Primary Biliary Cirrhosis

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Hisgal
Regular Member


Date Joined Jun 2009
Total Posts : 66
   Posted 5/9/2016 10:39 PM (GMT -6)   
I am desperately seeking anyone who has been diagnosed with PBC. My husband has been recently diagnosed and is in stage 3.

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1074
   Posted 5/10/2016 6:36 PM (GMT -6)   
hi hisgal,
welcome to our forum..hopefully a moderaror can help you find fellow billiary patients.

you can use our search to find past discussions
best to you

Hisgal
Regular Member


Date Joined Jun 2009
Total Posts : 66
   Posted 5/11/2016 6:29 PM (GMT -6)   
Thank you!!

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4786
   Posted 5/16/2016 6:59 AM (GMT -6)   
Hi hisgal

Welcome to the healing well forum. I have been traveling and I'm late and welcoming you aboard. My experience is primarily as caregiver to a man who had cirrhosis, kidney failure, and liver cancer. Oh and hepatitis C.

He was transplanted in 2011. And is lucky to be alive...but here he is!

However I have learned quite a bit about primary biliary cirrhosis from a friend. She was diagnosed many many years ago. She is seen by an excellent hepatologist at Mount Sinai Hospital in New York City. She has retired to Florida but takes a trip up twice a year to see her doctor she takes one pill every day. And that's it

She leads a pretty normal life. The same recommendation as they have for most everybody heart healthy diet no alcohol and low sodium. I just seems normal to me. I have to go catch a plane.

Hugs, mamalama
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

Post Edited (MamaLama) : 5/21/2016 11:05:13 AM (GMT-6)


Hisgal
Regular Member


Date Joined Jun 2009
Total Posts : 66
   Posted 5/17/2016 8:11 PM (GMT -6)   
Thank you for the information! We are going to the Mayo Clinic the end of June and should know more.

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4786
   Posted 5/21/2016 11:06 AM (GMT -6)   
Which Hep Clinic are you going to...we have members who have been to more than one of the Mayo centers. They have a great reputation. Best luck.,,ML
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

Hisgal
Regular Member


Date Joined Jun 2009
Total Posts : 66
   Posted 5/22/2016 7:59 PM (GMT -6)   
We are going to Jscksonville, Fl

ksport
New Member


Date Joined Jul 2012
Total Posts : 7
   Posted 5/23/2016 4:00 PM (GMT -6)   
You can find lots of information about pbc at pbcers.org. They also have a facebook page and a yahoo discussion group.

Hisgal
Regular Member


Date Joined Jun 2009
Total Posts : 66
   Posted 5/24/2016 6:27 PM (GMT -6)   
Thank you! I already found it and love it!
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