Age at time of diagnosis

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hep93
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Date Joined Jul 2005
Total Posts : 12014
   Posted 11/10/2005 11:46 PM (GMT -7)   
I was diagnosed with hep C in '93 when I was 50.  I know that I contracted it when I was 26 or 27...in the late 60s.
 
ETA: This was in reply to a question in another thread.  I should have answered there instead of starting a new subject, but I was new to this site.
 
Connie

Post Edited (hep93) : 2/6/2006 10:07:42 AM (GMT-7)


lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 12/22/2005 2:18 PM (GMT -7)   
Hi hep 93. What stage are you in? I have drug induced (prescription) cirrhosis with hepatic encephalopathy, which is hard on my husband. It is for the most part under control with lactulose. Makes it hard for us to go anywhere for any length of time. I was in comas with liver failure 4 times now then some how stablized for 8years which is pretty amazing when 9 years ago they said I had 2 weeks to live. things are getting bad again now tho., but hey I'm still here tho right and that in itself is a lot to be thankful for. What's your story? hope to talk to you soon. Merry christmas And Happy New years. Stay safe,stay strong. I'll pray for you. Please pray for me. God bless. later.....
lerie


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 12/30/2005 4:16 PM (GMT -7)   
Hi, Lerie!  I apologize for not answering sooner.  I've been busy with the holidays and haven't peeped in here lately.
 
I have no idea what stage my hep C is.  At the time I was diagnosed ('93) and began treatment, they did not do staging.  In fact, they didn't even have a test for hep C prior to '92.  However, around May of this year, I was diagnosed with hepatocellular carcinoma, so the stage of my hep C is not important at this point.  I do NOT have cirrhosis.  All focus is on testing and treatment of the cancer, which is in a huge tumor.  It has metastasized to the inferior vena cava (a large blood vessel in the trunk), so I am not a candidate for surgery or for transplant.  (The hope is that the tumor in the IVC will shrink into the main tumor and thus make me eligible for surgery...or at least buy me 1-2 years.)  In fact, due to the fact that my liver function is pretty good (surprisingly!), I found that I would not be a liver transplant candidate even without the cancer.  Would transplant be possible for you?  You are probably aware that they are now doing adult living donor transplants.  What Rx(s) caused your cirrhosis?
 
I am starting a liver tumor treatment called TheraSphere at Mayo next month.  It has been used on a limited basis since around 2001.  However, Mayo has not previously used it.  Their reputation is on the line, so they make sure a new treatment is safe.  There are also certain criteria for this treatment, which I have so far met, although I still need to have an angiogram.  That will be done just before they are ready to start treatment, which is basically a radiation "seeding" of the tumor. 
 
My only symptom is extreme fatigue and sleepiness.  I sleep for a good 14 hours a day...though broken up.  I have some pain on the left side, although scans reveal nothing unusual there.  I think it's probably from "crowding" caused by the large tumor in the rt. lobe.  I've only had a couple of episodes of mild "twinges" in the rt. lobe of the liver.
 
What has made this so difficult for me is that my artificial left hip decided to start dislocating.  I've been in a hip/leg brace since Sept. 20th, and on crutches (still in brace) since the end of Oct.  I consulted the hip surgeon at Mayo and he will not operate at this time--too many risks, with the cancer.  So I cannot do much at all, and it's very difficult to get out and do anything.  I have a lot of swelling of the right foot and ankle.  I was told this happens with a leg brace, but I believe it is also from the liver disease.
 
I'm sorry for rambling on so much.  Let us know how you are doing!
 
Connie in FL
 
 

Post Edited (hep93) : 1/7/2006 10:52:23 PM (GMT-7)


lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 12/30/2005 7:19 PM (GMT -7)   
Hi Connie.Really nice to meet you. No you don't have anything to be sorry for. We all need someone to talk to so I don't consider anything to be rambling. I posted a note for you in the other site.I'm so sorry to hear your liver became cancerous.I get pain on my left side too & hepatoligest says its radiating pain from the tip of the liver. I don't know why but since September my liver & stomach have been so sore, sometimes right down painfull. They told me for the last 9 yrs. that I am sever,advanced.3rd stage.I take 200mgs. lassix, 100mgs alactome,&120ml.lactulose a day. I get blood work every 2 weeks & ultra sound every 6 months. They said they have to watch me closely for liver failure or liver cancer whichever comes first. They told me 9 years ago 2 weeks but by the Grace of God am now in my 10th year. The hepatic encephalopathy I think is the worst of it all.No I am not a candidate for a transplant because I've had heart failure & I'm an asthmatic. I'm seeing another hepatolagist my DR. requested for second opinion on transplant.No they can't do your hip because they don't want to give you annescetic. I have gall stones they won't do anything because of liver hemmorage & the anesethetic will cause immediate liver failure again.So at least we can support each other.I can't have a living doner organ either because they say I don't have the margin of mine needed for this type of transplant.Oh well thars life such as it is. I'm like you sleep, sleep sleep. Sometimes I have to force myself to get up. I think it might be cause our sleep is so broken & we don't rest like normal folks do. Now who's rambling on. (ha-ha)Let me know if you want to talk. I hope you get some type of relief for your hip.soon. I'm here for you. Happy New Years. Take care. I'll pray for you.later.....
lerie


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 12/31/2005 12:48 PM (GMT -7)   
"No they can't do your hip because they don't want to give you annescetic."
 
Lerie, if you mean anesthesia...that is not the reason.  I was under general anesthesia 3 times in the past three years for the hip replacements and revision...then another 2 times this past Sept. and Oct. when they had to put me under to get the hip back in place.  When it dislocates, it is extremely painful...they were giving me morphine, Demerol, and even Dilaudid prior to, during, and just after, the closed reduction (meaning they put it back in place by manipulation and not by cutting.)  The main reason for not wanting to do surgery now is the risk of infection.  There is also the possibility of rupture or invasion of the tumor in the IVC.  The doc didn't tell me this, but I know those are two of the risk factors, just from my 15 years working as a medical transcriptionist.  I'm sure there are others, but I didn't bother asking...since this doc was so adamant about not doing surgery until the cancer is taken care of...unless there is "an emergency."  The only emergency I can think of is if it goes out of joint again and can't be put back in without surgery.  So I continue to wear the brace to ensure that it doesn't dislocate.
 
Do you have any lower extremity swelling?  My right foot, ankle, and calf have been swelling so much it's scary.
 
I'm glad I'm not the only one who sleeps a lot.  It's not from encephalopathy, but just weakness and fatigue.  When I get radiation, I imagine that will really lay me flat.
 
I take no medications for my liver, though I do take vitamins--multivitamin (no iron), vitamins C and E.
 
I live alone (with 2 old cats), but my sister and nephew are driving down from SC (I'm in FL) tomorrow, and my daughter is coming from another county.  So I have to try to clean up a bit around here. 
 
Take care of yourself!
Connie

lerie
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Date Joined Nov 2005
Total Posts : 966
   Posted 1/4/2006 2:16 AM (GMT -7)   
Hi Connie, sorry it took me so long to get back to you. I've actually been having a good couple of days which I have been taking advantage of & doing some much needed chores around the house which I have not been able to do since Sept.Yes I did mean annescetic.How has your hip been?Yes I have severe edema in my lower extemities. I have to take 200mg.lassix(furmosimide) , 100mg.,Alactome,120ml,lactulose,40mg,nadolol(so my verices don't bleed)keeps my blood pressure down & 80mg losec. I have too be really cautious of my pottassium level because everytime they get low I have heart failure (hypokelemac)I get a lot of weakness & I seem to be tired most of the time. Sometimes my legs get so weak they collapse on me. But I try to stay as active as possible. No the radiation won't be easy, But I want you to know I will be here to support you & I want you to know I care. How old are you cats & what are there names?I love animals.I'm glad your sister & nephew are visiting you, your daughter too. What country is she from? I'm from toronto Ontario. If you you want to Connie you can e mail me at colin.b@rogers.com If you want to .I know what you mean about trying to clean up,it,s not easy for me either. I hope your family visit was a good one Connie,but please be carefull about tirring out too much. Well it's after 3 in the morning so I am going to try again to get some sleep. later sweetie....I'll be thinking of you & praying for you. Hugs to you.
lerie


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/6/2006 12:48 AM (GMT -7)   
Hi, Lerie. My hip has been doing okay, except for some pain when I neglect to use the crutches. I do use them most of the time, and also cannot be on my feet for long or I get pain. At least, with keeping the brace on all the time, the hip has not dislocated since the end of Oct. I am going to have to inquire about Lasix or another diuretic, though, as the swelling in the rt. foot and leg is quite bad. I'm trying to watch my sodium intake, but it's in nearly everything!

