Assisted Living after Liver Transplant?

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Mel99
New Member


Date Joined Apr 2006
Total Posts : 3
   Posted 6/12/2006 8:03 AM (GMT -7)   
Hello All,
 
   Can someone please help me with trying to begin my search for a place to stay after the liver transplant.  My brother is on the list and we live in Orlando.  Once he is called - I will be taking him to either Broward Medical or Jackson Memorial in South Florida.  My concern is that after the transplant the Hospital in Ft. Lauderdale (Broward General) is needing my brother to stay near for check-ups several times a week for probably a month or so.  My brother only has Medicaid and I don't know where to begin to find him a safe and reasonably priced place to stay during this recovery time - maybe Medicaid would cover?  PLEASE if anyone has any ideas - let me know.  Thank you!!!
Mel99

TDT
Regular Member


Date Joined Jan 2006
Total Posts : 402
   Posted 6/12/2006 2:41 PM (GMT -7)   

Hi Mel99, Welcome to the forum. My husband is going to have a transplant also, different area though. When we were in Memphis they had like a foundation house, I had to pay for it but they did have grants available for those who had transplants but not able to afford the shelter. The transplant social worker for your brother might know of one in your area. There may be a Ronald Mcdonald house near the hospital, it worth checking into. Good Luck!!

Hugs,

Teresa


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/12/2006 3:03 PM (GMT -7)   
Mel99, welcome to the forum! Which hospital is the main transplant doctor affilliated with? It would seem that would be the hospital your brother would go to. Just on reputation, I would choose Jackson Memorial if there is a choice. (I lived in Miami for 10 years.) I know that Medicaid pays for nursing homes, but he would need to go directly from the hospital. I don't see that as a problem. The question is how much medical attention would he need after the transplant. Also, how long would he be in the hospital?

I know there are a couple of members here who have had transplants or are caretakers of those who are post-transplant. Perhaps they can offer some suggestions. Also, there should be a transplant coordinator at both hospitals. Contact them for suggestions.

I hope this helps a little, and that your brother's transplant is a great success!

Connie

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/12/2006 3:07 PM (GMT -7)   
Teresa, I know there is definitely a Ronald McDonald House near Jackson Memorial in Miami. Do they house family members of adult patients or the patients themselves following transplant? When you mentioned a foundation-run residence, do you mean the American Liver Foundation?

Hugs,
Connie

TDT
Regular Member


Date Joined Jan 2006
Total Posts : 402
   Posted 6/12/2006 4:30 PM (GMT -7)   

Connie, when I talk of foundation house, for instance I stayed at the Nora house in Memphis it was started by a Doctor who lost his young daughter to liver disease. It provides affordable rooms and has a community kitchen. It is funded by donations and grants. Those who are unable to pay for the rooms and in financial hardship can qualify or be given a certain amount of days there at low to no cost. My understanding of the Ronald Mcdonald House, I believe will also help Adult patients as well as their family member/care giver, I could be wrong. It is worth checking into. The transplant social worker would know if there are any of these houses around. The nursing home as you suggested is a good idea also.

Hugs,

Teresa


Mel99
New Member


Date Joined Apr 2006
Total Posts : 3
   Posted 6/13/2006 7:31 AM (GMT -7)   

Connie and Teresa,

    Thanks for your suggestions.  When I talked to my brother's transplant coordinator, she said they do not have any housing for post-transplants.  I know Shands in Gainesville has a Ronald McDonald house, but apparently Jackson Memorial in Miami does not.  I am going to make a call myself to Jackson to see if there is some mix-up.  Maybe I was not given the right info initially.  Maybe I'm not asking the right questions.  Anyways thanks again, I may be back soon to ask you veterans more questions.  Thank you so much for your time and help!!!!

Melissa


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/13/2006 10:25 AM (GMT -7)   
Melissa, I could be wrong about RMD House in Miami. I haven't been there in 20 years, so my memory could be faulty, or perhaps they had one and it no longer exists. You would think that a transplant coordinator would have a list of low-cost or free places to stay, though.

Good luck!

Connie

Post Edited (hep93) : 6/16/2006 6:03:20 AM (GMT-6)


DesertJules
Regular Member


Date Joined Mar 2005
Total Posts : 142
   Posted 7/12/2006 8:03 PM (GMT -7)   
Mel99,

I looked on the Jackson Memorial website and they (apparently) offer short-term housing at Jackson Medical Towers Apartment Rentals. www.um-jmh.org/body.cfm?id=142 - gives a number that you can call for rates.

Everything else on the website regarding housing is an outdated list of local hotels/ motels, some of which offer monthly rates. www.um-jmh.org/body.cfm?id=141

Hope that helps.
DJ

Fiance had HCV, cirrhosis, ESLD, ascites, and portal hypertension. Was transplanted June 2004.  Now, on interferon and ribavirin. Hepatitis C is back.

If God brings you to it, He will bring you through it.

Mel99
New Member


Date Joined Apr 2006
Total Posts : 3
   Posted 7/13/2006 6:03 AM (GMT -7)   

Thank you so much!!!  I will check it out!

Mel

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