Hepatitis Resources

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Date Joined Jan 2003
Total Posts : 9268
   Posted 10/23/2003 11:57 AM (GMT -6)   
So you found our forum, but do you know about all the wonderful resources HealingWell.com has to offer?  You have a number of places to start:
  • Top and bottom page navigation links to information, articles, video webcasts, resources, newsletter, books and much more.
  • Direct links to topic disease-specific areas (see right column) which change based on the forum you are viewing.
  • As always, you can visit the Hepatitis Resource Center located at http://www.healingwell.com/hepatitis/ for all this and more.

Take a moment to explore, we hope that you will stay awhile and visit HealingWell.com often.

Peter Waite, Founder/Editor
HealingWell.com - Community, Information, Resources

Post Edited (Admin) : 11/22/2005 12:00:44 PM (GMT-7)

Elite Member

Date Joined Jul 2005
Total Posts : 12014
   Posted 6/8/2013 2:22 PM (GMT -6)   

GILEAD SCIENCE-Solvaldi (sofosbuvir) www.gilead.com/responsibility/us-patient-access

JANSSEN- Olysio (simeprevir) www.janssenprescriptionassistance.com/olysio-cost-assistance

GENENTECH/ROCHE-Pegasys www.pegasys.com/patient/patient-support/access-solutions

KADMON PHARMACEUTICALS/AMGEN - For interferon (Infergen) or ribavirin (Ribasphere) www.kadmon.com

MERCK www.merck.com/contact/contacts.html

B0CEPREVIR(Victrelis) www.victrelis.com

XIFAXAN (rifaxamin)cdn.salix.com/xifaxan550/assets/pdf/xifaxan-patient-assistance-program-application.pdf


Post Edited By Moderator (themiz) : 9/19/2014 4:41:51 PM (GMT-6)

Forum Moderator

Date Joined Feb 2013
Total Posts : 901
   Posted Today 5:06 PM (GMT -6)   
OVERVIEW OF LIVER DISEASE www.merckmanuals.com/home/liver_and_gallbladder_disorders/manifestations_of_liver_disease/overview_of_liver_disease.html

STAGES OF CIRRHOSIS www.livestrong.com/article/240024-what-are-the-4-stages-of-cirrhosis/

STAGES OF HEP C www.livestrong.com/article/145624-what-are-the-different-stages-of-hepatitis-c/

AUTOIMMUNE HEPATITIS www.healthline.com/health/autoimmune-hepatitis#Treatment6

ALCOHOLIC LIVER DISEASE www.nlm.nih.gov/medlineplus/ency/article/000281.htm

HEPATIC ENCEPHALOPATHY (HE) www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001347/#adam_000302.disease.symptoms

Albumin: This test is used to measure the level of albumin (a protein in the blood) and aides in the diagnosis of liver disease.

ALP or Alk-Phos = Serum Alkaline Phosphatase Test: This test is used to measure the level of alkaline phosphatase (an enzyme) in the blood. Alkaline phosphatase is found in many tissues, with the highest concentrations in the liver, biliary tract, and bone. This test may be performed to assess liver functioning and to detect liver lesions that may cause biliary obstruction, such as tumors or abscesses.

ALT = Serum Aminotransferases (transaminases):This enzyme is released from damaged liver cells.

AAT: This test measures the level of alanine aminotransferase (an enzyme found predominantly in the liver) that is released into the bloodstream after acute liver cell damage. This test may be performed to assess liver function, and/or to evaluate treatment of acute liver disease, such as hepatitis.

AFP = Alpha-Fetoprotein Test: Alpha-fetoprotein (a specific blood protein) is produced by fetal tissue and by tumors. This test may be performed to monitor the effectiveness of therapy in certain cancers, such as hepatomas.

AST or SGOT = Aspartate Transaminase Test: This test measures the level of aspartate transaminase (an enzyme that is found in the liver, kidneys, pancreas, heart, skeletal muscle, and red blood cells) that is released into the bloodstream after liver or heart problems.

