End Stage Cirrhosis-Transplant

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TDT
Regular Member


Date Joined Jan 2006
Total Posts : 402
   Posted 3/9/2006 9:45 PM (GMT -7)   
 

Post Edited (TDT) : 5/24/2007 9:51:38 PM (GMT-6)


lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 3/9/2006 10:08 PM (GMT -7)   
Hi Teresa ,i'll bet your exausted. how is poor mark holding up.I'm glad this clinic is getting Mark built up & prepared for transpant more effeciantly. The other clinic didn't start this process yet did they? Sounds like this clinic will act soon I pray they do a transplant soon as he is deteriating quickly it seems. My heart goes out to you , Mark & Michael. My thoughts & prayers are with you's.It is very critical he be in the best shape possible for the transplant. I'm glad to hear the hep c may be a false positive as well. Love & Hugs. may god bless you. later...
"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.
 
Valerie


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/9/2006 10:17 PM (GMT -7)   
Teresa, I can relate to your exhaustion...and I'm sure Mark is fatigued, too. And more so tomorrow, with the MRI. The good news is that they are moving quickly. At Mayo, they can actually do all scans and bloodwork within a week. I was the one who physically wasn't up to getting there and going through that even 3 days a week. They got it down to 2 scans or tests at a time, over a period of 3 weeks. And it was still terribly tiring. They need to be sure about the hepatitis, as he will need treatment for that after transplant.

I pray that Mark will be moved to the very top of "the list."

My thoughts and prayers are with you.

Connie

Marg57
Regular Member


Date Joined Dec 2005
Total Posts : 446
   Posted 3/9/2006 10:42 PM (GMT -7)   
My thoughts are with you and Mark. I hope all the lead up work is soon completed and a liver becomes available very soon.
Marg

Barbara P
Regular Member


Date Joined Feb 2006
Total Posts : 256
   Posted 3/9/2006 11:00 PM (GMT -7)   

Hi Theresa,

It sounds like things are moving quickly and hopefully smoothly. Wouldn't it be a blessing if Mark didn't have Hepatitis C. My prayers are with you and for Mark, Michael and you my dear one. I'm glad the doctors are moving quicly. Hang in there during all the testing; I know the days ahead will be fatiguing but there is light at the end of the tunnel.

Hugs and prayers,

Barb


                     LIVE IN THE MOMENT!
 
                          Hugs and Prayers
                                     Barb
 
 
 
 


lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 3/11/2006 9:59 AM (GMT -7)   
Hi Teresa,that was a long time, They must have been pretty thorough.Poor mark would be exhausted.These procedures do take so much out of us.doesn't seem to matter how exhausted we are if the liver says no sleep then its no sleep & ifwe feel very awake we can also suddenly become extremely tired too. Sleep is another part of the rollercoaster ride.I am very glad to know he is doing better today.I can understand your anxiety,all the waiting,not knowing whats comming next or how Mark is going to be 4 hrs from now let alone tommorrow. Waiting for test results etc. sweetie PLEASE make sure you take care of yourself to for your health. Also so you don't get meltdown.I worry about both you & Mark.I pray do Mark does not have Hep C. one less complication goes a long , long way in his recovery after transplant.My thoughts & prayers are with you, Mark & of course young Michael.Love & Hugs. Later.....
"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.
 
Valerie


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/11/2006 8:37 PM (GMT -7)   
Theresa, I also pray that Mark doesn't have hep C. That's something I hadn't even thought of...antirejection meds and hep C meds combined. If he does have hep C, though, they would not start treatment until Mark is recovered from the transplant and is stable. That was a very long time in the MRI. I personally have problems staying still that long, as my neck and hips hurt.

My thoughts are with you, as always.

Connie

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/14/2006 10:47 PM (GMT -7)   
"poor IV access"

I have a huge problem with this, also. If they are taking blood, I can drink a lot of water first to plump my pitiful veins. With IV access, though...with no food or drink for hours beforehand...they have a hard time.

Theresa, did they say when they would have the results of the hep C test? It shouldn't take long.

Connie

Barbara P
Regular Member


Date Joined Feb 2006
Total Posts : 256
   Posted 3/16/2006 8:16 AM (GMT -7)   

Hi Theresa,

You are absolutely correct. Aldactone raises potassium levels and Lasix depletes it. And the both together cause dehydration. It infuriates me when medical people don't know what they are talking about but their egos are too large to admit they don't know or made a mistake.

GRRRR,

Barb


                     LIVE IN THE MOMENT!
 
                          Hugs and Prayers
                                     Barb
 
 
 
 


lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 3/16/2006 7:47 PM (GMT -7)   
Hi Barb, I'm with you on these Drs. later....
"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.
 
Valerie


wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 3/24/2006 10:16 PM (GMT -7)   
I am a little confused about the tests for hep C,my husband was originally diagnosed with hep b AND c,,but after the rna test they determined the first test was a false positive for c :shrugs: ,something about the first test has a higher incidence of false positives,but is cheaper and is done first,then the more detailed rna testing. It took about 2 weeks to get the rna tests back,hopefully this will be a case of false positive! Good luck!
trish

PN16
Regular Member


Date Joined Oct 2005
Total Posts : 98
   Posted 3/27/2006 6:37 PM (GMT -7)   
Teresa -

Hang in there - will you have to do all the tests over for the transpant? You must be wrecked - thinking of you and Mark.

Patty

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 3/28/2006 4:23 AM (GMT -7)   
Hi Teresa, Hang in there sweetie.Let us know how it goes on the 13th. Hope the IBS isn't flared to bad with all the stress you are under. Take care of yourself .Thankyou for all the support you gave Bruce while I was in hospital. It was greatly appreciated. Love & Hugs. My thoughts & prayers are with you,Mark & young Michael. later....
"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.
 
Valerie


PN16
Regular Member


Date Joined Oct 2005
Total Posts : 98
   Posted 4/3/2006 8:13 PM (GMT -7)   
Teresa -

Hang in there - all of those tests again - augh - well you can just go one step at a time and do the bits you can do - remember to eat and rest:)
My Dad is doing well thank you:)

Have a great day - good thoughts comming your way.

Patty

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 4/3/2006 8:54 PM (GMT -7)   
Hi Teresa, I continue to pray for Mark that he will be on the list & recieve a transplant very soon. Hang in there.

Hi patty, glad to hear your dad continues to be well. My thoughts & prayers are with you all. later...
"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.
 
Valerie


Marg57
Regular Member


Date Joined Dec 2005
Total Posts : 446
   Posted 4/4/2006 12:24 AM (GMT -7)   
Hi Theresa. I too hope Mark will soon be on the transplant list and that a liver becomes available very soon. Take care. My prayers are with you.
Marg

PN16
Regular Member


Date Joined Oct 2005
Total Posts : 98
   Posted 4/4/2006 12:57 AM (GMT -7)   
Hey Valerie - glad to see you typing away:) Talk to you soon my shift is now ending.


Patty

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 4/4/2006 7:11 AM (GMT -7)   
Hi Patty,thankyou, glad to see you hear too. Looking forward to hearing from you again real soon. My thoughts & prayers are with you & your dad. How's your dad doing?Hope he is continuing to be stable. Take care. Love & hugs. later....
"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.
 
Valerie

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