Hepatitis Resources

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Admin
Forum Administrator


Date Joined Jan 2003
Total Posts : 9343
   Posted 10/23/2003 10:57 AM (GMT -7)   
So you found our forum, but do you know about all the wonderful resources HealingWell.com has to offer?  You have a number of places to start:
  • Top and bottom page navigation links to information, articles, video webcasts, resources, newsletter, books and much more.
  • Direct links to topic disease-specific areas (see right column) which change based on the forum you are viewing.
  • As always, you can visit the Hepatitis Resource Center located at http://www.healingwell.com/hepatitis/ for all this and more.

Take a moment to explore, we hope that you will stay awhile and visit HealingWell.com often.


Peter Waite, Founder/Editor
HealingWell.com - Community, Information, Resources
www.healingwell.com

Post Edited (Admin) : 11/22/2005 12:00:44 PM (GMT-7)


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/8/2013 1:22 PM (GMT -7)   
HEP C TREATMENT INFORMATION/MEDICATION ASSISTANCE PROGRAMS:

GILEAD SCIENCE- Harvoni and Solvaldi (sofosbuvir) www.gilead.com/responsibility/us-patient-access

JANSSEN- Olysio (simeprevir) www.janssenprescriptionassistance.com/olysio-cost-assistance

GENENTECH/ROCHE-Pegasys www.pegasys.com/patient/patient-support/access-solutions

KADMON PHARMACEUTICALS/AMGEN - For interferon (Infergen) or ribavirin (Ribasphere) www.kadmon.com

MERCK www.merck.com/contact/contacts.html

B0CEPREVIR(Victrelis) www.victrelis.com

XIFAXAN (rifaxamin)cdn.salix.com/xifaxan550/assets/pdf/xifaxan-patient-assistance-program-application.pdf


RATE DOCTORS
www.ratemds.com/
www.vitals.com/
www.healthgrades.com

Post Edited By Moderator (themiz) : 10/10/2014 6:48:30 PM (GMT-6)


themiz
Forum Moderator


Date Joined Feb 2013
Total Posts : 1187
   Posted 9/19/2014 4:06 PM (GMT -7)   
OVERVIEW OF LIVER DISEASE www.merckmanuals.com/home/liver_and_gallbladder_disorders/manifestations_of_liver_disease/overview_of_liver_disease.html

STAGES OF CIRRHOSIS www.livestrong.com/article/240024-what-are-the-4-stages-of-cirrhosis/

STAGES OF HEP C www.livestrong.com/article/145624-what-are-the-different-stages-of-hepatitis-c/

HEP B www.hepb.org/

AUTOIMMUNE HEPATITIS www.healthline.com/health/autoimmune-hepatitis#Treatment6

ALCOHOLIC LIVER DISEASE www.nlm.nih.gov/medlineplus/ency/article/000281.htm

NAFLD/NON ALCOHOLIC FATTY LIVER DISEASEwww.mayoclinic.org/diseases-conditions/nonalcoholic-fatty-liver-disease/basics/definition/con-20027761

HEPATIC ENCEPHALOPATHY (HE) www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001347/#adam_000302.disease.symptoms
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TESTS:

MELD SCORE CALCULATOR www.mayoclinic.org/medical-professionals/model-end-stage-liver-disease/meld-model-unos-modification


labtestsonline.org/

Albumin: This test is used to measure the level of albumin (a protein in the blood) and aides in the diagnosis of liver disease.

ALP or Alk-Phos = Serum Alkaline Phosphatase Test: This test is used to measure the level of alkaline phosphatase (an enzyme) in the blood. Alkaline phosphatase is found in many tissues, with the highest concentrations in the liver, biliary tract, and bone. This test may be performed to assess liver functioning and to detect liver lesions that may cause biliary obstruction, such as tumors or abscesses.

ALT = Serum Aminotransferases (transaminases):This enzyme is released from damaged liver cells.

AAT: This test measures the level of alanine aminotransferase (an enzyme found predominantly in the liver) that is released into the bloodstream after acute liver cell damage. This test may be performed to assess liver function, and/or to evaluate treatment of acute liver disease, such as hepatitis.

AFP = Alpha-Fetoprotein Test: Alpha-fetoprotein (a specific blood protein) is produced by fetal tissue and by tumors. This test may be performed to monitor the effectiveness of therapy in certain cancers, such as hepatomas.

AST or SGOT = Aspartate Transaminase Test: This test measures the level of aspartate transaminase (an enzyme that is found in the liver, kidneys, pancreas, heart, skeletal muscle, and red blood cells) that is released into the bloodstream after liver or heart problems.

Bili: This test measures the levels of bilirubin in the blood. Bilirubin is produced by the liver and is excreted in the bile. Elevated levels of bilirubin may indicate an obstruction of bile flow or a problem in the processing of bile by the liver.

GGTP or GGT = Gamma-Glutamyl Transpeptidase Test:This test measures the level of gamma-glutamyl transpeptidase (an enzyme that is produced in the liver, pancreas, and biliary tract). This test is often performed to assess liver function, to provide information about liver diseases, and to detect alcohol ingestion.

Mitochondrial Antibodies test: The presence of these antibodies can indicate primary biliary cirrhosis, chronic active hepatitis, and certain other autoimmune disorders.

