I got approved today Harvoni

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HepCFree
Regular Member


Date Joined Jan 2016
Total Posts : 28
   Posted 1/26/2016 6:44 PM (GMT -6)   
I am in shock! I thought I would never get approved! I only have to pay 5.00 for 4 weeks!

My question is what if they raise the price to something I cant afford for the rest of the treatment!

Omgosh, i cried!!!!

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1074
   Posted 1/26/2016 7:51 PM (GMT -6)   
hi free,
welcome!! of the hundreds of people that post here, i have not heard of that scenario happening.

you have a great treatment med, at the right price. How many weeks is your treatment? please let us know how you are doing during treatment.
barry

HepCFree
Regular Member


Date Joined Jan 2016
Total Posts : 28
   Posted 1/26/2016 8:30 PM (GMT -6)   
Hi there, thank you for your reply. I do not know what the treatment plan is yet. I was very surprised to get approval so I need to meet with dr. Just know I get 4 weeks worth on thurs.

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4786
   Posted 1/26/2016 8:33 PM (GMT -6)   
Glad to hear one more person is getting treatment! Good luck you you.

I have heard of some who were nervous about getting their second order, waited to start a week leaving themselves an over lap week to fuss at the pharmacy or insurance if the second order was delayed.

Blut I too have not heard of anyone actually facing interrupted treatment.

My partner had no trouble on the fulfillment side once the deal was struck.

Hugs,
Mama Lama
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

woofer4
Regular Member


Date Joined Jan 2016
Total Posts : 35
   Posted 1/26/2016 9:39 PM (GMT -6)   
HepCFree...a huge Congrats!
News we love to hear.

woofer5

HepCFree
Regular Member


Date Joined Jan 2016
Total Posts : 28
   Posted 1/27/2016 7:57 AM (GMT -6)   
I am gong to have a million questions. I will post and let you know how I am doing!

My first question is will I be sick? I have other issues that make me feel not so good so I am wondering if this will be really hard on me?

Do people miss work?

Thank you

HepCFree
Regular Member


Date Joined Jan 2016
Total Posts : 28
   Posted 1/27/2016 7:59 AM (GMT -6)   
Ps I feel like I won the lotto when I found out. My mom died last May and she would have loved this news! We held out until a better drug came along. It finally did!

themiz
Forum Moderator


Date Joined Feb 2013
Total Posts : 1891
   Posted 1/27/2016 10:46 AM (GMT -6)   
Hi, Welcome to the hep forum. I am glad you will soon eradicate this virus. Most on these new treatments have few side effects, if any. You will be fine:)


Here is info from Harvoni regarding sides. www.harvoni.com/discover-harvoni/common-side-

Keep in touch as you go forward! Again, welcome. Big Hugs
themiz-Forum Moderator-Hepatitis
Wife of themister, a fine man living with ESLD. Transplant list-2013

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.” Kahlil Gibran

HepCFree
Regular Member


Date Joined Jan 2016
Total Posts : 28
   Posted 1/27/2016 12:04 PM (GMT -6)   
Thank you all! Big virtual hugs!!!

HepCFree
Regular Member


Date Joined Jan 2016
Total Posts : 28
   Posted 1/28/2016 7:30 PM (GMT -6)   
I got it! Had to stay home from work to accept the del. i am starting tonight. It all happened so fast.

Plan on taking at night before bed because I take orher meds for another chronic illness during the day.

Here we go,

HepCFree
Regular Member


Date Joined Jan 2016
Total Posts : 28
   Posted 1/30/2016 9:14 PM (GMT -6)   
Day 3, so far so good. Feeling really good. Need to sleep early but get up feeling good and ready to go.

I hope it continues this way and I hope I dont flare with my other disease!

Knocking wood.

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4786
   Posted 1/30/2016 9:30 PM (GMT -6)   
Keep up the good work. ML
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

HepCFree
Regular Member


Date Joined Jan 2016
Total Posts : 28
   Posted 2/2/2016 9:28 PM (GMT -6)   
HI, I am wondering if the side effects happen during week one or do they happen later? Is there kind of a time frame when u are gong to get them? Thank you

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4786
   Posted 2/3/2016 1:29 PM (GMT -6)   
If you read the back posts from MANY treatment alums, you will see that some do and some do not suffer from side effects from the various treatment regimens.

When my partner was on Interferon and Ribavirin, he was a WRECK. He had to take both procrit and nupegin injections to keep his white and red bloods counts somewhere north of DEAD. He had riba rage, he was basically NUTS for months. He was on a 6 months regimen and took ages to feel better. And the treatment didn't work. He was cured in 2014 when he finally got a NON Riba alternative for Genotype 1a, Sovaldi and Olysio. I don't see many here on that one. BUT her cleared the virus in a few weeks and is still virus free! Woo Hoo.

He had no treatment side effects the second time, if anything, he felt better than in ages because the virus was not constantly brining him down. He was post transplant, so he is not a perfect 10 these days, but he is alive and feeling better over all than before the virus was killing off his new liver completely.

