Has the meds helped anyone?????

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III
Regular Member


Date Joined Feb 2006
Total Posts : 91
   Posted 2/19/2006 7:09 AM (GMT -7)   
I"m new here and just wanted to know if there is anyone here satisfied that they did the meds for hep c. All I hear is negative response.  I'm suppose to start next week for 6 months I'm genotype 2b....
thanks for any info

III
Regular Member


Date Joined Feb 2006
Total Posts : 91
   Posted 2/19/2006 7:27 AM (GMT -7)   
Thanks for the welcoming..... This is my second forum the first one wasn't to nice. I just found all this out and I'm so scared of these meds. I work full time, I have 3 children 17,19,27 two which live at home (girls) and they said mom we are here for you,,,,they also work where I do..which is good they can check up on me....thanks again..

donajean
Regular Member


Date Joined Jan 2006
Total Posts : 141
   Posted 2/19/2006 1:30 PM (GMT -7)   
Welcome I, I am sorry I don't know anything about the meds you are talking about. My husband has had Hep C & Cirrhosis of Liver since 2001. His condition is remaining stable. We thank the Good Lord for this. There are some great folks here who I am sure can help you. You take care.............

My thoughts & Prayers are with you!
Blessing's to All
donajean

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 2/19/2006 4:16 PM (GMT -7)   
Hi "I Welcome to HW Forum. Glad your here. I don't know about Hep c meds As I have cirrohsis from presciption drugs, However my husband had treatment for Hep C & it worked for him. There are others here who have treatment too so hang in there & one or more of them will be here to help you further. My thoughts & prayers are with you. later....
"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.
 
Valerie


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 2/19/2006 10:20 PM (GMT -7)   
Hi and welcome! I was diagnosed with hep C in '93 and tried 2 courses of interferon A, which was the only med available for treatment of hep C at the time. I was taken off the first round after about 2 months, due to very low white count. The same thing happened the second time, after about a month, and I took myself off that time. Since then, other (better) treatments have evolved. With the interferon A, the remission rate was 50%, and of those 25% had a recurrence. So only 25% actually stayed in remission. The combo has much higher success rates, with many people clearing the virus from their systems. However, that treatment takes a year and has very bad side effects, from what I've heard--rendering many patients unable to work while undergoing treatment. There was a new member here the other day who mentioned a "cocktail" which would be taken for 6 months. Perhaps this is what you have in mind.

I would encourage you to get some kind of treatment, though. I never received any additional treatment and now have inoperable liver cancer, as a direct result of untreated hepatitis. No matter how unpleasant treatment may be, it can save your life. Just find out all you can about the specific treatment you will be getting, so you know what to expect.

And be sure to come back here for tons of support. :)

Connie
Site address removed please see rules # 4 & #5.

Post Edited (hep93) : 2/20/2006 3:35:54 PM (GMT-7)


lerie
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Date Joined Nov 2005
Total Posts : 966
   Posted 2/19/2006 10:40 PM (GMT -7)   
Hi Connie,& Everyone I read the site & found some usefull info tho but am deeply concerned about the Tea. This is good for healthier livers BUT not cirrhosis as I personally have been hospitalized for herbal toxicity. Ginger was one of them.PLEASE never take any herbs without cunsulting Specialist for YOUR individual case. Many herbs are very toxic to the liver!There were other herbs here good for Hep C maybe but not once the liver has become cirrhotic. My thoughts & prayers are with you all. later.


"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.
 
Valerie


Marg57
Regular Member


Date Joined Dec 2005
Total Posts : 446
   Posted 2/20/2006 2:54 AM (GMT -7)   

Welcome to the forum."I".  this place is filled with loving, caring people.

As usual you have good advice lerie.  I have stopped the ginger, and mostly my liquid refreshment is water.  I haven't found any info on carrots and celery (apart from what you told me) but i am limiting my intake.  Stil having lemon juice every morning. 

Marg.


Marg57
Regular Member


Date Joined Dec 2005
Total Posts : 446
   Posted 2/20/2006 2:55 AM (GMT -7)   
I have autoimmune hepatitis, not hep C so I can't give any advice about meds.
Marg

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 2/20/2006 10:55 AM (GMT -7)   
Hi Marg, lemon juice is excellant for the liver! As well as kidney's , bladder & skin.Hugs, later...
"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.
 
Valerie


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 2/20/2006 3:34 PM (GMT -7)   

I have no vested interest in the site whose link I posted.  They don't advertise for themselves, but I know they allow others to advertise, just as this site does.  At any rate, if someone wants info on hep C, you can do a search for hep C for a number of active sites, or go to the American Liver Foundation's site.  I hope it was okay to mention that.

Connie


***Made the site posted a link for easy acces****

Post Edited By Moderator (~Jennifer~) : 2/26/2006 2:30:42 PM (GMT-7)


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 2/21/2006 3:54 AM (GMT -7)   
Lerie (and all), I woke up early yesterday morning coughing up green junk again. So I need a different antibiotic. I will call and leave a message for my oncologist today, to see if he will go ahead and call in the Levoquin that he originally wanted to prescribe, without having to go to Mayo to see him. I spent some time yesterday just throwing out old things I no longer want to keep. Went to sleep around 6:30 p.m. and didn't wake up until 4 this morning, coughing. I'm going to try to get a little more sleep.

Yesterday was a holiday here (President's Day), so I wasn't able to do much, even by phone. I am going to give my neighbor a call later today to see if he can set up my laptop for me. He has done this for my VCR and my DSL. It's worth paying him a little to do this and save myself the aggravation. I'm not very good with technical/electronic things.

