Help! Need direction on diet and liquids

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mitzi22
Regular Member


Date Joined May 2011
Total Posts : 197
   Posted 1/13/2016 6:42 PM (GMT -6)   
Warm hello to everyone here on Healing Well...

I have a continuous thread on my journey with Liver Disease. I didn't want this topic to blend in with on going journey as I have tried to find answers without any luck.

I need to find out if I limit my liquid intake because of trace ascities. I know about reduction in salt. Do I drink more water than normal? I don't know the best foods to eat and the ones to stay away from.

I would appreciate directions to the most valid diet I should follow. Advice would be helpful also.

Wishes for good days to everyone!

Hep C positive since 1998, undetected viral load until April,2014
Treated with Harvoni,12 wks
DOT 2/9/2015
SVR 8/12/2015
RCC in right kidney

Hug
Mitzi yeah
“Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.” Mary Anne Radmacher

A.Ziffle
Veteran Member


Date Joined May 2011
Total Posts : 2071
   Posted 1/13/2016 6:55 PM (GMT -6)   
Mitz, I will get back to you with the dietary info as recommended by my transplant team. I don't know that all hospitals give that packet out, but mine did. I have to dig it up but it's somewhere in this mess.


Ziff
"The truth will set you free, but not before it pisses you off."

mitzi22
Regular Member


Date Joined May 2011
Total Posts : 197
   Posted 1/13/2016 7:42 PM (GMT -6)   
Oh,Ziff...You do love me! It's good to hear from you. I am not to the point of appointment with the transplant team but I want to give my body the best chance. Just at a loss for the specifics. I appreciate your help. My email is listed if that is easier for you.

You seem to be one that likes a good story, so thought I would share.

I had an appointment with my pain management doctor. He wanted to know what has transpired with me. I told him everything I have been through and what I was facing. This blew me away. He told me he was in the team that performed one of the first successful liver transplants. He invented the Rapid Venous Infusion System. It is used with most transplants today. He stood up and said, "I don't share this with patients, but you have touched my heart." He lifted his scrub top showing a large scar. Said he had half of his liver removed from a tumor. He also told me prior to being here, he
was the Medical Director of Pain Management at Shands.

Needless to say,I was overcome with emotion. Ziff, what are the odds? I feel confident that I am in good hands with him overseeing my issues with back, hip, and knee.
Hope you enjoyed my story. I feel like the universe directed this connection.

Arnolddddddd...much warmth to you and yours..
Mitzi
“Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.” Mary Anne Radmacher

**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 1/13/2016 9:09 PM (GMT -6)   
I was told to stay hydrated at all times, even though I had huge water retention problems. Right before my transplant, I'd added 29 pounds of water in my legs. I was hospitalized,given IV diuretics and my liquid intake was cut to less than a liter a day. I shed the 29 pounds in a week, got released and felt great. Turns out my MELD had gone from 18 to 24 in that week. Three days later I got my transplant.

Is your build up in abdomen or legs?

You sure that doc isn't hitting on you?
nullum beneficium impunitum...

mitzi22
Regular Member


Date Joined May 2011
Total Posts : 197
   Posted 1/13/2016 9:49 PM (GMT -6)   
That's funny, David....when he stood up and reached for the bottom of his scrub top, a fleeting thought went through my head...OMG, I am 63 and this doctor is going to pull his winky-dink out. No, he was very sincere and his reaction to me really did move me. He doesn't seem to be a mushy-huggy-huggy type, usually very serious and professional.

In answer to your question, once in awhile, my feet and ankles will swell. Never the legs. There have been a few times I felt full and hadn't eaten. My stomach is not distended at all, other than being a little overweight.

Last month, the hep dr. changed my diuretic from HCTZ 0.25mg and Potassium 10, one tab daily, to spironolactone 100 mg,one tab daily. I have no edema or swelling anywhere. I am wondering if the 100mg is too high. Maybe 50 mg? If anything, it seems like I am dehydrated. Lips chapped; skin crinkling in hands. I have been reluctant to drink a lot of water, not knowing the protocol.

Any thoughts on your part will be most welcomed with credibility.

Wow, 29 lbs in one week??? I did not realize it can happen that quickly.
Big hug,
Mitzi
“Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.” Mary Anne Radmacher

A.Ziffle
Veteran Member


Date Joined May 2011
Total Posts : 2071
   Posted 1/13/2016 10:54 PM (GMT -6)   
Mitz see the post I added. U.N.C Recommendation for diet Liver disease. This question has surfaced a few times with others and thought it best to create a post dedicated to diet with liver disease.

Ziff
"The truth will set you free, but not before it pisses you off."

**David**
Veteran Member


Date Joined Nov 2009
Total Posts : 3708
   Posted 1/14/2016 4:30 PM (GMT -6)   
ZelDDa,
Ziffs UNC advice is right on the nose.

100 mg. does sound high.
nullum beneficium impunitum...

mitzi22
Regular Member


Date Joined May 2011
Total Posts : 197
   Posted 1/14/2016 9:28 PM (GMT -6)   
Thanks, Ziff, David, and tblount. Here I was this morning, thinking I was eating a healthy breakfast...yep, made a bowl of oatmeal with nuts and craisins. Wrong.

I am house sitting until Sunday.When I get home,I will print the diet Ziff and also research foods high in ammonia.

I can't fathom how lost I would feel without the solid information, advice, suggestions, and encouragement I receive here. I am not one to say this lightly...Healing Well Forum has been a true blessing to me through this journey.

I will post again after gathering information about diet. Additional info will be most appreciated, too. The more I learn, the better prepared I am. Hey, Ziff, can I eat your favorite farm food, here piggy, piggy?
Hugs always,
Mitzi
“Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.” Mary Anne Radmacher

A.Ziffle
Veteran Member


Date Joined May 2011
Total Posts : 2071
   Posted 1/14/2016 10:47 PM (GMT -6)   
Mitz, Your sense of humor is always welcome here. Yes, Pork is much easier to digest. As for this particular piggy, I maybe a bit hard to cook. I'm sure I'd be tasty with some extra attention. Baste me after soaking for a day or so with milk and herbs (gets that game wild taste out). Hope you don't care for liver, Mines worthless. But every thing else is fine. A bit pickled but otherwise good shape. Forgive me if I'm a bit biased as you already know. So what you been up to these days aside from worrying about fluid? Been wondering why you scampered away for awhile. You do know you are part of us here at HW?
"The truth will set you free, but not before it pisses you off."

Barrylink
Regular Member


Date Joined Mar 2015
Total Posts : 124
   Posted 1/15/2016 7:40 AM (GMT -6)   
mitzi22 you actually are kinda lucky..i am a celiac so my diet is restricted to begin with lol. I Know that the dietitian recommended Fish as a top food at least once a weak and chicken was high on list . Beans were on top of list also,red meat is good but is harder for your liver to break up. It contains a lot of iron ,which you need for red blood cell production...Personally I love tenderloin, but I was told to limit my intake of steak..I'll check the pamphlet they sent out for more info..oh I almost forgot "water" is a key!! you must drink lots! for your info www.hepatitis.va.gov/patient/daily/diet/single-page.asp

edit to make link hot.

Post Edited By Moderator (themiz) : 1/15/2016 7:41:56 AM (GMT-7)


mitzi22
Regular Member


Date Joined May 2011
Total Posts : 197
   Posted 1/15/2016 8:47 AM (GMT -6)   
Using tablet.Just posted reply and it disappeared. I need coffee. Will post in a bit.
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