Lactulose Questions.... Please Help!!!!

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TawnyaM
New Member


Date Joined Feb 2006
Total Posts : 16
   Posted 2/5/2006 6:40 PM (GMT -7)   
Hi, My name is Tawnya...  On January 9th I recieved a call from my dad, he was in the hospital, no one even knew he was sick. I drove 10 hours straight there to find the Doctor saying that  and I quote "His barn door has been open too long, theres nothing we can do, take him home to die". I was SHOCKED. We were told that hospice would be helping me, I am 30 & inexperienced I could not take care of him alone.  Ambulance brought him home, 2 hours later a hospital bed arrived, an hour after, Medicines, followed by a nurse. I explained to the nurse that my father was diagnosed with cirrosis & his liver & kidneys were failing, she took his vitals & asked me questions. Before she left I stopped her & asked her to explain his meds to me & tell me how to administer them. She looked at the Lactulose and said quote "I dont understand why they gave him this... if he isnt eating then there is nothing in his stomach to make him constipated" so the Lactulose was sat aside & not given to him at her instruction. My dad was ok when we got home, we went over some of his bills, had a good talk, then he said ... tomorrow we need to get some papers done to give you power of attorney. Well, by the next day, my dad had become very lathargic, confused, & tired. We could not do anything. We had a nurse come by 2-3 more times, finally we asked why he couldnt have something to help with the water in his lungs... they put motion sickness patches behind his ears. We were at his home for 4 days before the rest of the supplies came to take care of him... there were no pads, sheets, gloves, NOTHING for 4 days!  My daddy died 2 days later.
 
Im sorry that was so long, I just needed to get it out. My question is... Could that Lactulose have given my daddy a little extra time? Or at least a day or two of clarity?? I feel like my dad was stolen from me, like, I should have been able to talk to him more. Thanks for your help...

frieghtened
Regular Member


Date Joined Nov 2005
Total Posts : 48
   Posted 2/5/2006 8:34 PM (GMT -7)   

Tawnya,

       Hi, I really don't know what to tell you only that the doctor has my boyfriend Steve on lactulose for the amonia level. He has cirrhosis of the liver and is in the end stage. He has to take it daily whether he has eaten or not. It helps him to stay alert and when he starts going out of it I make him take more. Since his liver isn't filtering like it is supposed to the lactulose is suppose to help him. Sorry I can't tell you if it would have kept your dad around longer I really don't know. Sorry for your loss.

frightened


lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 2/5/2006 8:38 PM (GMT -7)   
Hi Tawny, welcome to the forum. I'm so sorry to hear abot you dad. My heart goes out to you. Would the lactulose have saved him? thats hard to say sweetie tho it may have helped for a little while but no one knows for sure. Would it have given him more clarity? yes.They also should have had him on spalactome & furmosimide. You dad's care should definately be investigated.Lactulose is not given to a liver patient just for constipation my dear. IT is given to us for hepatic encephalopathy to help keep our clarity, help keep us from going into a comma & increased risk of death,in addition to controlling many other symptoms.The way the nurse was is just inexecusable & she is supposed to work with the Drs. not on her own opinion! I'm so sorry you went thru all this. Anytime you want to talk honey this is the place to come & don't be sorry for anything, you have nothing to be sorry for. Take care & God Bless. later....
lerie


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 2/5/2006 10:35 PM (GMT -7)   
Tawnya, how awful for you! You must have been in a state of shock with everything happening so fast. My heart goes out to you. From what I've learned, Lactulose is used to combat the mental effects of ammonia overload...such as sleeping constantly, confusion, and coma.

Lerie, I think the drugs you were referring to are spironolactone (Aldactone) and furosemide (Lasix.) Just in case anyone wants to look them up. ;)

Connie

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 2/5/2006 11:48 PM (GMT -7)   
Hi Connie, thankyou. That's exactly what I meant. I'm so tired & some encephalopathy symptoms that I 'm having trouble concentrating. HUGS. My prayers are with you all. later....
lerie


TawnyaM
New Member


Date Joined Feb 2006
Total Posts : 16
   Posted 2/6/2006 12:03 AM (GMT -7)   
Thank you for all of your comments.... I am truly devestated by all of this. Things are getting worse & worse here, the state wants their share of my daddys hard work, so I get to sit through court on it. If I would have known about the lactalose before, I could have more time to finalize my daddys wishes, now Im fighting for them & it is not fair!! All of this was such a slap in the face with reality, My husband has Hep C, His viral Load is 7000 & he is on Peg-interfuron & rebitol. Here it is, 2 weeks ago my daddy died from this same thing, I am so darn scared. My husband almost died 2 days ago, his platelet count was low, they gave him nuemega shots, after his second one, his eyes filled with blood, his temp sky rocketed, his BP dropped to 70/52... I cant handle much more. I am very glad to have found this place, a good friend of mine, Donna, emailed me the link. Its hard to find people to talk to these days. Thanks Guys.