My relatives are all from the USA. My sister and nephew are living in SC now. My daughter is in Northeast FL, as am I, but she is in another county. We are all from NYC originally. My daughter and sister were born in the same hospital there. I also have two grandchildren. The youngest (nearly 14) is with her mom (my daughter) and the oldest will be 24 next month and is out on her own. I had a grandson, who would have turned 27 in Dec., but he died at 25 of cancer. I'm twice divorced, and will turn 63 yrs. old in March. I've had my 2 cats since they were babies, and they are 15 and 16 years old. They give me a lot of comfort and love me regardless of how I look. They do not even wake me up from my long sleeps. ;)

Speaking of sleep, I must try to get some, as it is now nearly 3 a.m. here.

Thank you for your thoughts and prayers, Lerie. I will do the same for you and for all of us on this board.

Connie in FL

topcat139
New Member


Date Joined Jan 2006
Total Posts : 6
   Posted 1/7/2006 11:47 AM (GMT -7)   
Hey hep93!
I see that you contracted this thig many years ago.
As far as I can tell I picked up c about 95, but wasn't diagnosed until 2002. My enzymes were always elevated but I had contracted B in themiddle East when I was in the military. It recurred once in the late 80's and then The tests remained elevated for several years.
I had been on many different ansaid type meds for pain until I began with pain managenet about 2 1/2 years ago. But I'm not really certain if the the earlier meds didn't add to the problem.
(The pain meds I take now are easy to handle and don't Strain the liver)
I have ablsolutely no idea how far adsvanced this is, I do know that I'm in constant discomfort from liver pressure, making difficult to sit or lie down without feeling the pain of it.
Unfortunately I fall between the cracks in terms of geting any type of public assistance for medical etc. I have just a bit too much, and not enough to get paid insurance. So evrything I do is self pay. In other words I haven't seen a DR. regarding this in over a year. The main issue is the mental side effects from the combo treatments. I have adhd as well, (bipolar disorder), so I am quite fearful of even trying the treatments.
Kind of stuck now. I really don't know how to proceed.

Good luck to all.

ben
nyc confused

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/7/2006 10:50 PM (GMT -7)   
Hi, Ben!  I just posted a reply to you in the thread, How Much Longer.  Always nice to meet a fellow New Yorker.  Are you right in the city?  I mostly lived in Manhattan, but spent about 18 mos. in Queens and a year or two in SI.  Yep, my hep C is a souvenir of the 60s.  eyes   I also have the antibody for B, which means I had it at one time (probably contracted around the same time as the C), but my body's immune system threw it off.  I can't get it again, or give it to anyone.  Thank goodness.
 
Have you tried to get SS Disability?  How about VA benefits?  I would think that you would be able to get care from the VA.  How about Bellview (is it still there and has it changed its name?)  It took over 2 years of trying, but I finally did get SSD, including 2 yrs. of back payments.  I got Medicare retroactively, and also was able to get Medicaid.  Nevertheless, I am getting some bills from treatment of my dislocating artificial hip, as well as testing and consults regarding the tumor.  If I were to get treatment at the teaching hospital here, I would have no bills to pay.  However, I went to them for a long time--had both hips repaired there, and the cancer first found there--and don't have much confidence in their ability to handle such complex problems as mine.  Therefore, I'm being seen at Mayo Clinic here--the care is fabulous, but expensive.  However--there's no such thing as debtor's prison, and the collection agencies cannot even hound you if you are making an attempt to pay--even as little as a dollar or two a month.  Did you know that?
 
Best of luck to you and keep posting!
 
