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faye1
New Member


Date Joined Jan 2006
Total Posts : 7
   Posted 1/10/2006 3:19 AM (GMT -7)   

Hi I'm new to this site and looking like everyone seems to be for answers my Dad has advanced stages of Cirrhosis.  I know from reading the posts that we cant tell when, but all the family have noticed even since October that he has deteriorated.  Seemingly all this was brought on by diabetes but still no answers he has had to have veins tied a few times and he is still able to drive but he is very week at times and its like he finds it hard to talk at all.  Do people who suffer this just deteriorate at a fast pace in the end or do you know who long.  I saw on one post that it is 1-2 years after being diagnosed.  He was diagnosed last December 2004.  We have asked the Doctors and they just say no-one knows but there must be a sort of frame on it how can they tell with other illnesses.  Could someone try give me some sort of answer.  Thank you so much.  And I am so sorry to the people who have lost loved ones.  

 


lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 1/10/2006 5:09 PM (GMT -7)   
Hi Faye,I have severe advanced cirhosis & hepatic encephalopathy. Do the Drs. know your dad is still driving? I know this was a first concern with specialists for me due to suddenly falling asleep,confusion & slow reflexes from weakness.As for your question there is no way of knowing how long. I had my 1st comma 9 years ago & 3 more following that. Each time they said that I wouldn't make it, then when I came out of it they told me 2 weaks the last time,that was 9 years ago the first time they told me that,I'm now by the grace of God in my 10th year since first comma from liver failure. Some have gone first time,some 2weaks to a year Fact is no-one knows.I will pray for you both. I wish you both all the best.later......
lerie


faye1
New Member


Date Joined Jan 2006
Total Posts : 7
   Posted 1/11/2006 3:45 AM (GMT -7)   

Thanks so much Ierie for your reply but to be honest I dont think they ever asked the question about driving.  My Mother doesnt drive and they would have no means of transport other than Dad drives.  He just occasionally would have memory problems and his speech is not slurred but to be honest just the Consultant just told him that his liver is not functioning at all no other explanation so I just presumed with all the other symptoms that he has that it must be advanced.  Do you mind me asking what age you are does it matter about your age. My Dad is 70.  Were you diagnosed from the start and then it progressed or was it at the later stages.  Sorry for all the questions I think my Mother is afraid to ask and my dad seems to be resigned to the fact that he is not going to get better and he is very weak (how do you combat the tiredness) I suppose I am asking the impossible but maybe I just wanted to know if it will be a year or less.  Can you go into a coma at any stage ?  He wasnt eating any protein for a long time as a Doctor told my Mother that he shouldnt have that much meat then last week he was at the Diabetic Doctor and she said that was not true and he can eat it so I just thought maybe he wasnt getting enough protein and he was tired from that.

 

Your a God send and you give hope and I think at this stage everyone needs hope.


lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 1/11/2006 5:43 PM (GMT -7)   
Hi Faye, First of all hon ,it only takes a second of confusion behind the wheel for a fatal accident, Please consider this factor very carefully. Secondly protien is a major factor. you can get protien from veggies too. As far as no meat I have been allowed 4 ozs. a daybecause a sick liver cannot break protien down. Limited intake is critical. As far as not getting better, niether am I but I,m determined to live as long as I can. Just for spite if nothing else! Too much meat will cause further fatigue & confusion. I am 52 & Iwas 43 when I got sick.We found out I had liver disease when I felt flu-like symptoms for a few days & Drs., thout it was the flu. Then I started hemmoraging & slept into a comma. They say there was a lot more to it but this is all I remember. They did tests to find out what was wrong & found it was liver failure. Till this point my only symptoms were tired, full & confused.I was in advanced 3rd stage & very sever scarring of the liver. You can't just say a year, only God knows if it will be today, tommorrow or 10 years or 20years. Please just value the time you do have with him, hang on tight to the memmories & be there for him. I know how tirring, hard scary it will be for you, so immagine what it must be like for him.Please feel free to ask me anything you want. I will also try to help you understand what its like for him if you need me. Also I am here for you sweetie. God Bless you & your familyEveyone needs hope or we have nothing. I'll be praying for you all. later....
lerie


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/12/2006 12:10 AM (GMT -7)   
I have always read that Naomi Judd had hep C, but I wrote to her doctor years ago to ask about treatment. I received a reply from him stating that she had hep B, not C. I'm still wondering about that.  eyes

Hyperbaric oxygen treatment is also used to help heal wounds that just won't heal on their own. My neighbor underwent a month of this treatment for a head wound.

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 1/12/2006 6:32 PM (GMT -7)   
Hi Faye you asked when you go into a comma what stage is it, its advanced stage sweetie, sorry. Ask your Dr. about lactulose for the tiredness, memory loss& confusion. Lactulose is a laxative that is also a diuritic & aids in flushing toxins from the liver.It does cause diarreah but it does help the liver & hepatic encephalopathy a great deal. He won't be quite so tired & have as much memory loss. it will cut down on any hallucinations he may be having.The liver is a filter with many tasks & when it is sick can no longer peform its workload without help.Ridding the body of toxins is one way lactulose assists to relieve the symptoms.I am really concerned about him driving.Yes he will seem ok for a time then go downhill but sometimes we get lucky & stablize for a period. Iknow its a shock to you when these phases & deteriation happen, it's like a rollercoaster ride to him too. Hang in there sweetie. My thoughts & prayers are with you sweetie, I'm glad you came to this site for support so you can gain strength when you know your not alone.My heart & prayers are with you. God Bless.later...
lerie

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