted 1/18/2016 6:23 PM (GMT -6)   
Talk about being absent...I'm terrible and I apologize. This job doesn't lend me the same amount of time at my desk as the last. Then the HealingWell app went away. I do appreciate when you all email me on the AIH posters.

That said, I'm sorry to read that you were out of commission. Glad to hear you're on the mend.

I'll aim for random pop-ins in the future :-)
Dany
Co-Moderator - Hepatitis
___________________________________________________
AIH Jan 2007
CMV June 2008
Raynaud's February 2010
Meds: Azathioprine 100mg & Ursodiol 250mg BID

A.Ziffle
Veteran Member


Date Joined May 2011
Total Posts : 2071
   Posted 1/18/2016 7:46 PM (GMT -6)   
All differences aside I wish you and Dany good health.

Ziff
"The truth will set you free, but not before it pisses you off."

**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 1/20/2016 9:54 PM (GMT -6)   
ML,
Good to see you back. Take it easy and pace yourself.

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4793
   Posted 1/20/2016 10:15 PM (GMT -6)   
I'm posting more now. Mike has TP clinic next Thurs so that will be interesting.

He is mostly good but his kidneys are not good and he is complaining of pain, pins and needles and numbness in his feet and ankles and up his left leg. We will talk to the Hep guys to see if they have any ideas.

I am waiting to hear from my oncology coordinator at MD Anderson. My appendix had an odd tumor that needs a second opinion. They called today and will let me know next week if/when I should come to Houston for a consult. My diagnosis was mucinous cystadenoma. There are no appendiceal tumor specialists in FL.

Now you are caught up on our current drama.

Hugs,ML
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

Post Edited (MamaLama) : 1/21/2016 8:42:06 AM (GMT-7)


themiz
Forum Moderator


Date Joined Feb 2013
Total Posts : 1891
   Posted 1/21/2016 1:43 PM (GMT -6)   
Boy, it is great to see you feel well enough to post today! Missed you. Big Hugs
themiz-Forum Moderator-Hepatitis
Wife of themister, a fine man living with ESLD. Transplant list-2013

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.” Kahlil Gibran

woofer4
Regular Member


Date Joined Jan 2016
Total Posts : 35
   Posted 1/22/2016 11:44 AM (GMT -6)   
Hey ML, great to see you back more often, but don't over do it.
Sorry Mike's kidneys are giving him trouble. Hopefully, the docs will have some answers and things will improve...or even better he'll just improve on his own.

Sounds like your tumor was localized...thank heaven for that.
I read up on mucinous cystadenoma/appendiceal carcinoma...in almost 40 years I don't believe I've ever seen this diagnosis.
I found this surgical abstract...won't tell you anything you don't already know, but maybe the references will turn up something of interest to you.

Anyway, glad you continue to feel better. :)

woofer5

www.ncbi.nlm.nih.gov/pmc/articles/PMC3573785/

edit to make link hot :)

Post Edited By Moderator (themiz) : 1/22/2016 12:04:47 PM (GMT-7)


MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4793
   Posted 1/22/2016 1:30 PM (GMT -6)   
Hepcsurvivor....we Healing Well folks know how to do our research. Thanks for the article...very interesting.

In my case, the tumor HAD ruptured prior to laparoscopic resection of the appendix and the mucin spread around. The community hospital surgeon had never seen this either in his 30 years of practice. He did the right thing, though, in closing and recommending I seek care at a major medical center that treats peritoneal cancers as these are VERY rare and it needs an experienced team for the open surgery and debulking of the mucin from the abdomen. I expect they will do a right hemi colectomy as well...evidently we humans have more than enough bowel to toss some away! Not sure of any of this until I get my appointment at M D Anderson in Houston. Thanks for thinking of me. ML
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

woofer4
Regular Member


Date Joined Jan 2016
Total Posts : 35
   Posted 1/22/2016 3:11 PM (GMT -6)   
Yikes...I didn't realize it had ruptured. No wonder you've been so ill and in such pain for this long. Sorry, it took me a while to get on the same page.
You know us guys though, sometimes it takes a 2x4 across the head for the idea to sink in...especially if the idea is from "the wife"...hahaha.
Glad to know you're headed for a cancer center like MD Anderson...definitely the route I'd go.

about 2 years ago, it looked like I might have prostate cancer, but thankfully I didn't. My son, who works in one of the big centers in Boston (known for cutting edge urology...no pun intended, lol) hand picked the surgeon, anesthesiologist and OR crew. I remember him saying, "Dad, he's one of the best urologists on the planet in robotic prostatectomies...he's done well over a thousand. He's gentle, quick and has minimal blood loss which is impressive for a prostatectomy.
If the biopsy is positive, you're getting your butt up here."

Being a patient totally stinks, but knowing you're in the best hands sure helps a helluva lot.

woofer5
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