Connie
 
 

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 1/10/2006 5:27 PM (GMT -7)   
Hi connie, I haven't gone anywhere. I've not been feeling well & in a lot of pain. Will try to make an entry to our last conversation tommorrow or as soon as I can. God Bless & take care. How are you doing? later....
lerie


lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 1/11/2006 9:53 PM (GMT -7)   
Hi Connie, I hope your doing ok. I,m getting back on my feet again , I don,t know for how long. Somedays it feels like its getting harder & harder & other times except for being tired & liver sore I feel like I'm not really sick. Its like a roller coaster ride. But I'm still here by the grace of God & thats what really counts. I let my liver rule too & sleep when I need to & other days do whatever I can. The scooter sure helps because now my husband & I can at least get out for a brief perriod of time now. Good for the morral & tensions illness can cause. I'm 52 & I live in toronto with my husband & 4 year old baby dog here in toronto.My husband & I have been married for $ years in April. This time I got somebody who loves me for me & he knew when he met me I might be hear for a very short time or a long time but he said he wanted to be there for the whole haul, long or short. He is very supportive & I can see how it takes its toll on him sometimes & the fear & confusion in his eyes when I take a turn for the worst.I see his confusion when I get irratable & irrational fro the hepatic encephalopathy. I'm really lucky to have found him.I have 2 kids .My son is 34 & my daughter is 29. I have @ grandchildren. My grandson is 7 & granddaugter 5 but I am not allowed to see them. The last time I saw my grandson he was 3 months old & I have never seen my grand daughter. Niether one of my kids want anything to do with me because of the way I was on prescription narcotics & things that apparantly happened while I was having hepatic encephalopathy attacks which I guess made my behavior pretty bizzar at times. I don't know for sure what I did durring these episodes but all 4 tims I was in a comma they wouldn't come when the Dr. called them when they thoght I wasn't going to make it. The Drs. tried to explain to them with liver failure & hepatic encephalopathy I could not be held responsible for my words & actions but my kids do not or I hurt them so badly, do not wantto hear what The Drs. tried to tell them. Maybe someday they'll forgive me. I don't know. I was married 3 times before twice divorced from men who were violant & widdowed once. Like I said this one, I hit the jackpot.Well its late so I'm going back to sleep, Take care of yourself. talk to you soon. God Bless & I want you to know you are very valuable on this site to & I am very lucky to have met you. You are making a difference in my life,because now I don't feel so isolated. Thankyou. later....
valerie
lerie


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/13/2006 2:29 AM (GMT -7)   
Valerie, thank you for your kind words.  I had a great day yesterday, but today didn't feel well at all.  Having pain on the left side and that "fullness" feeling in upper abdomen...plus feeling really tired.
 
Your life circumstances are somewhat like mine.   I have been married and divorced twice, both to abusive men--the 2nd only verbally, but that's just as bad.  I have one grown daughter, divorced.  She had 2 children by the ex and he would not let them see her, after the first 6 months or so, when he remarried.  So they didn't see me, either.  The boy died of cancer when he was 24, without me seeing him.  The girl did start seeing me, then stopped when she had a scene with my daughter (her mom), and just recently has been e-mailing me and promising to come see me.  A 3rd grandchild is by a different man, so I do see and talk with her.   I've had my current b.f. for over 11 years, but we aren't as close as we once were.  He has his own place on the other side of town.  I sense him withdrawing emotionally, and I feel that is his way of coping with my disease.  We don't spend much time together now, either, since we can't do much of anything due to my lack of mobility.  If I need him to go to the doctor with me, or do something for me, he never turns me down...but he has definitely withdrawn.  His former g.f. died of cancer.  She was living with him and he was there right up to the end.  I can't blame him for not wanting to go through that again.  I have told him I prefer to go to a nursing home or hospice, if the time comes where I need care.
 
I hope you will feel better soon!
 
Connie

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 1/13/2006 11:03 PM (GMT -7)   
Hi Connie, I sincerely hope you are feeling a little better. These liver diseases sure are like being on a rollercoaster ride aren't they. I've been experiencing worsening of my symptoms since Sept.,& am now wanting to eat less & less. The lactulose still holds most of the confusion at bay but no longer helps with the tiredness. The pain has been worsening & when I lie on the right side It used to give me some relief but now it feels like a hard ball in there. So I can't lay on that side for relief much. Sleep is like being on a rollercoaster every since I had liver failure the first comma. I sleep excessively for a few weeks, then I can't barely sleep & feel like a walking zombie Then I sleep almost normal for about a week then the whole cycle starts again but since Sept something has changed I can't stay awake long even with the lactulose.Connie, I think the verbal abuse is worse than the beatings. It seems once your convinced of the things they say it never leaves you where as bruises heal.I'm sorry about your grandsons passing & at such a young age. It is even more tragic & heartbreaking that you never got to see him. I know what its like not to be with my grandchildren, but what you went thru Is so painfull. If you ever want to talk about him or how your feeling please know I am here for you. Do you have a good relationship with your daughter? Yes I know what you mean about not being able to do much of anything with your b. f due to mobility I have the same problem with my husband.I worry about that a lot. His first girlfriend died 12 years ago of breast cancer, she was to proud to have the breast removed, but they didn't stay together,but remained friends. She moved out on him.Have you's talked about the way he is withdrawn Connie? I pray that you will not end up in a hospice or nursing home Connie. You deserve to be at home hopefully with people who love you. I"ll be praying that God does provide for you & if it be his will, to heal you & give you comfort. When do you start treatment Connie? I'm glad your cats bring you comfort. Animals are so important in our lives. I've gotta go for now Connie but my thougts & prayers are with you. later....
Valerie
lerie