I observe (and I am not a doc) that folks who had some problems before treatment with digestion problems or anxiety, etc might see those symptoms increase on treatment. Most have said they clear their treatment side effects shortly after going of the meds...and if you have cleared there is more than jubillation!

So long as you are drinking lots of water and taking food with Riba, you should be okay..some headaches, some tummy aches, and maybe increased anxiety if that is an issue for you at stressful times anyway.

I always think about Hep C treatment like a cancer treatment....without the hair loss and puking.

Best to you...I think the cure it out there for you.

Hugs,

Mama Lama
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1074
   Posted 2/3/2016 3:01 PM (GMT -6)   
Hi free,
It takes a few days to feel any changes. Most people on harvoni, that have side effects, report headaches and G.I. upset. And then again many have no side effects. Many of the current posts are from people using ribavirin. In my opinion, harvoni is "da bomb"
High cure rate and low side effects.

HepCFree
Regular Member


Date Joined Jan 2016
Total Posts : 28
   Posted 2/3/2016 6:25 PM (GMT -6)   
Thank you both! Was a bit stressed last night and had insimnia, i think I am borrowing trouble, i need to relax into it and let it do its job!

Thank you for this wonderful support forum!

HepCFree
Regular Member


Date Joined Jan 2016
Total Posts : 28
   Posted 2/8/2016 7:45 AM (GMT -6)   
Day 11 and time is flying by! I do get headaches but nothing sleep and Tylenol can't fix. And I had an Odouls I think that gave me the headache but man it tasted so good!

Here's hoping for a positive outcome!

RoseAnn
Regular Member


Date Joined Dec 2015
Total Posts : 38
   Posted 2/9/2016 5:00 PM (GMT -6)   
I am taking solvadi and ribavirin - major side effect - tired -
the other stuff subsides - drinking a lot of water. Taking an advil once in awhile.
I am on week 8 or 9 - going to doc Wednesday to see if I need another 12 weeks of treatment (I hope not).

I wish you the best in your "recovery" process. Keep us updated on your progress. I so enjoyed reading what others went thru on this.

Respectfully

HepCFree
Regular Member


Date Joined Jan 2016
Total Posts : 28
   Posted 2/10/2016 2:02 PM (GMT -6)   
Hello all! I am considering changing from night to morning to take pill. I think it is causing me sleeplessness.

Thats about the only SE Roseann. I do get the occasional headache! All is good though

Do you think i can change the time ok?

woofer5
Regular Member


Date Joined Jul 2015
Total Posts : 87
   Posted 2/10/2016 5:57 PM (GMT -6)   
Hi HepCFree...
One of the first things "they" stress is not to miss a dose and it is almost immediately followed up (per Gilead) with:

"If you miss a dose of HARVONI, take the missed dose as soon as you remember the same day. Do
not take more than 1 tablet of HARVONI in a day. Take your next dose of HARVONI at your regular
time the next day."

Recommend that you call your specialty pharmacist. These folks are professional, knowledgable and in my experience, very helpful. While it's always prudent to talk to your doc (and I'd bounce it off him/her as well) no one knows more about these drugs than specialty pharmacists.

I was on a more complicated regimen for 24 weeks, but I had occasion to call my S.P. twice. He gave me great info and advice.

Best of luck.

HepCFree
Regular Member


Date Joined Jan 2016
Total Posts : 28
   Posted 2/10/2016 6:34 PM (GMT -6)   
Hi there! Just gave them a call and they said just skip tonight and take it in the morn. Will give that a shot. Thank you

themiz
Forum Moderator


Date Joined Feb 2013
Total Posts : 1891
   Posted 2/12/2016 6:14 PM (GMT -6)   
I hope you are sleeping better. Keep us in the loop;) Big Hugs
themiz-Forum Moderator-Hepatitis
Wife of themister, a fine man living with ESLD. Transplant list-2013

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.” Kahlil Gibran

HepCFree
Regular Member


Date Joined Jan 2016
Total Posts : 28
   Posted 2/25/2016 6:07 PM (GMT -6)   
Hi there everyone! Sleeping much better. Waiting to hear my first results, fingers crossed.

Got my second refill already! Time is flying by! I still cannot believe how lucky I am to get this treatment. I sure dont take it for granted!

I will post results as soon as I can!

Crossed fingers for a great result!

Xoxo

tblount
Regular Member


Date Joined Oct 2015
Total Posts : 82
   Posted 2/26/2016 9:55 PM (GMT -6)   
Congratulations! I also got 12 weeks of Sovaldi free. And now I'm NOT DETECTED. God bless Gilead !
M 64, detected after taking a 10 panel STD blood test
Started 12 week treatment with Solvaldi and Ribavirin 9-28-15
Genotype 2b -- Load Count 17,000,000
NOT DETECTED 12-22-15
Thank You Gilead

HepCFree
Regular Member


Date Joined Jan 2016
Total Posts : 28
   Posted 2/29/2016 9:02 PM (GMT -6)   
Got my first test back, 0ne month on harvoni, UNDETECTED!

I cannot believe it! Will be on it for 12 weeks to be safe!

I am out of my mind with joy! I never thought I would see the day!
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