Liver Flap / Asterixis questions

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Dmlee
New Member


Date Joined Dec 2016
Total Posts : 2
   Posted 12/29/2016 10:24 PM (GMT -6)   
Hello my name is Donna and I'm new to the forum . My mother is on peritoneal dialysis due to kidney failure and she's been going down hill for a couple of months and the Doctors have just told us they think she has Liver flap / Asterixis so I have been trying to research and get more information . Everything I have found online about this condition says that the " jerks " are in the hands so my question is does anyone know if this can cause jerks all over her body ? My mom jerks all over not just her hands and the jerks are so bad at times she has actually fallen down 4 times due to her legs jerking because she says when it happens its like she has no control over her legs and they just go out from under her . She uses a walker but she continues to weaken daily and she's now to the point she can hardly get out of bed and the Doctors are telling us it's due to the Liver Flap . Can anyone give me some information on this disorder because I'm not convinced that this is her problem . Thanks in advance smile

ppm guy
Veteran Member


Date Joined Apr 2010
Total Posts : 1077
   Posted 12/30/2016 7:44 PM (GMT -6)   
hi dmlee and welcome.
Don't know a lot about liver flaps. I also ran a check on the subject. apparently it is seen in end stage liver disease. has your dr confirmed she has liver disease. in end stage liver disease the kidneys take a big hit.
does your dr think dialysis can stabilize her?

my question to the dr would be, what are her options? is a kidney transplant, liver transplant or both an option? what could cause full body jerks?

I check the forum most days. if I can help you with anything, don't hesitate to ask.

Dmlee
New Member


Date Joined Dec 2016
Total Posts : 2
   Posted 1/4/2017 10:28 PM (GMT -6)   
Thanks PPM guy for replying and I apologize for it taking me so long to reply back but things have been crazy for me lately because Mom is not doing good at all . I am so confused about this " new " so called diagnosis and talk of Liver Flap ...as of now sadly I think my Mom has given up on life , she's 71 years old and been on dialysis for a year and she's been in and out of the hospital 11 times in the past year so it's been a long hard year for her and my family . My sister and I have been doing her dialysis at home " peritoneal dialysis" because we could never get a graft to work for hemo-dialysis due to her veins being so small . We ran out of options and started doing dialysis at home which was much easier on her . But she has been going down hill for the past few months and is so weak at this point ,we have no other options unfortunately but to put her in a nursing home for what they say will be long term rehab. She is so weak we can no longer help her at home without risking a serious fall etc... They just placed the temporary tunnel cath in her neck so that they can't do hemo -dialysis while she is in the nursing home because they do not do peritoneal dialysis at any of the nursing homes ...which is a HUGE infection risk but we have not other options . The doctor tells us that they think she has this liver flap syndrome due to the way her body is jerking but at no time told us this was end stage liver disease on top of everything else we are dealing with . I don't understand how they can tell us something like that and say they are going to try changing some of her medications and taking her off some as if that would be a cure all to this jerking issue / liver flap but at no time have they told us her liver is shutting down . Everything I have been able to read so far has talked about the hands jerking but nothing about the whole body jerking and Mom is doing it all the hands and legs etc.. so bad that she cant walk due to her legs jerking and causing her to fall .Mom is not a candidate for transplant of any kind due to her age and other health problems so I'm afraid if the Doctors are correct about the Liver flap issue and it's end stage liver disease then this is NOT GOOD at all . Really helpless at this point it's hard watching the woman who has been by my side from day one of my life basically dying and their is nothing I can do to help her . Anyway thanks for the reply ...

MamaLama
Forum Moderator


Date Joined Oct 2010
Total Posts : 4786
   Posted 1/8/2017 5:24 PM (GMT -6)   
Hi Donna, what a loving daughter you are to be caretaker to your Mom. I am sure she appreciates all that you do.

I too have poked around some and found a Healing Well post from YEARS ago from 1Shelly1 that says the flapping can happen with liver, kidney or pulmonary distress. If you go up to the SEARCH on the blue bar above the posts and type in Liver Flap Question? it will take you to an interesting OLD thread. Don't respond to that one as people change over time and that person will likely not be posting these days, but there may be some interesting responses that could be helpful. Continue posting on this thread and see who pops in.

Each organ has many jobs to do that support the miracle of life. The liver alone has 600 jobs to do, 600 jobs...

My partner has been a liver patient for a long time. His primary issue was his liver and once he was transplanted he improved in most ways. But his kidney and cardiac issues are still a problem and he may be in trouble again. He is 67 now and has decided if he needs another transplant, he won't go for it. Next time he is going to take a palliative route...ie make him as comfortable as possible, face his "transition" from this world, and focus on the good things he experienced during his life. This he says NOW, after aortic valve replacement, treatment for Hep C, the liver transplant, 5 ortho surgeries including a HUGE back surgery from which he is now recovering, and 2 hernia surgeries. He says they have fixed him up as good as he is going to get fixed. I agree with him. Sometimes enough is enough.

Keep up the good work with your Mom. Let us hear from you.

Mama Lama
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.
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