Bili: This test measures the levels of bilirubin in the blood. Bilirubin is produced by the liver and is excreted in the bile. Elevated levels of bilirubin may indicate an obstruction of bile flow or a problem in the processing of bile by the liver.

GGTP or GGT = Gamma-Glutamyl Transpeptidase Test:This test measures the level of gamma-glutamyl transpeptidase (an enzyme that is produced in the liver, pancreas, and biliary tract). This test is often performed to assess liver function, to provide information about liver diseases, and to detect alcohol ingestion.

Mitochondrial Antibodies test: The presence of these antibodies can indicate primary biliary cirrhosis, chronic active hepatitis, and certain other autoimmune disorders.

PT/PTT: The prothrombin time test measures how long it takes for blood to clot. Blood clotting requires vitamin K and a protein that is made by the liver. Prolonged clotting may indicate liver disease or other deficiencies in specific clotting factors.

Ultrasound/Sonography/Sonogram www.radiologyinfo.org/en/info.cfm?pg=genus

MRI/Magnetic Resonance Imaging www.radiologyinfo.org/en/info.cfm?pg=bodymr

More sophisticated than a standard x-ray or even a CT Scan the MRI is a machine that uses magnetism, computer, and radio waves to produce the images the doctor wants to see. The images are created by the radio wave signals sent to the body that in turn forms a picture. The images are very accurate and specific. When completed it produces a clear and precise image of the organ, bone, vessel, etc. A doctor may order the MRI with or without contrast. That largely depends on what the doctor is doing the MRI for. If contrast is ordered, then an IV is inserted in a vein and the contrast is injected to help with the visualization of the area the doctor wants to see.

Because the MRI utilizes a large magnet. patients are asked to fill out an MRI form. The reason is quite simple: If a person has a pacemaker, metal artificial joint, or other metal in the body the MRI may be cancelled. The magnet could cause the pacemaker to stop working for example. So the doctor and the technologist has to know if any of these things are present. The machine is actually a large tube that has a sliding bed that goes into it. The bed stays stationary but the hollow tube rotates around the patient. As the tube rotates it makes a knocking sound. This is how the picture is actually taken at every angle. The door is closed and sealed and then the process of the MRI begins. If someone is claustrophobic then it is recommended that they have what is called an “open MRI”. In an open MRI there is no door and the table slides into the hollow tube with both ends open.

Liver Biopsy: www.nlm.nih.gov/medlineplus/ency/article/003895.htm

The word “biopsy” is scary because we assume that it means cancer but that is not true. Biopsies are obtained to find out if an organ is diseased. So when a liver biopsy is ordered by your doctor it is because he/she suspects liver disease, not necessarily cancer. The biopsy is normally performed on an outpatient basis and doesn’t usually require a night in the hospital.

The procedure allows for a small piece of the liver to be obtained by the doctor who uses a special biopsy needle. A small incision is made and the needle is inserted into the liver. Then the needle is removed and the tissue in the needle is put in a sterile container and taken to the lab for analysis. Once in the lab the specimen is examined by the pathology lab under a microscope for any sign of damage or disease. A biopsy is a definitive test when looking for disease of an organ.

TIPS Tranjugular interhepatic portosystemic shunt:www.radiologyinfo.org/en/info.cfm?pg=tips

ALT = Serum Aminotransferases (transaminases):This enzyme is released from damaged liver cells.

Ascites: Fluid in the peritoneal cavity. (Abdomen)

Cirrhosis: An abnormal liver condition characterized by irreversible scarring of the liver.

Coma: A state of deep unconsciousness.

Edema: An excessive accumulation of serous fluid in tissue spaces or a body cavity.

Esophageal Varices: Abnormally enlarged veins in the lower part of your esophagus, the tube that connects your throat and stomach. These veins may rupture and bleed.

