Prayers needed urgently!!!!

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TDT
Regular Member


Date Joined Jan 2006
Total Posts : 402
   Posted 3/23/2006 5:04 PM (GMT -7)   
Hello all,
I just receive some news from Barbara. Gene is having increased Encephalopathy today and his condition has worsened all day. Barbara is very worried that he is nearing a coma. I am asking all to Pray for Gene and Barbara. I know this is a very difficult thing to go through!
Barbara my Dear friend my Prayer's are with you and Gene. May the good Lord watch over you today!
 
My Love and Hugs,
 
Teresa

donajean
Regular Member


Date Joined Jan 2006
Total Posts : 141
   Posted 3/23/2006 6:46 PM (GMT -7)   
 
 
Ms. Barbara,
 
Teresa got a hold of me like you had asked. My heart goes out to you my Friend!
 
I will continue to pray that the Good Lord keep his Angels with you both.
 
Surely Goodness and Mercy Shall follow you all the Days of your Life...
 
We Love you! Warm Hugs
 
donajean....
 
 
Valerie,
 
Girl Friend where are you? We have been thinking about you all day...We  hope and pray you are alright in your situation.
 
We also Love You and are praying for the Good Lord to shelter you! Big Hugs

PN16
Regular Member


Date Joined Oct 2005
Total Posts : 98
   Posted 3/24/2006 9:50 AM (GMT -7)   
For Barbara too - prayers ...

I'm going to walk the dogs and pray the whole way - you all are in my thoughts

Neurotransmissing
Veteran Member


Date Joined Dec 2005
Total Posts : 952
   Posted 3/24/2006 11:11 AM (GMT -7)   
Joining the prayer chain!!!
 
Gene & Barbara, my prayers follow you!
Psalm 3:5;6;7;8
"Trust in the LORD with all your heart and lean not on your own understanding;"
"in all your ways acknowledge Him, and He will make your paths straight."
"Do not be wise in your own eyes; fear the LORD and shun evil."
"This will bring health to your body and nourishment to your bones."


chrisinwis
Regular Member


Date Joined Jan 2006
Total Posts : 28
   Posted 3/24/2006 12:34 PM (GMT -7)   

To Lerie,

You were there for me at all time and set my mind at rest about my sons alcoholism.

I pray that God is looking over you now in your hour of need.  Thanks for everything.

                             Chris


Marg57
Regular Member


Date Joined Dec 2005
Total Posts : 446
   Posted 3/24/2006 7:59 PM (GMT -7)   
Barbara & Gene. You are in my prayers and thoughts. I will look forward to posts telling us of Gene's improving condition. Stay strong.
Marg.

Barbara P
Regular Member


Date Joined Feb 2006
Total Posts : 256
   Posted 3/25/2006 5:23 AM (GMT -7)   
My dear friends,
 
Thank you all for your kind words, support and most of all prayers.
 
Gene still has severe encephalopathy but has stabalized and appears to be gradually improving. I know all your prayers and Donna's angels have helped get us through these frightening times.
 
The most frustrating part is the doctors cannot determine the cause or causes for Gene's sudden decline. Yes, I saw subtle indications for days, but on Thursday he was near the coma stage.
 
All Gene's lab results have been normal or near normal. He should be dancing the Polka; but he isn't. His iron levels have returned to normal and perhaps his toxcity is from the short term iron supplements. Bless your heart Val, you warned us but we had no other options.
 
His Doctor yesterday thought perhaps the low iron reading earlier this month was an error; that could have been a fatal mistake but is typical of the medical care we receive or don't receive.
 
We're awaiting results of the culture to rule out a UTI.
Another time I'll post our most recent nightmare experience with the medical establishment.
 
Bless all of you,
Barb
                     LIVE IN THE MOMENT!
 
                          Hugs and Prayers
                                     Barb
 
 
 
 


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/25/2006 8:53 AM (GMT -7)   
Barb, I'm so glad to hear that Gene is showing improvement. My continued thoughts and prayers for you two, and also for Valerie and Bruce.

Connie

Neurotransmissing
Veteran Member


Date Joined Dec 2005
Total Posts : 952
   Posted 3/25/2006 10:10 AM (GMT -7)   
I'm still linked to this prayer chain, as posted in the other thread link as well.