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/14/2006 12:12 AM (GMT -7)   
Valerie, my daughter and I have what is best termed as a "strained" relationship. We are so totally different in the way we think, that we clash a lot. She also is holding grudges about things that happened years ago.  However, we are trying harder to get along since I've been ill. She is not up to caring for me when I get really sick, though. In fact, when I was diagnosed she told me I was going to need to get someone to help me and be with me because she couldn't do it. And I did hire someone to do most of the cleaning, all the laundry and grocery shopping, etc. It really is MY desire to go into a NH or hospice. I just don't want to have anyone caring for me that would be resentful about it or not want to be here, and that would be the case. It's okay...I will be fine. I haven't mentioned to my b.f. about his withdrawal.  I don't want to pressure him or make him feel guilty.  He is just trying to protect himself from a lot of pain.  I do worry about my cats and what will become of them, as they are getting old--15 1/2 and 16.

Well, I called Mayo today because the TheraSpheres treatment was supposed to start in early Jan., and here the month is half over and I haven't heard from them. I was told that they have hit a "snag"...a "technicality" that they have to work out, and that it could delay treatment for 4 more weeks. I asked to have the radiologist call me regarding chemoembolization and if I should go ahead and try that to prevent the tumor from growing larger. Then I remembered that the doctor who is head of the treatment protocol had told me that she would send me to a hospital that could give me the TheraSpheres treatment if there should be a delay at Mayo. So I will try to contact her on Tues. I believe they are closed on Monday for MLK holiday. I would have to go to Orlando or Tampa, but that might be a better option that the chemoembolization. I'm feeling a little scared tonight--that I am going to suddenly go into liver failure and die, since it has been many months since I was first found to have the tumor (May, I believe.) I've been having a lot of pain under the left ribs the past 2 days. Yesterday, I was having some on the right side, as well.

I'm going to say some extra prayers tonight, and I would appreciate it if y'all could do the same for me.

Thank you, Lerie, and I hope the roller coaster ride will even out for you soon.

Connie

Post Edited (hep93) : 1/14/2006 12:24:07 AM (GMT-7)


lerie
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Date Joined Nov 2005
Total Posts : 966
   Posted 1/14/2006 12:31 AM (GMT -7)   
Connie I will be praying extra for you tonight. Please let me know when the feeling of impending death leaves you. I know that feeling well.
Valerie
lerie


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/15/2006 3:26 PM (GMT -7)   

Valerie, I literally slept all day today, but I do feel better psychologically now.  I had an unexpected visit yesterday from an online friend up north who is in FL for vacation.  I think that lifted my spirits some.  And I'm sure your prayers helped, too.  ;)

Hope you are feeling better today.  :-)


lerie
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Date Joined Nov 2005
Total Posts : 966
   Posted 1/15/2006 4:59 PM (GMT -7)   
Hi connie, I was worried about you & I'm really glad you are feeling a little better.When we feel better psychologically we are better able to cope for a time. I'm so happy you made contact with you friend.Friendship is so important & friends can give you new hope.Any way I'm so happy for you. later....
lerie


lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 1/20/2006 7:31 PM (GMT -7)   
Hi connie, Just checking to see how your doing. Have you found out about treatment anywhere yet?I'm worried about you & my thoughts & prayers are with you. Hang in there. I'm having a lot of trouble eating since Sept. & that seems to be getting worse.Otherwise there seems to be slight improvement, not as confused or suddenly falling asleep.Take care Connie & God Bless. later....
lerie


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/21/2006 11:39 PM (GMT -7)   
Hi, Lerie!  Well, I'm still sleeping an awful lot.  I did get out yesterday to get my hair cut, but slept today until 3:30--about 14 hours.
 