Hepatic Encephalopathy: Toxic substances normally removed by the liver accumulate in the blood and impair the function of brain cells.

Hepatitis: Injury to the liver characterized by the presence of inflammatory cells in the tissue.

GI doctor: A gastroenterologist who specializes in diagnosing and treating liver diseases and gastrointestinal problems.

Jaundice: Yellowish discoloration of the whites of the eyes, skin, and mucous membranes caused by deposition of bile salts in these tissues. Dark yellow to orange urine will occur and clay colored stools.

Lethargy: State or disorder characterized by overpowering fatigue, drowsiness or sleep.

Liver Failure: The appearance of severe complications rapidly after the first signs of liver disease, and indicates that the liver has sustained severe damage.

Portal Hypertension: A syndrome characterized by raised blood pressure in the portal vein entering the liver. Portal hypertension can be associated with pulmonary hypertension where it is termed Porto-pulmonary Hypertension.

Protein and Liver Disease: Protein is an essential part of our diet and helps the body, grow tissue, regulate hormones, control metabolism, repair muscle, and defend against illness. The human body has to have protein to survive.


You can help yourself by taking vitals daily (weight, blood pressure, temperature, and blood sugar) and by taking body measurements. Also note mental status on a scale of 1 to 10. Try to do this at the same time everyday. Take this information with you to all doctor’s appointments.

Ring Binder Tip:
A three ring binder can be a life saver. Have tabs for each section, this only takes a few minutes to set up and will save you so much stress and time.

The front can have a calendar with upcoming appointments.

1. Medical proxy: Who and what their expectations are for care.

2. Insurance information: Photo copies front and back of cards.

3. Prescriptions/Dosages: Make extra copies to hand to EMTs, and ERs. Keep updated. ex: drug removed because of adverse effects.

4. Copies of Labs. You can get them from the physician's office. Usually, there is no charge.

5. Admission and discharge summaries. If you go back later to get copies they may charge you, so attempt to retain them when discharged. This can also include day procedures ie: a tap with how many liters and whether or not albumin given and how much. Also, endoscopies and other procedures.

6.You can keep a chart for blood sugars and insulin amounts given, blood pressure, temperatures.

In the back pouch you can keep a copy of prescription print out that has all side effects listed.


Systolic (S) = Top number / Measures pressure when the heart muscle contracts
Diastolic (D) = Bottom number / Measures pressure when the heart muscle relaxes

210 / 120 Stage 4 High Blood Pressure
180 / 110 Stage 3 High Blood Pressure
160 / 100 Stage 2 High Blood Pressure
140 / 90 Stage 1 High Blood Pressure
130 / 85 High Normal
120 / 80 NORMAL Blood Pressure
110 / 75 Low Normal
60 / 40 TOO LOW Blood Pressure
50 / 33 DANGER Blood Pressure

HIGH Blood Pressure Symptoms:
Stressed, Sedentary, Bloated, Weak, Failing, Headache, Neck ache, Anxiety

LOW Blood Pressure Symptoms:
Weak, Tired, Dizzy, Fainting, Coma

Normal glucose levels fall between 70 and 150 mg. Levels typically are lower in the morning, and rise after meals. Test for blood sugar immediately before a meal.

Blood sugar levels falling consistently above 150 are indicative of hyperglycemia, or high blood sugar. Persistent hyperglycemia (over 150) results in diabetes mellitus, which is the most common disease related to blood sugar regulation failure. Diabetes can cause eye, kidney and nerve damage.

Chronic low levels, falling below 70, characterize hypoglycemia, or low blood sugar. Hypoglycemia is a potentially fatal condition. Symptoms of this condition are lethargy, impaired mental functioning, irritability and loss of consciousness.

Post Edited By Moderator (themiz) : 9/19/2014 3:55:13 PM (GMT-6)

Post Edited (themiz) : 9/19/2014 7:22:53 PM (GMT-6)

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