1993 intron a Hep C cured! Found secret to losing weight after tx and fixing my fatty liver and ALT

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cured4real?
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Date Joined Dec 2005
Total Posts : 1944
   Posted 3/14/2006 4:15 PM (GMT -7)   
I have been PCR neg since1993, but had trouble with fatty liver since tx and was becoming morbidly obese and my liver enzymes and other stuff was out of whack and getting worse.  I felt I was dying, that maybe tx didn't work.  I recently went to Borland-Groover Clinic in Jacksonville, they are a GI facility that does research and are state of the art, so to speak.  I had been told that my hep was coming back, but no one could find virus.  It turned out that the hepatitis, or perhaps treatment, had caused hyperinsulinemia, though my blood sugar was normal.  Apparently this is a common finding in people with fatty liver, they said.  My fatty liver was not there in my pre tx biopsy, but there in my post tx biopsy.  Anyway, I've started a insulin resistant diet and have lost over 60 pounds since December.  The bummer was that I had to go to so many doctors just to have a simple test run and to find this out and I hurt my body so much for the last 13 years.  My levels are normal and I was told that I am not likely to ever go out of remission, but I like to believe I'm cured, since I believe there are healings out there for people, though they are not always what we expect.  I still have medical problems, but this was a big piece of the puzzle.

lerie
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Date Joined Nov 2005
Total Posts : 966
   Posted 3/14/2006 5:44 PM (GMT -7)   
Hi Cured4real.welcome to HW forum. I'm not really sure what you are talking about here.Fatty liver generally derives from cirrhosis of the liver caused by alcohol or NASH which covers a wide variety of insults to the liver that cause cirrhosis including diabetes,drug use, obesity, malnutrition & a host of other factors. Do you have cirrhosis from the obesity? or other factors? Hep C can come back & can apparantly hide in other organs. But I don't know what the stats are for this.My hubby had Hep c & has tested clear so far for the last 5 years. he also has to have liver function tests done yearly in case any liver dammage developes.I have cirrhosis (end stage) from prescription drugs & of course later malnutrition. That puts me in the NASH catagory.Cirrhosis can cause us to become insulin resistant, which is one more reason to be cautious what we eat & follow our Hepatologists instructions whatever they may be for each one of us. Progression of cirrhosis can be drastically slowed thru taking good care of ourselfs & using caution
Sounds like losing the 60 pounds was excellant for you. Congradulations for losing weight is never an easy feat. Obesity can worsen cirrhosis thats for sure & morbid obesity can cause cirrhosis. Claim you healing for now & continue to follow your Hepatologists recommendations. Once again welcome, you will find a great deal of support & meet caring people here. Please feel free to browse thru the other posts here & join the conversations. Take care. later....
 

Post Edited By Moderator (~Jennifer~) : 3/31/2006 5:31:53 AM (GMT-7)


Marg57
Regular Member


Date Joined Dec 2005
Total Posts : 446
   Posted 3/14/2006 7:01 PM (GMT -7)   
Welcome to the Forum Cured4all. I certainly hope you have that magic cure. I am stable. Cirrhosis kept under control with meds, and careful diet. Good luck
Marg

Barbara P
Regular Member


Date Joined Feb 2006
Total Posts : 256
   Posted 3/14/2006 8:03 PM (GMT -7)   

Welcome cured4real?,

I'm glad you found us. And it's better late than never when trying to get answers to our medical issues. I don't know much about your fatty liver and insulin resistence. My husband has cirrhosis and esophageal cancer but is currently stable except for iron deficiency anemia.

I'll be praying for your healing to continue. And looking forward to further posts from you.

Hugs,

Barb


                     LIVE IN THE MOMENT!
 
                          Hugs and Prayers
                                     Barb
 
 
 
 


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/14/2006 10:29 PM (GMT -7)   
Welcome, cured4! I have chronic active hep C and liver cancer...about to undergo treatment for the cancer. I had tried the interferon A...two brief rounds...and both times developed severe leukopenia and had to stop the treatment. It's great that you seem to be in remission or cured of the hep C! It's interesting about the fatty liver and insulin problem/wt. gain. I've never heard of that being a side effect of treatment. Did you drink or resume drinking? I've only heard of fatty liver as a result of alcohol abuse, but I am sure there are other causes.

BTW, I know of the Borland Clinic and it has an excellent reputation. I also live in Jacksonville and am being treated at Mayo Clinic, for which I feel very fortunate.

Congratulations on the weight loss! WTG! Heck, I can't even lose the 15!

Please come back again. You have a lot to offer here. :)

Connie

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 3/14/2006 10:58 PM (GMT -7)   
Hi Connie, NASH can also cause a fatty liver in the beginning but as the liver shrinks unlike alcohol cirrohosis we lose the fat on the liver. NASH has many causes that are non alchoholic.Just in case your interested. God Bless. later....
"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.
 
Valerie


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/16/2006 4:53 AM (GMT -7)   
Lerie, thanks for the info. What does that acronym (NASH) stand for...nonalcoholic ------hepatitis?

C.

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 3/16/2006 8:31 PM (GMT -7)   
Hi Connie, NASH stands for non alcoholic steatosis hepatitis. NAFLD is another one that causes fatty liver but I don't have a clue what the letters stand for. so folks alcohol is not the only cirrhosis to cause a fatty liver tho it is the most popular one. hope this info helps. Later....

