How low on the right side does liver pain go?

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lerie
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Date Joined Nov 2005
Total Posts : 966
   Posted 1/1/2006 4:31 AM (GMT -7)   
Hi Jon,be carefull with the tipping I wouldn't want to see you suffer for it. Not good for the cysts either. Sorry don't mean to lecture! Did ypu & yor wife go out last night? I hope it was a good New Years eve for you guys.Jon I must appoligize for sometimes putting a double message in here for you but sometimes the liver gets me confused & I forget I already put the message in or I forget for a moment something I wanted to say the first time & then remember a few minutes later. Please be patient with me in this matter Ok?Thats why most of the time I don't go anywhere because the confused state & forgetfullness associated with liver disease is embarrasing.This is something my so called friends couldn't handle befor they stopped calling anymore'Anyway tell me about your New years eve.Later....
lerie


Jon R
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Date Joined Mar 2005
Total Posts : 325
   Posted 1/1/2006 4:21 PM (GMT -7)   

New Years was great.  We had a lot of friends over here and partied all night and morning.  My pain is back (I didn't drink thaty much???) I assume it is Crohn's.  I have the Croohn's in the bend of the colon on the right side so I get pain on the bottom of the rib cage/right side. 

 

Is it possible to have problems but normal AST/ALT (they are extremely normal) along with other blood tests????

 

My GI seems to not worry, but he doesn't have the pain in that area, and occasionally I want to believe that the pain may be too high for Crohn's?

 
Pics of me, wife, stepson, and the King.


lerie
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Date Joined Nov 2005
Total Posts : 966
   Posted 1/4/2006 2:47 AM (GMT -7)   
Hi Jon,How did you make out after New years Eve? Hope you didn't upset the Crohns.I don't know much about Crohns. Can you tell me what it's like for you?
lerie


lerie
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Date Joined Nov 2005
Total Posts : 966
   Posted 1/4/2006 3:43 AM (GMT -7)   
Hi Jon Hope New Years eve didn't bother your Crohns. What is Crohns like?
lerie


Jon R
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Date Joined Mar 2005
Total Posts : 325
   Posted 1/4/2006 8:12 AM (GMT -7)   

I basically have random abdominal pains on both sides (not sharp..more of a fullness feeling) at least 4 days a week.  Crohn's is also typical of the right side.  I get the fullness on my right from my belt line over to the belly button up to the ribs.

New Years rocked!!!!!!!!!

 
Pics of me, wife, stepson, and the King.


lerie
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Date Joined Nov 2005
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   Posted 1/4/2006 5:07 PM (GMT -7)   
Not much different than the liver except for the periods of a really sore feeling kinda like a fres cut , occassionally I get a pain under the ribs that just about brings me to my knees & makes it hard to breathe or cough.Only a couple times a week Thank God for that! And wouldn't you know it , it only happens at night when I'm sleeping & wakes me of course, or when I'm just about asleep.With the doubling over pain you can't lay down , sit down No relief at all. But it doesn't last too long, & when it's over it's like it never happened. We had a fantastic New Years eve too. But of course with no drinks. Glad you had a good New Years! Hope you didn't do your health any harm tho. later....
lerie


Jon R
Regular Member


Date Joined Mar 2005
Total Posts : 325
   Posted 1/4/2006 11:09 PM (GMT -7)   

Your pain just comes and goes?  Mine is basically constant but moves..

Glad you had a nice New Year!!!!

 

See ya

 
Pics of me, wife, stepson, and the King.


lerie
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Date Joined Nov 2005
Total Posts : 966
   Posted 1/5/2006 12:20 AM (GMT -7)   
Yep it comes & can't wait till it goes! Sorry I'm in pain now, can you tell? Anyway yes it does come & go thank God it doesn't stay. I wouldn't be able to handle that. the more severe pain feels like somebody stabbed you & then twisting the knife the soreness is more consistant but I can handle that tho feel sore more & more last 4 months.But yaeah it does come & go. Does your pain move because of the fact that your bowels are always on the move? Crohns is a bowel disease isn't it?later.... & I hope your feeling better.
lerie


Jon R
Regular Member


Date Joined Mar 2005
Total Posts : 325
   Posted 1/5/2006 1:58 AM (GMT -7)   
I assume that is why it moves.  I have it in a few spots noted on my last colonoscopy.  I have it in the bend of my colon which is on the right side.  I think that bend part is right under or behind the liver, which is why (I guess) i get the weird pains higher at times...I shouldn't call it a pain, it's more like someone injected air there and I get a fullness feeling.
http://elvisfiles.tripod.com/tcb/
 
Pics of me, wife, stepson, and the King.


lerie
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Date Joined Nov 2005
Total Posts : 966
   Posted 1/5/2006 9:40 PM (GMT -7)   
Hi Jon,With liver disease you get that fullness feeling too. Kinda like you guts are going to fall out. How do you deal with the discomfort & pain etc. ?
lerie


Jon R
Regular Member


Date Joined Mar 2005
Total Posts : 325
   Posted 1/5/2006 11:50 PM (GMT -7)   

I don't know how..LOL..I just do.  I got one now that is near my belly button, but when I sit it goes to that liver area.  I can tell that bend or whatever it is called is all swollen or something.  In the morning my pain is zero, it grows with the day.  Also when I stand, it virtually disappears.  I get pain/stiffnes/full of air feeling in the lower right back (kidney area) to.  have been told that's from my colon too.

