My message for caregivers

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lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 1/12/2006 1:12 PM (GMT -7)   
yeah  Hi every one. As most of you know I have cirhosis & hepatic encephalopathy.My husband is my main caregiver. I know it is not easy for any of you in the role of being caregiver for your loved one. I want you to know that often times it may seem that we the patients don't often show how much we appreciate you, but we do. You , our family & friends is where our strength & hope lies.It is because of you that we have the courage & strength to live  & get thru this. Our time with you is so precious to us.It is alot to do to take care of a loved one. Please let us help in decision making& let us have our dignity & self respect tho, however much we have left.We see the pain & confusion in your eyes & we know you get tired & worn down, Please know we love you & you are so dear to us. I pray for each & everyone of you's that God will give you strength to endure & that you will know how much you are loved. God bless each & everyone of you.Don't ever give up dear ones for you are so special. later....
lerie


PN16
Regular Member


Date Joined Oct 2005
Total Posts : 98
   Posted 1/18/2006 11:55 PM (GMT -7)   

Thanks Lerie - that is great :-)

I hope your feeling well today

Patty


lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 1/19/2006 10:42 AM (GMT -7)   
Hi Patty, how are things going for you? haven't heard from you for awhile. Hope everything is alright.My thoughts & prayers are with you. How is your dad?later....
lerie


lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 4/8/2006 8:47 PM (GMT -7)   
Hi Everyone,I bumped this up for our new caregivers. My thoughts & prayers are with you all.Hugs. later....
"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.
 
Valerie


lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 4/9/2006 7:16 AM (GMT -7)   
 Hi Jennifer, thankyou. Excellant advice & probably the most important.thankyou for thinking of it as we patients often forget to ask many things as well.Also when the encephalopathy is flared up or we are to sick to care we also forget some instructions given to us even temporarily.Also it is you our caregivers whom recognize symptoms we don't.Hugs. My thoughts & prayers are with you. later....

"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.
 
Valerie


Shel
Regular Member


Date Joined Apr 2006
Total Posts : 122
   Posted 4/12/2006 1:38 PM (GMT -7)   
Thanks lerie. I sometimes wonder if all that we go through and put up with is appreciated. Sometimes there is so much going on that I don't know what direction I'm headed! Thanks for the words of inspiration!
*Hugs, Thoughts, and Prayers*
   *Shel in New Mexico, USA*
 


lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 4/14/2006 12:01 PM (GMT -7)   
Hi Shel,You ARE appreciated hon. Please don't ever doubt that. Sometimes with our loss of independance & loss of self esteem this disease takes from us it is hard for us to put things into words. For the first few years I felt saying thankyou or showing & expressing gratitude & appreciation meant admitting defeat. It took years to see things differantly.I still feel like a burden sometimes but I do the best I can to do what I can when I can. It's not easy for you sweetie, we all know this & we are here for you. Love & Hugs. My thoughts & prayers are with you & your family. later.....
"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.
 
Valerie

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