Old Member, back again :(

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Nhill
New Member


Date Joined Jan 2016
Total Posts : 1
   Posted 1/15/2016 1:27 PM (GMT -6)   
In 2011 I came here many times for help. At the time I was taking care of my mother in law, who had fatty liver disease, which progressed to end stage liver disease. I was so lost, I walked into being her caregiver when I got engaged to my husband. It was very overwhelming and this site gave me a lot of great support and information. I came back for a long time after she passed, but life happened and I moved on I guess you can say.

To the present, my husband has been having sharp pains in his right upper quadrant and wasn't feeling great. He went to his pcp and they sent him for an ultrasound after looking at his blood work. Here is the concerns the dr saw.

Total protein -6.4 (not too low, but still off)
Albumin - 3.0
Ast - 53.0
Total Bilirubin - 2.4

We got a phone call yesterday from his nurse and I am freaking out, because I know what it can mean and I am sure it is what I think it is. (does that make sense!? lol) She said they are very concerned because his liver is small and in her words, "unfortunately there is ascites."

I am beyond scared! I am also angry because he has been told for a very long time he needed to be careful because of the fact his mom died from NASH and that it can be hereditary. It scared me enough being Anna's caregiver that I decided I would do everything in my power to never have to suffer like her or my kids watch me suffer like we did her. I lost 132lb and I am in the best health of my adult life and I just want him to try! He watched it so much longer than I did and I don't understand how he didn't want to change his future when he was told years ago he had fat on his liver.

I'm sorry I am venting, I am just scared, and I a, looking for words of advice and encouragement I guess. I can't talk to my friends or family because he doesn't want anyone to know until he gets seen by his new dr, which could still be a little while away. Anyways, thanks for reading and letting me vent.

Natalie

RoseAnn
Regular Member


Date Joined Dec 2015
Total Posts : 38
   Posted 1/15/2016 4:47 PM (GMT -6)   
Anytime it is a "loved" one we are concerned about - we or I should say I get overwhelmed. I want to fix manage and control the situation. You said cannot do anything until husband wants to change his life. I will put this up to the "Great Spirit" for direction and guidance. You need to still take care of yourself.

Respectfully

Rose

Rubi
Regular Member


Date Joined Sep 2015
Total Posts : 79
   Posted 1/15/2016 4:57 PM (GMT -6)   
I'm so proud of you for taking your experience and taking control of your health. I hope your husband learns from your example. Remember he is responsible for his health. I'll keep you both in my prayers.
F 59
GT 2
Viral load 5.6 million as of 7-24-15...42 as of 10-21-2015
Sovaldi/Ribavirin start date 9-28-15


"They sicken of the calm that know the storm." Dorothy Parker

A.Ziffle
Veteran Member


Date Joined May 2011
Total Posts : 2071
   Posted 1/15/2016 5:16 PM (GMT -6)   
NHill, Welcome to HW again. Try not to kick yourself or him, What is done is done. Move forward. You will find out the extent of the damage and do what's needed from there. As I'm sure you know worry isn't gonna make it better, In fact it's likely top make everything alot worse (We can stress ourselves into sickness). Fatty liver or a little ascites can easily be remedied. Diet and medication in most cases can get that straightened out. I hope that will be the case here as-well.


Ziff
"The truth will set you free, but not before it pisses you off."

themiz
Forum Moderator


Date Joined Feb 2013
Total Posts : 1891
   Posted 1/16/2016 12:09 PM (GMT -6)   
Hi Natalie! Welcome back. I hope you find the answers soon. The limbo of waiting for answers is often the most difficult. Thinking on the best of thoughts for your husband's diagnosis. Big Hugs
themiz-Forum Moderator-Hepatitis
Wife of themister, a fine man living with ESLD. Transplant list-2013

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.” Kahlil Gibran

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4786
   Posted 1/21/2016 10:00 AM (GMT -6)   
I am late in welcoming you back...though I am sorry to hear that hubby is now having some problems.

Congrats on looking after yourself. I have a bunch of wt to lose myself, and I know that is HARD.

Hugs, Mama Lama
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

Barrylink
Regular Member


Date Joined Mar 2015
Total Posts : 124
   Posted 1/22/2016 11:16 AM (GMT -6)   
MamaLama how are you? i saw you were missing and had a few visits to hospital, I hope that everything has settled down for you! Natalie I never actually met you but welcome back!! I look forward to hearing all your results from tests have come in and hopefully they are not as bad as a person tends to imagine..
I will follow the upward road today; I will keep my face to the light. I will think high thoughts as I go my way; I will do what I know is right. I will look for the flowers by the side of the road; I will laugh and love and be strong. I will try to lighten another’s load this day as I fare along.

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4786
   Posted 1/22/2016 1:13 PM (GMT -6)   
I posted a current status on the Mama is Missing thread. I'm feeling well again, but face unknown treatment later this winter...and that has me worrying....as you can imagine. My diagnosis is Mucinous Cystadenoma...if I spelled that right...you can look it up. ML
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

tblount
Regular Member


Date Joined Oct 2015
Total Posts : 82
   Posted 1/25/2016 1:34 PM (GMT -6)   
I'm sorry, I wish I could do more than sympathize. I have a close friend that is more than double her correct weight and I have been pleading with her for over 2 years to work on it. She says stuff like she is eating less and her clothes feel looser but we went on a cruise and I couldn't help but notice that she ate twice as much as I did... and I'm a foot taller. I may be just guessing but it seems to me that many people eat to relieve stress. Whatever, short of chaining someone to the bed post, there's not much anyone can do to help someone address a weight problem.... and fat around the heart is super dangerous.
M 64, detected after taking a 10 panel STD blood test
Started 12 week treatment with Solvaldi and Ribavirin 9-28-15
Genotype 2b -- Load Count 17,000,000
NOT DETECTED 12-22-15
Thank You Gilead
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