Hope everyone is doing okay.

Connie

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 2/21/2006 10:02 AM (GMT -7)   
Hi Connie. sorry your cold is not going away yet. I hope you get the other antibiotic soon & that it clears this up for you really soon. They may want to check you & make sure it hasn't turned to pnuemonia. Doesn't sound good.I need to sort my things out too but I don't have the energy to do it. I'm no good with tech stuff either.I sure do hope your nieghbor can help yoou . Well take care.My thoughts & prayers are with you sweetie. later....
"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.
 
Valerie


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 2/21/2006 1:19 PM (GMT -7)   
After I coughed up so much junk yesterday morning, my lungs now seem to be completely clear!  :-)    So maybe that was the last of it.  I will see how it goes before putting in a call to the oncologist.
 
I did call the radiation oncology nurse that I've been dealing with, regarding the TheraSphere treatment.  I had to leave a message, but she will get back to me when she is able to.  I just want to find out if she has heard anything as to how much longer the wait is.
 
I have an appt. tomorrow at Shands to renew my clinic card.  I've made and rescheduled about 4 appts., so hopefully I will get to this one.  Our weather has turned much warmer and I am feeling a lot better, as far as the bronchitis goes.
 
Hope everyone is doing well today.
 
Connie

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 2/21/2006 1:57 PM (GMT -7)   
Hi Connie, I am very happy you are feeling better.I hope that is the last of it. I do worry about you my friend. Let us know the update on the treatment when they call you back. Best to you in making this appt. I know it gets so frustrating. Did your nieghbor help you with your laptop? My thoughts & prayers are with you. HUGS. later....
"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.
 
Valerie


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 2/21/2006 3:23 PM (GMT -7)   
Thanks for your concern, Lerie. How are YOU doing?

No, I haven't been able to reach my neighbor yet. He is generally working on a few different items at one time, so it may be a week or so before he can get to me AFTER I can reach him.

Connie

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 2/21/2006 3:30 PM (GMT -7)   
Hi connie, i'm doing better with my cold almost gone I think but a lot of trouble with my liver, a lot of it from Vitamin A toxicity. But one day at a time. I'm still here so thats goes a long way some days. My liver has been unussually sore again, hope it's not more shrinkage & dead cells. But if it is I'll have to step up self care & apply myself to the positive.I hope your neighbor helps you soon. My thoughts & prayers are with you. later....
"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.
 
Valerie


steveC
New Member


Date Joined Mar 2006
Total Posts : 2
   Posted 3/13/2006 10:01 PM (GMT -7)   
Bump
TO "I" and everyone else on Tx for HCV.

A year ago I completed 48 weeks of the "treatment". Thats a shot a week of pegalayted interferon, and 5 ribavirin capsules a day. I have just tested "clear " again! :)
Now this was Hep C genotype 1, the hardest to clear. All I can say to you is the treatment works! Hard sometimes, but it works!

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 3/13/2006 10:23 PM (GMT -7)   
Hi steve, welcome to HW forum. we're glad to have you here1 I have presciption drug induced cirrhosis(end stage) but my hubby had Hep c & took the treatment 5 years ago. It was very effective for him as well.Thankyou for sharing you experience in treatment with us. keep posting. take Care. later.....
"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.
 
Valerie


III
Regular Member


Date Joined Feb 2006
Total Posts : 91
   Posted 3/19/2006 9:59 AM (GMT -7)   
Thanks for the info Steve Thats what I needed to hear right now just did the 4th shot (a little rough) does the weakness get better or does it go up and down?.....
 
Eileen

wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 3/19/2006 4:57 PM (GMT -7)   
My hubby just completed 13th week of interferon injection for hep b and his tests came back alot better then before treatments though he is still showing hep b. I dont think hep b is curable though,,only goes into a remission-like state. I do believe the meds help though,as the tests are showing much improvement. His symptoms have gotten somewhat easier now,not as much vomiting,only nausea,and he doesnt run a fever any more. He still has ALOT of fatigue but that is probably the cirrosis. I,good luck with the treatment ,hang in there because there IS hope!!
trish

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 3/21/2006 11:16 PM (GMT -7)   
Hi Trish,Cirrhosis does caught a lot of fatigue. it also cause a lot of insommia & reversed sleep pattern . Anything but normal sleep anyway & rarely ever feel rested. its like a roller coaster ride sometimes. take care. my thoughts & prayers to you & your hubby. later....
"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.
 
Valerie


Marg57
Regular Member


Date Joined Dec 2005
Total Posts : 446
   Posted 3/22/2006 3:08 AM (GMT -7)   
That's another piece of information I wasn't aware of Valerie. I thought my poor sleep habits were from the Prednisone. I'm surprised that cirrhosis also causes insomnia. That gives me a double whammy!! Lucky me!!
Marg.

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 3/22/2006 8:18 AM (GMT -7)   
Hi Marg.cirrhosis cause a lot of differant sleep patterns as we do not have normal liver functions & Toxins,ammonnia etc in our systems. unfortunately every thing but normal sleep. I forget what a good solid normal sleep is as I'm sure is the case in all liver patients regardless of the cause for the diease. then when we sleep we never feel rested anyway. glad the info helped you & you now know what is causing you sleep patterns Marg. take care. My thoughts & prayers are with you. Love & hugs. later....
 


"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.
 
Valerie


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/22/2006 1:39 PM (GMT -7)   
Prednisone DOES cause anxiety and restlessness, so yes...double whammy with the cirrhosis.

Connie
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