How high up does the liver go??  By the breast bone??

 
Pics of me, wife, stepson, and the King.


lerie
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Date Joined Nov 2005
Total Posts : 966
   Posted 1/6/2006 12:56 AM (GMT -7)   
Hi Jon, Well I'll try to explain the way it is for me as best I can,The soreness, goes under the rib in upper right side, this seems to be where the whole of things start. then it goes across to around the stomach area. it goes just up to the breast bone & maybe about an inch higher & radiates across above the stomach to the left,stopping just about !/2 way across breast bone to left. The more severe pain is right under right rib with pain in shoulders & radiates into back. The fullness when I get it Is like being pregnant from the belly button up. I get a lot of pressure almost constantly under right rib.The pain sometimes radiates down on right side 3 inches above belt line.They say my liver is double its normal size due to scar tissue caused by dead & dammaged cells.I hope this answers you question.Does Crohns spread to other parts of the bowel?Take care & God Bless. Later....
lerie


Jon R
Regular Member


Date Joined Mar 2005
Total Posts : 325
   Posted 1/6/2006 8:17 AM (GMT -7)   
Lerie, sorry for now know this but what do you have?  Is it treatable/liveable?
 
Pics of me, wife, stepson, and the King.


lerie
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Date Joined Nov 2005
Total Posts : 966
   Posted 1/6/2006 2:29 PM (GMT -7)   
I have severe advanced cirhosis with complications thereof,due to prescription drugs.(my story is on page 1 here)My kidneys keep try ing to fail. I get monitored regularily for liver failure (flf) & every 6 months for liver cancer.They told me 9 years ago I had 2 weeks to live 4 commas later Here I am in my 10th year. I stay as active as possible(that's not much)Sometimes I feel like giving up but I'm far too stuborn for that. I try to take care of myself no matter how bad oe confused I feel'I find something good in each day & come online to bug everybody here.No It is not treatable & they say I don't qualify for a transplant. They forget they are only Drs., not God & I will go when He says so, Not when the Dr. saying. I get so fed-up With ther continual Time frames because they can only guess. They say I'm a true survivor. I say it's just not my time yet & I'll dig my heels in every step of the way. Must work cause I'm still here. Gets pretty rough sometimes But ... Jon don't be sorry to ask me anything, you don't learn or share experiences if you don't ask.Ok? I just got my scooter today so now my husband & I can go out for walks or whatever for short periods of time. That helps. I cannot however go anywhere alone due to the hepatic encephalopathy.I'll tell you what that is next time if you want to know. Will you ever get better with the Crohns? What kind of treatment do you take? God Bless. later....
lerie


Jon R
Regular Member


Date Joined Mar 2005
Total Posts : 325
   Posted 1/6/2006 3:15 PM (GMT -7)   
9 pills a day is what I take for Crohn's.  It is autoimmune, with no cure.  I will add you to my prayer list Lerie.
 
 
Pics of me, wife, stepson, and the King.


lerie
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Date Joined Nov 2005
Total Posts : 966
   Posted 1/11/2006 1:20 AM (GMT -7)   
Thanks Jon, your on my prayer list too. Does it bother you that I'm in here all the time? Does it bother you I ask so many questions about your condition? later....
lerie


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/11/2006 9:04 AM (GMT -7)   
Lerie, I just wanted to congratulate you on getting a scooter!  Hope you will get out a little bit more now.  As you know, I don't have cirrhosis or Crohn's, but I do read most of the threads here anyway.  Knowledge is power, and all that!  ;)
 
Lerie, IMO your presence and participation here is a very positive thing, both for you and others.  While we might not be able to give much to the outside world, we can share our "experience, strength, and hope" with others who come here desperate for information and support.
 
I'm still waiting to hear from Mayo as to when I start the TheraSpheres protocol (radiation treatment for liver cancer.)  When I spoke to them last week, they said it would be "very soon."
 
