Hi Mel99, Welcome to the forum. My husband is going to have a transplant also, different area though. When we were in Memphis they had like a foundation house, I had to pay for it but they did have grants available for those who had transplants but not able to afford the shelter. The transplant social worker for your brother might know of one in your area. There may be a Ronald Mcdonald house near the hospital, it worth checking into. Good Luck!!
Connie, when I talk of foundation house, for instance I stayed at the Nora house in Memphis it was started by a Doctor who lost his young daughter to liver disease. It provides affordable rooms and has a community kitchen. It is funded by donations and grants. Those who are unable to pay for the rooms and in financial hardship can qualify or be given a certain amount of days there at low to no cost. My understanding of the Ronald Mcdonald House, I believe will also help Adult patients as well as their family member/care giver, I could be wrong. It is worth checking into. The transplant social worker would know if there are any of these houses around. The nursing home as you suggested is a good idea also.
Connie and Teresa,
Thanks for your suggestions. When I talked to my brother's transplant coordinator, she said they do not have any housing for post-transplants. I know Shands in Gainesville has a Ronald McDonald house, but apparently Jackson Memorial in Miami does not. I am going to make a call myself to Jackson to see if there is some mix-up. Maybe I was not given the right info initially. Maybe I'm not asking the right questions. Anyways thanks again, I may be back soon to ask you veterans more questions. Thank you so much for your time and help!!!!
Post Edited (hep93) : 6/16/2006 6:03:20 AM (GMT-6)
Fiance had HCV, cirrhosis, ESLD, ascites, and portal hypertension. Was transplanted June 2004. Now, on interferon and ribavirin. Hepatitis C is back.
Thank you so much!!! I will check it out!