TDT
Regular Member


Date Joined Jan 2006
Total Posts : 402
   Posted 2/6/2006 7:51 AM (GMT -7)   
Hello TawnyaM, Welcome to the forum. I am so sorry to hear about the loss of your father and your husband being very ill. My Prayers go out to you! My husband has end-stage cirrhosis. It sounds like everyone has told you what lactulose does. It is very devastating to have to go through this. And you seem to have a double dose, bless your heart. I do hope your husband is doing a little better today. I have seen my husband okay, and leave the hospital and come back the next morning and was in a full blown coma. It is quite scary! I wish you didn't have to go through the courts, it's not fair. The nurse should never have left the lactulose or any other type of drug off base on her opinions to what your father needed or didn't need. The forum is a good place to find information and to vent. I will have you and your husband in my Prayer! Take care!
Teresa

TawnyaM
New Member


Date Joined Feb 2006
Total Posts : 16
   Posted 2/6/2006 10:57 AM (GMT -7)   
Thanks Teresa, My husband is doing better today, he is sleeping still. He sleeps alot. I hope that you are ok, I wish none of us had to go through this awful mess.

Everyone I have spoke with here has told me I should seek legal action against the Hospice that took care of my dad. They WERE very unprofessional, & it scares me to think they are taking care of someone elses mom or dad as we speak. What do you guys think? Should I make sure this company is repremanded for what it did to my daddy, or leave it alone?

Thanks,
Tawnya

TDT
Regular Member


Date Joined Jan 2006
Total Posts : 402
   Posted 2/6/2006 3:58 PM (GMT -7)   
Tawnya, Is your husband taking latulose? It might help with the sleeping. My goes through different cycles of sleep. At one point he was sleeping about 18 hours a day, but has since gotten a little more stable. He always sleeps alot when he has a crisis episode. I can't tell you what to do about your dad. I know what I would do! You have to follow your heart! You half to find your own peace of mind, on this matter. Right now you have a full plate, so just take one thing at a time if you can. I know it is hard because, our world has been turned upside down and we can't think as clearly, too much happening! Our normal life is not normal anymore! I wish I could be of more comfort to you! Hang in there! HUGS and PRAYERS!
Teresa

PN16
Regular Member


Date Joined Oct 2005
Total Posts : 98
   Posted 2/7/2006 7:00 PM (GMT -7)   
Tawnya,

So sorry for your loss - hang in there with your husband - there is much info on this site about Hep C and what you should/shouldn't do eat etc. - I hope it helps. Your in my prayers.

Patty

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 2/7/2006 9:56 PM (GMT -7)   
Hi Tawnya, how are things going for you? Has your husband been sick long.
?I have cirrhosis & my hubby is my caregiver. I know it isn't easy for you but hang in there Every one here is right. Lactulose is very important in controlling the toxins that cause encephalopathy.. we are here for you. God Bless.


lerie


Barbara P
Regular Member


Date Joined Feb 2006
Total Posts : 256
   Posted 2/8/2006 10:41 AM (GMT -7)   

Hi Tawnya,

Sorry for your loss of your Dad and your husband's illeness.

I'm also new to this forum and donna told me about it as well. Isn't she an Angel.

Now is not the time to make decisions regarding whether or not to go after Hospice so they won't do this to anyone else in the future. Your energy and resources much be focused on grieving and recovering your emothional resources and on being there for your husband.

My husband Gene has Cirrhosis and esopageal cancer. He spent seven months in hospice but miraculously improved enough so that he no longer qualified, or so they said. That was a year ago and he remains stable. What I wanted to tell you was that we checked out our options for fighting Hospice or filing complaints and everyone said it would be pointless. They would receive a mild reprimand and that was all regardless of how incompetent they were.

Keep notes and records in case you decide to seek legal courses later. But now you need to heal. And this place seems to be where we both belong.

Hugs,

Barbara


lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 2/9/2006 2:19 AM (GMT -7)   
Hi ladies, I just want to say I agree Donna is an angel! take care. later....
"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there."
 
 
lerie


TawnyaM
New Member


Date Joined Feb 2006
Total Posts : 16
   Posted 2/9/2006 9:29 AM (GMT -7)   
Yes she is!!! Wonderful Lady! Hope everyone is feeliing ok today. Im going to try & go in to the office today & make sure our employees are doing what they are supposed too!!!

Take Care!
Mom of 3 children, 2 Stepchildren, & a 3 year old Grandson!
Ive been Married to my husband for 15 years, I am 31 years old! My husband has HepC, in January 06 I lost my Daddy to HepC...  R.I.P. Daddy!
 

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