PT/PTT: The prothrombin time test measures how long it takes for blood to clot. Blood clotting requires vitamin K and a protein that is made by the liver. Prolonged clotting may indicate liver disease or other deficiencies in specific clotting factors.
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SCANS AND PROCEDURES:

Ultrasound/Sonography/Sonogram www.radiologyinfo.org/en/info.cfm?pg=genus

MRI/Magnetic Resonance Imaging www.radiologyinfo.org/en/info.cfm?pg=bodymr

Liver Biopsy: www.nlm.nih.gov/medlineplus/ency/article/003895.htm

The word “biopsy” is scary because we assume that it means cancer but that is not true. Biopsies are obtained to find out if an organ is diseased. So when a liver biopsy is ordered by your doctor it is because he/she suspects liver disease, not necessarily cancer. The biopsy is normally performed on an outpatient basis and doesn’t usually require a night in the hospital.


TIPS Tranjugular interhepatic portosystemic shunt:www.radiologyinfo.org/en/info.cfm?pg=tips
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LIVER DISEASE TERMS

ALT = Serum Aminotransferases (transaminases):This enzyme is released from damaged liver cells.

Ascites: Fluid in the peritoneal cavity. (Abdomen)

Cirrhosis: An abnormal liver condition characterized by irreversible scarring of the liver.

Coma: A state of deep unconsciousness.

Edema: An excessive accumulation of serous fluid in tissue spaces or a body cavity.

Esophageal Varices: Abnormally enlarged veins in the lower part of your esophagus, the tube that connects your throat and stomach. These veins may rupture and bleed.

Hepatic Encephalopathy: Toxic substances normally removed by the liver accumulate in the blood and impair the function of brain cells.

Hepatitis: Injury to the liver characterized by the presence of inflammatory cells in the tissue.

GI doctor: A gastroenterologist who specializes in diagnosing and treating liver diseases and gastrointestinal problems.

Jaundice: Yellowish discoloration of the whites of the eyes, skin, and mucous membranes caused by deposition of bile salts in these tissues. Dark yellow to orange urine will occur and clay colored stools.

Lethargy: State or disorder characterized by overpowering fatigue, drowsiness or sleep.

Liver Failure: The appearance of severe complications rapidly after the first signs of liver disease, and indicates that the liver has sustained severe damage.

Portal Hypertension: A syndrome characterized by raised blood pressure in the portal vein entering the liver. Portal hypertension can be associated with pulmonary hypertension where it is termed Porto-pulmonary Hypertension.

Protein and Liver Disease: Protein is an essential part of our diet and helps the body, grow tissue, regulate hormones, control metabolism, repair muscle, and defend against illness. The human body has to have protein to survive.
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BLOOD PRESSURE (BP) READINGS RANGE www.heart.org/HEARTORG/Conditions/HighBloodPressure/aboutHighBloodPressure/Understanding-Blood-Pressure-Readings_UCM_301764_Article.jsp

Systolic (S) = Top number / Measures pressure when the heart muscle contracts
Diastolic (D) = Bottom number / Measures pressure when the heart muscle relaxes

(S) / (D) INDICATION
210 / 120 Stage 4 High Blood Pressure
180 / 110 Stage 3 High Blood Pressure
160 / 100 Stage 2 High Blood Pressure
140 / 90 Stage 1 High Blood Pressure
140 / 90 BORDERLINE HIGH
130 / 85 High Normal
120 / 80 NORMAL Blood Pressure
110 / 75 Low Normal
90 / 60 BORDERLINE LOW
60 / 40 TOO LOW Blood Pressure
50 / 33 DANGER Blood Pressure

HIGH Blood Pressure Symptoms:
Stressed, Sedentary, Bloated, Weak, Failing, Headache, Neck ache, Anxiety

LOW Blood Pressure Symptoms:
Weak, Tired, Dizzy, Fainting, Coma
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BLOOD SUGAR (GLUCOSE)

Normal glucose levels fall between 70 and 150 mg. Levels typically are lower in the morning, and rise after meals. Test for blood sugar immediately before a meal.

Blood sugar levels falling consistently above 150 are indicative of hyperglycemia, or high blood sugar. Persistent hyperglycemia (over 150) results in diabetes mellitus, which is the most common disease related to blood sugar regulation failure. Diabetes can cause eye, kidney and nerve damage.

Chronic low levels, falling below 70, characterize hypoglycemia, or low blood sugar. Hypoglycemia is a potentially fatal condition. Symptoms of this condition are lethargy, impaired mental functioning, irritability and loss of consciousness.

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RECORD KEEPING

Get copies of all medical records. Here are some different ideas for record keeping.

Participate in your hospital's patient portal.

Put records on a thumb drive.

3 Ring Binder
A calendar with upcoming appointments in front.
1. Medical proxy: Who and what their expectations are for care.
2. Insurance information: Photo copies with front and back of cards.
3. Prescriptions/Dosages: Make extra copies to hand to EMTs and ER's. Keep updated. ex: drug removed because of adverse effects.
4. Copies of Labs.
5. Admission and discharge summaries.
6.Chart for blood sugars and insulin amounts given, blood pressure, temperatures.
In the back pouch you can keep a copy of prescription print out's with side effects.
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Post Edited By Moderator (themiz) : 9/19/2014 3:55:13 PM (GMT-6)
themiz-Forum Moderator-Hepatitis
Wife of themister, a fine man living with ESLD.
Eradicated Hep C GT3a SVR July 2012-TIPS w/HE January 2013-Transplant list Mayo AZ-July 11 2013 MELD14

“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars.” Kahlil Gibran

Post Edited (themiz) : 9/23/2014 2:37:56 PM (GMT-6)

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