I found that the TheraSphere treatment is not being done in FL at all, except for the upcoming treatment at Mayo.  The closest state using this is AL...in Birmingham.  I do not want to go out of state, so I've made the decision to wait another 3-4 weeks for Mayo here to get their "ducks in a row" and get started.  I was told there are 6 pages of release papers for me to sign!  Gives an idea of all the red tape involved.  It's an "orphan drug," meaning that not many people are able to have this treatment, so it's not used very much.  I am one of 5 patients on Mayo's list for this, and I'm #1 or #2.  I did find out that I will be hospitalized for one night--it's a "same day" procedure, but this radiologist wants to be able to observe and take no chances sending patients home directly after the treatment.  That actually makes me feel better, too.
 
I've had a bit of a loss in appetite, too.  I got some Slim Fast shakes.  They actually have the same nutrients as Boost and Ensure, in almost the same amounts...just less calories...and they taste a lot better!  ;)  So I can drink one of these shakes when I don't feel up to a meal.  I've also been eating soup quite a bit, though the sodium isn't good for me.  I'm experiencing a lot of swelling in my rt. lower exremity, up to the knee.
 
Fortunately, I haven't caught a cold or other virus thus far.  We are having beautiful weather for January...in the high 70s!  Since I don't go out much, I'm not exposed to sick people much, though my household helper had a cold this past week.
 
My prayers are with you, Lerie.  Your presence on this forum is an inspiration to all.
 
Connie

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 1/22/2006 10:45 PM (GMT -7)   
Hi Connie, I'm glad you get out even if it's only for a short time. I find when I'm able to get out it put things back in perspective a little & the air makes you feel refreshed.I guess out of state would put quite a strain on you & really tire you. I hope & pray the Mayo clinic gets ther act together soon. You've certainly been a friend to me & are very supportive to me & others Here.I really do worry about you Connie.I'm really glad they are not going to take any chances.I'm glad you are taking the supplements, that will give you some nutrition & you need that right now. I'm not allowed to take supplements other than protien pwd. Boost , ensure etc. they tried but I got into trouble with toxicity from the vit.A,B3, iron etc. so right now is really touchy. My hubby did go buy me juicer tho, I just gotta be carefull what choices of fruits & vegatables I choose. Mashed potatoes were a good one for me with the protien pwd. mixed in but I can't seem to even handle that anymore & cooking odors make me ill.Something to do with the liver sending false neuro-transmitters to the brain. I seem to only eat occasionally now.But weird thing is I'm gaining weight not losing it!Maybe you can get your doc. to give you fluid pills for your edema.But please try to be carefull with the sodium or you could end up in serious trouble.I'm awful jealous of your tempatures there. Here it is a balmy -7 c. But it could be worse. I'm glad you've gotten no viruses, I haven't either but then I don't go out where there are a lot of people. My docs told my homecare workers if their sick don't come.What do you do for hobbies & distraction?Thankyou for your kind words Connie. You are a real blessing on this forum to Connie. My thoughts & prayers are with you.later
Valerie
lerie


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/23/2006 7:59 AM (GMT -7)   
Hi, Val! Well, I guess I spoke too soon. I did manage to contract the cold my household helper had/has. I have a sore throat and head cold, but am treating with Alka-Seltzer Plus and vitamin C, plus drinking herbal tea...Celestial Seasonings Lemon Zinger. I had an appt. today, but rescheduled it so I can stay home and get some rest. (It wasn't a medical appt.) Looks like it's going to rain here, too.

Are you in Canada?

I am sorry to hear you are doing poorly. Do you think your weight gain is edema? I am somewhat concerned about my lower extremity edema. It is completely gone when I get up after a night's sleep, but almost immediately starts to return when I'm up and about or just sitting. I am trying to watch the salt.

My hobbies these days are mostly the Internet, music, and reading. There are some shows I like on TV, but don't really watch much otherwise. I talk to friends on the phone daily, and my daughter generally checks in with me by phone each day. . I have a lot of photos I am trying to get into albums, little by little. I just don't have energy to do much. I have two cats to care for, but they are wonderful company. After 15-16 years together, we have a close bond.

I hope you start feeling better soon.

