I went and picked up a copy of my biopsy results. My appointment isn't until August 2nd, but I couldn't wait any longer. Stage 4 micronodular cirrhosis with moderate to severe inflammation and moderate to severe steatosis. Even though it doesn't look too good, I'd rather know SOMETHING than sit around for 3 weeks. I'm not sure if this will be treatment or start looking for a donor.
I looked up steatosis and found some more symptoms that I've been experiencing, such as achy joints and cotton mouth.
I can wait for the doctor now.... For some reason, I'm more relaxed.
You are very brave reading your biopsy report on your own. I'm glad you're relaxed and ready to wait for your August appointment.
Whether it's time for treatment or a transplant, we are all here for you. You are in my thoughts and prayers.
Post Edited (RutRow) : 8/7/2006 11:11:57 AM (GMT-6)
Post Edited (RutRow) : 9/16/2009 11:47:25 PM (GMT-6)
Rutrow!! So good to hear from you after all this time! I'm really glad to hear that the combo treatment worked for you. I sincerely hope that you are still in remission. As I'm sure you know, there is about a 50% relapse rate. If the hep C surfaces again, would you be willing to go through treatment again?
Yes, you should be followed at least every 6 mos. For a long time, I was seen every 3 mos. by my PMD and also by my hepatologist.
Since you mentioned Orlando and St. Luke's, I put together that you are in Jacksonville (so am I), as so many retired Navy are. I remember hearing something about veterans having a high incidence of hep C, though I didn't know exactly how they contracted it. Was the hepatologist you saw at St. Luke's with Mayo? The Transplant Center that was at St. Luke's is now at Mayo in their new hospital. It's so nice to have everything in one place and not have to shuttle back and forth between Mayo Clinic and St. Luke's Hospital. I was/am seen in the Transplant Center although I never had a transplant...but that's where the hepatologists are.
I'm sorry to hear that you have developed diabetes, but you will definitely have a healthier diet! Diet really is important in liver disease. Try not to eat beef (it's the most difficult protein for the liver to break down) and eat lots of fresh fruits and veggies. NO alcohol, of course. And--lucky you--there are now whole wheat pastas, which you should be able to eat. ;)
Please do post more often and thanks for bringing us up to date!
Rutrow, I haven't seen the relapse rates as related to viral loads. It's just been noted that there is a 50% relapse rate. Genotypes 1a and 1b, which are the predominant strains in the US, are the most difficult to treat. But think positive!!
It takes a long time to get blood sugar under control, learn about diet, etc. The classes you have scheduled will be very helpful to you. It will work out and be like second nature! Hang in there!