Jon, I can only tell you that the fatigue and sleepiness from liver disease cannot really be combatted, except to try to eat a nutrious diet, not "overdo" when you are feeling okay, and avoid things that will add to the dragged out feeling (alcohol, tranquilizers, and other such substances.)  I can't speak for Crohn's, but it seems this would also apply to that disease.  Unless I have medical appointments or other pressing business, I just sleep and don't worry about it.  ;)

lerie
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Date Joined Nov 2005
Total Posts : 966
   Posted 1/11/2006 6:19 PM (GMT -7)   
Hi,Thankyou Hep93. You Just made my day a much better one , thankyou & God Bless.
lerie


lerie
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Date Joined Nov 2005
Total Posts : 966
   Posted 1/11/2006 6:20 PM (GMT -7)   
Hi,Thankyou Hep93. You Just made my day a much better one , thankyou & God Bless.
lerie


Simon-Jordache
New Member


Date Joined Jan 2006
Total Posts : 2
   Posted 1/16/2006 9:06 PM (GMT -7)   
I have cirrhosis of the liver. I found out on April 21st 1998. The Dr at hospital said that I needed a liver biopsy which involved a procedure where they take a liver sample by sticking an instrument into my right side and taking liver tissue.

I was all prepared in my mind to have it done but then was told that it wasn’t possible in my case and that they had to get a liver sample by way of a trans-jugular liver biopsy. I had to go back home.

So, at a later date, I went into hospital (by appointment) and they dressed me in gowns and made me sit in a wheel chair. I was then pushed down to the theatre and had the procedure done. I had to lie down (without any anthesthetic apart from something injected into my hand, which had no effect on me) whilst the surgeon inserted a rod into the left side of my neck with some special type of machine. It felt like having a twig made of iron forced down my jugular vein. I could feel it going across my chest to my right side where the liver sits. One blessing though is that it was done quite quickly.

Anyways, I thought to myself that they now might be able to treat me with the pain and discomfort around my liver.

I’ll describe the pain: it feels like – nipping, hot burning, pins and needles and a tearing sensation. My condition is aggravated by any sources of heat, for example, radiators, hot air, clothing, and so on. I’ve been tortured with this pain every single day for over seven years.

I’ve tried all sorts of treatment at the hospital’s pain clinic: medication, acupuncture, nerve-block injections, TENS machine and so on. Nothing works! When I’ve made enquiries with the heptologist at the liver department he just abruptly tells me that people don’t feel pain in their liver. It makes me really angry when he says it.

Does anyone here know of any ideas how to alleviate the pain and discomfort caused by cirrhosis. I’d be eternally grateful for any solutions.

Simon.

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 1/16/2006 9:45 PM (GMT -7)   
Hi Simon, I'm sorry that you had to go thru so much agony for your biopsy. I'll try to explain a few things here based on my experience. I've never heard of a biopsy being done in this manner but I do know that sometimes a biopsy won't be performed at all on some of us. For me they say It will make my liver bleed & cause infection.The stuff they gave you in the hand is a joke I know, but they won't give us anything potent or even worthwhile because as I was told it could put us into liver failure,so we have to tough everything out. They can't give you anything for the pain either for the same reason.Your hepatologist is wrong about the liver not feeling pain. I'm sore most of the time & sometimes I get severe pain that makes even breathing difficult.What gives me some relief most of the time is I lie on the side my liver is on, & 1/2 on my stomach with a pillow to keep me from rolling over completely on my stomach. I find with the more severe pain I stand & eventually sit slightly bent forward & keep my breathing shallow.I find if I completely stay off my back this saves me from a lot of pain & the tearing sensation. These things don't always work but sometimes they do, for sure they always help. You might want to find another hepatologist too whom is more sensitive to your needs. What stage of cirrhosis are you in?My heart & prayers go out to you.later....
lerie


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/17/2006 1:50 AM (GMT -7)   
Lerie, I believe the reason they don't give anything prior to the liver biopsy is because they want the liver to be as free from chemicals as possible, to get a clear look at the sample they remove and analyze.  I was given a shot of Demerol afterwards, as I had severe back pain immediately after the biopsy.
 
As for the liver not hurting: There are thousands of people with liver disease out there who would be happy to debate the subject of pain with that hepatologist, and refute his notion that the liver doesn't feel pain.

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 1/17/2006 10:17 AM (GMT -7)   
Hi Hep93, For me they will not do a biopsy because the stage of liver disease I'm in would cause me to hemmorage they said, & any sedatives,demoral or other narcotic would definately cause me to go into another comma. Maybe it depends on stage & causes.liver can be very painful & your right I'm sure a lot of patients would have a field day with this hepatologist on this one.God Bless,later....
lerie


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/17/2006 1:48 PM (GMT -7)   
Lerie, then this is a perfect example of everybody's disease being different.  ;)
 
Virtual hugs,
Connie

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 1/17/2006 8:03 PM (GMT -7)   
Hep you are so right! Thanks & Hugs to tou. later....
lerie

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