(((HUGS)))
Psalm 3:5;6;7;8
"Trust in the LORD with all your heart and lean not on your own understanding;"
"in all your ways acknowledge Him, and He will make your paths straight."
"Do not be wise in your own eyes; fear the LORD and shun evil."
"This will bring health to your body and nourishment to your bones."


Barbara P
Regular Member


Date Joined Feb 2006
Total Posts : 256
   Posted 3/25/2006 10:28 AM (GMT -7)   

Thank you Cindy,

It's working for Valerie and Gene. They both have a ways to go.

Hugs,

Barb


                     LIVE IN THE MOMENT!
 
                          Hugs and Prayers
                                     Barb
 
 
 
 


Barbara P
Regular Member


Date Joined Feb 2006
Total Posts : 256
   Posted 3/25/2006 1:17 PM (GMT -7)   
Hi everyone,
 
All the prayers worked. yeah
 
Gene slept in this morning. When he got up, he was almost back to his "normal" self. I'm relieved and overjoyed. I couldn't have done it without all of you. Especially Donna and Teresa who stuck by me the whole time; love you girls.
 
We will never know the cause of this encephalopathy which came on suddenly and cleared the same way. But I'm certain all the prayers and positive energy are responsible for Gene's healing.
 
My continued prayers for Valerie and Bruce and all my friends on the forum. Thank you Cindy for finding us in our moment of need.
 
Love you all,
Barb
                     LIVE IN THE MOMENT!
 
                          Hugs and Prayers
                                     Barb
 
 
 
 


Marg57
Regular Member


Date Joined Dec 2005
Total Posts : 446
   Posted 3/25/2006 2:15 PM (GMT -7)   
Such good news. May he continue to improve and suffer no more of these sudden declines. I'll continue to pray for you both.
Marg

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/25/2006 9:58 PM (GMT -7)   
That's very good news, Barb!

TawnyaM
New Member


Date Joined Feb 2006
Total Posts : 16
   Posted 3/25/2006 11:26 PM (GMT -7)   
Barbara,

Donna told me about your husband, I am so glad to hear he is doing better, I will keep you in my prayer list. {{{{HUGS}}}}
Mom of 3 children, 2 Stepchildren, & a 3 year old Grandson!
Ive been Married to my husband for 15 years, I am 31 years old! My husband has HepC, in January 06 I lost my Daddy to HepC...  R.I.P. Daddy!
 


III
Regular Member


Date Joined Feb 2006
Total Posts : 91
   Posted 3/26/2006 9:41 AM (GMT -7)   

Barb,

I'm also praying....I hope everything goes smooth for you and your husband Gene.  I pray for everyone on this forum.....

hugs to all....

 

 


Neurotransmissing
Veteran Member


Date Joined Dec 2005
Total Posts : 952
   Posted 3/26/2006 11:08 AM (GMT -7)   

Barb,

Thanks for posting this update!  I'm so tickled to hear this wonderful news!!!

Prayers continue on my part, until this runs through to FULL COMPLETION.

(((HUGS)))

 

~ Cindy


Psalm 3:5;6;7;8
"Trust in the LORD with all your heart and lean not on your own understanding;"
"in all your ways acknowledge Him, and He will make your paths straight."
"Do not be wise in your own eyes; fear the LORD and shun evil."
"This will bring health to your body and nourishment to your bones."


Barbara P
Regular Member


Date Joined Feb 2006
Total Posts : 256
   Posted 3/27/2006 12:43 PM (GMT -7)   
Hi Everyone,
 
Gene keeps fluctuating back and forth between encephalopathy and feeling better. We made it to the Hepatologist consultation this morning. This is the doctor who has been there for us and who we trust. He seems to be on the same track as we are.
 
The doctor agrees with me that Gene;s current problerms are liver toxcity from the iron supplements but that there should be no permanent damage. He thinks the March 1st anemia readings were errors because anemia does not improve that fast. However people with Esocphageal cancer usually don't live two years without tx or progression of the disease.
 
The doctor listened patiently and answered all our questions. Gene discussed the mild chest pains hes had a few times this past week. I'm hoping they are from the resolving toxcity rather than heart problems. We're waiting to hear how they will follow up with this.
 
We both also seem to have a touch of the stomach flu.
 