"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.
 
Valerie


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/16/2006 11:33 PM (GMT -7)   
Lerie, my father committed suicide and I was sent the autopsy report (many years ago.) They mentioned that he had a fatty liver and I know he drank too much...but they didn't say anything about cirrhosis. So I guess it's possible to have a fatty liver w/o cirrhosis.

I have a medical acronym book, but am too lazy right now to get out of bed and go to the other room to get it.

How is your sleep going? I see you are up rather late. I need to get to sleep soon myself, as I will have to get up to get ready to go out with my helper tomorrow.

Connie

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 3/16/2006 11:46 PM (GMT -7)   
Hi Connie, They assume everyone knows that fatty liver, fibrosis, enlarged liver etc etc. that we should automatically know it means cirrhosis but we don't. Yes Hon It does mean he had the onset at the very very least of cirrhosis. When I went into my first comma my liver was enlarged almost 3 x its normal size. I didn't know that meant I had cirrhosis let alone end stage. It was after my second comma they fully explained it & that was why I had liver failure to begin with was end stage cirrhosis. My sleep is badly inveted again & only 5 hours in the morning but sometimes I sleep almost all day sometimes when the toxins are too high I don't sleep at all. I don't remember what normal sleep is. later. Your up awfully late too I see ! later....
"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.
 
Valerie


cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 3/30/2006 10:21 PM (GMT -7)   
Point taken lerie and thanks all for kind replies!  I'm glad to hear people talk about NASH and NAFLD (non alcoholic fatty liver disease) since I had to endure comments about my grandmother's secret alcoholism upon her death, because she died from advanced liver disease in her early sixties. 
 
My grandmother had and my father and I have NAFLD. 
My grandmother had type II diabetes, was about 40-60 lbs overweight, and died at home of ruptured esophageal varices due to advanced liver disease she didn't know she had. 
My father has type II diabetes, steatosis and mild cirrhosis doctors attribute to his diabetes.
I have hyperinsulinemia(hypoglycemia) with severe steatosis w/o signs of cirrhosis they tell me. They don't always tell me everything...
 
I have hx of HCV, my father and grandmother do not.  My father was tested and a test was not available at the time of my grandmothers death.  We do not have autoimmune hepatitis. 
 
So far, tx seems to be working for me, even with my added liver problem NAFLD, so I just want to be encouraging.  HCV, not tx, was responsible for my body being out of whack afterwards.  I double checked and the Merck Manual confirmed for me what my doctor told me, "Extensive liver disease--for example from viral hepatitis, cirrhosis, or cancer--may also produce hypoglycemia (796)."
 
Which reminds me, I learned that I blamed a lot of post-tx health issues on tx when they were really caused from HCV.  I just couldn't believe that this virus I didn't even know I had had done and was doing so much covert damage, and I am so glad I got treatment. 
 
I gained 110 pounds in the 13 years after tx (a slow steady gain) and some was definitely the result of simply aging. I had struggled in vain for years to lose weight after tx, and it seemed impossible.  Though the HCV was under control, my obesity was killing me.  It certainly assisted, if not solely caused my NASH, for once I lost 60 pounds, my enzymes became normal.  I blamed tx for my weight gain, but it was actually a totally separate issue, triggered perhaps by HCV or some other yet undiscovered problem.  But definitely not tx.
 
I just wanted you all to know that there is someone out there who had tx and its still working after so many years, despite bumps in the road. I wish everyone the best and will pray for all of us that peace, comfort, healing, and joy is showered upon us all.

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 3/30/2006 11:57 PM (GMT -7)   
Hi Cured, Glad to hear that treatment worked well for you.Thankyou for sharing this information with us & you are encouraging.I truly hope the tx continues working for you.nice to see you here again. My thoughts & prayers are with you. later....

"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.
 
Valerie


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/31/2006 2:35 AM (GMT -7)   
Thanks for posting, Cured. That's a lot of info! I totally agree on getting treatment. I declined to even try the combo treatment because I would have to have another liver biopsy. The first one I had was so awful (nothing at all given to me prior, not even Valium, and I had such pain) that I was chicken about having another biopsy. So now I lie here with inoperable liver cancer that is going to kill me. I feel really foolish. People need to follow through with treatment before the hepatitis turns into a deadly disease.

Please keep us posted on your progress.

Connie

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 3/31/2006 10:47 AM (GMT -7)   
Hi Connie, Thankyou for sharing this with us & the great advice.I think the fear of pain was a normal response for which you paid a heavy price. My heart goes out to you sweetie.My thoughts & prayers are with you. I am here for you. Hugs. later....
"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.
 
Valerie


rivcal
New Member


Date Joined Apr 2006
Total Posts : 1
   Posted 4/30/2006 7:29 AM (GMT -7)   
He doesn't say what he did to cure his problem!!!!!!!!!!
and he doesn't have a email where we can contact him!

I have a weight problem that restricted calories and exercise do not help. Once doctors realize this, they say they don't know what to do. I had a doctor business partner with whom I stayed with for just over a week. The comment was, "I thought for sure you were a silent, oblivious snacker, but you have been here for over a week. I am half your size and could not survive on the small amount of food that you eat." In fact, the doctor insisted that I increase the amount of food. That has made me feel better. My weight does not go up or donw. I am at a 55% body fat. I eat about 1500 to 1800 calories per day, now.

So I would like to know what this man did.
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