Connie

lerie
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Date Joined Nov 2005
Total Posts : 966
   Posted 1/24/2006 12:26 AM (GMT -7)   
Hi Connie,I'm sorry to hear you got your homemakers cold. Please make sure you take good care of yourself with it & don't let it get out of control. If it gets bad please see you Dr. as infections & viruses are not compatable with liver disease. Did you have a chance to talk to your Dr. or pharmasist about which herbal teas are safe for your liver? I know for me my hepatolagist was very fim about certain herbs & certain herbal teas.Like you said everyones different but please check what they say in your case. Vitamin C is excellant! I'm sorry I hope a didn't jinx your weather with my being jealous of you balmy temps Sure do wish I was in that neckof the woods tho. -2c here & snowing. Yep I live in Canada.But this winter has been a lot milder & not much snow compared to what we usually get.I think my weight gain is from edema & acetis. I seem to feel better in the evening compared to how I feel during the day Mornings when I get up are the worst till late afternoon.My edema settles when I lay down to because the fluid shifts when you lay down. That's why when I'm up I sit with my feet elavated on the coffee table & a pillow under them. Helps reduce the leg & feet swelling & takes the aching away caused by the fluid. Are you watching your total fluid intake to? I find this has a real impact on my fluid buildup.What kind of music do you like & what kind of books do you read? I'm glad your daughter checks in with you,that must be comforting for you. I know what you mean about the energy, mine's down in the basement somewhere too. Funny thing is I use to have a very active life once upon a time .I know what you mean about your cats. Our animals are our babies & they truly are comforting. Sometimes I think I trust animals more than people. We can learn so much from them & they love us unconditionly without asking very much from us. I don't know what I'd do sometimes without my dog & all the little creatures the Good Lord sends for me to care for till they can care for themselves.You bond with your cats is a very special understanding between you's & like parent & children as well as companions & best friends. Comforters we can trust.Well I have to go for awhile, concentration getting poor & I am falling aslleep. I've only been up 2 hrs. anyway, take care of your self. Hugs & love to you Connie. I hope you feel better soon. You Are in my thoughts & prayers. later....
lerie


Marg57
Regular Member


Date Joined Dec 2005
Total Posts : 446
   Posted 1/24/2006 2:30 AM (GMT -7)   

Hi lerie,

Do you know whether lemon and ginger herbal teas are OK?  I see my specialist in Feb so will ask him them.  I rarely have "real" tea and coffee about once a month.  A caffeine free diet is great once you get used to it.  I'm in Australia. (Sydney) Temperatures this summer have reached 45 degrees celsius.  You may have been watching the Australian Tennis open from Melbourne where it has also been very hot. At the moment Lindsay Davenport is playing Justine Henin-Hardenne. 

Thinking of you and keeping you in my prayers.

marg


lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 1/24/2006 5:10 PM (GMT -7)   
Hi Marg, I suggest you talk with your Dr. but if you have cirhosis my hepatologist said no ginger. However I'm supposed to use lemon to help flush the fats in food that my liver can no longer rid itself due to poor function.So I use lemon for everything posible & in water to help flush. Lemon is also adds great flavor to foods.My hepatologist doesn't want me to go caffiene free. She says coffee helps reduce risk of liver cancer & can slow down progression of liver cancer.I wish I was getting Floridas weather but I'm sure glad we don't have your temps. How do you deal with that kind of heat wave especially when you are not well? It must be difficult fo people ther. Hard on the animals too. How are the farmers managing? My thoughts & prayers are with you.I'll pray for the conditions in Australia too thats you get relief soon. God Bless. later....
lerie


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/25/2006 11:54 AM (GMT -7)   
Hi, Lerie! I will be seeing my oncologist's P.A. tomorrow, and will try to remember to ask about green tea. For the moment, with this head cold, I have switched to Lemon Zinger. I have also cut down on my fluids, as the edema has gotten worse.

Weather-wise, we are having a little cold spell: Highs in the mid-50s and lows in the low 30s, but it's sunny.

My tastes in music are eclectic. My favorites now are Josh Groban and Clay Aiken--anything they sing. I like blues and jazz, too. Eva Cassidy was a wonderful singer who died young. I like nonfiction. Last book I read (3 times!) was Clay Aiken's spiritual memoir, Learning To Sing.

I'm heading back to bed for a while. Got up early this morning for a change.

Connie
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