And Val, sweetie, it's so wonderful to have you back with us. I felt so touched to have your IM on my PC when I woke this morning. It was an honor to support Bruce through this crisis.You have been here for us and would do the same thing for us. But please don't rush into things; your body needs to rest and heal. We love you.
 
Barb
                     LIVE IN THE MOMENT!
 
                          Hugs and Prayers
                                     Barb
 
 
 
 


TDT
Regular Member


Date Joined Jan 2006
Total Posts : 402
   Posted 3/27/2006 3:15 PM (GMT -7)   

Hi Barb (Ma),

I hope the encephalopathy stablizes for Gene. Glad to hear he is doing better!! I will keep you and him in my Prayers!!!

Love, Hugs, and Prayers

Teresa


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/27/2006 4:50 PM (GMT -7)   
Barb, thanks for keeping us updated. I am glad you and Gene were able to meet with the hepatologist today.

Continued prayers for you both.

Hugs,
Connie

PN16
Regular Member


Date Joined Oct 2005
Total Posts : 98
   Posted 3/27/2006 6:27 PM (GMT -7)   
Barb -

So glad to get through this thread with good news. Hang in there - remember to rest when you can and eat so you have energy for Gene when he doesn't.

You both are in my prayers.

Patty

Barbara P
Regular Member


Date Joined Feb 2006
Total Posts : 256
   Posted 3/27/2006 6:39 PM (GMT -7)   

Hi Everyone,

Gene seems to get weaker and weaker as the day progresses; I'm so frustrated that neither his doctor or the Complex Chronic Care nurse returned my calls.

This up and down Encephalopathy is driving me over the edge. From hour to hour I don't know how he is going to be. This evening it took him a half hour just to put his clothes back on after sleeping for five hours this afternoon.

This morning he was fairly with it; but by the end of the appointment he was slipping back into E.

What can I do? As soon as I post good news, he regresses.

I couldn't do it with out all my friends on the forum.

Barb


                     LIVE IN THE MOMENT!
 
                          Hugs and Prayers
                                     Barb
 
 
 
 


PN16
Regular Member


Date Joined Oct 2005
Total Posts : 98
   Posted 3/27/2006 6:59 PM (GMT -7)   
Barb -

Maybe you have to roll with it? Even though my Dad is feeling well it is like you described one day he is good the next I'm thinking I'll be living back with him before I know it?? When he was real sick it was like that too. It really sucks (pardon my french)

So I guess what I'm saying is don't have any expectations and know its going to be up and down - (easy to say hard to deal with when your the caretaker!!!)

I sure hope this is comming across the way I mean it -

Hang in there and don't forget to rest and eat.

Patty

lerie
Veteran Member


Date Joined Nov 2005
Total Posts : 966
   Posted 3/27/2006 7:10 PM (GMT -7)   
Hi Barb,I am sorry to hear you & Gene are going thru this. Are you ok hon?I do hope things settle again very soon. My heart goes out to you sweetie.Please know I am here for you Barb.I know how hard it is to deal with this day in & day out never knowing what the next few hours may hold. You are not alone Barb. We are here for you. My thoughts & prayers are with both you & Gene. Love & Hugs. later....
"There is at least one good thing in each and every day we just have to find it and if we look hard enough we will.Somedays we just have to look a little harder than others,but its alway's there.
 
Valerie


wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 3/27/2006 8:18 PM (GMT -7)   
Barb,
You are such a strong woman Barb. My heart goes out to you and I will pray for you and Gene.
trish

Barbara P
Regular Member


Date Joined Feb 2006
Total Posts : 256
   Posted 3/28/2006 6:26 PM (GMT -7)   

Hi Friends,

Gene is having one of his better days. We saw the doctor and repeated all the lab tests. Everything came back fine and the EKG was normal. We're still awaiting the iron reading which will determine which reading was incorrect.

I'm a wreck but pleased Gene is bouncing back again. What frustrates me is not knowing what is setting him off so we can't do anything to head off problems. As soon as I post he has a problem he rebounds; then when I post he's better another problem pops up. I need to learn to take everyday as it comes; good or bad.

Love you all,

Barb


                     LIVE IN THE MOMENT!
 
                          Hugs and Prayers
                                     Barb
 
 
 
 

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