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wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 7/4/2006 8:48 PM (GMT -7)   
As I was doin some reading about hep b,I came across info about hepsa,a drug for hep B,,normally I find alot on hep c,and alot on interferon treatment for hep b,,,when i went to the Hep B Foundation ,hepsa is near the top of their drug list. I was wondering if anyone out there has heard of this drug or taken it,,,,it seems hubbys drs have left out his treatment options with hepsa,which seems to not have nearly the bad side affects these injections have,,,,,,,,,Im extremely upset that he wasnt even told about possible alternatives to the injections,as they are making his immune system extremely bad and may be bringin on more health issues then he had before,,,,,anyone know anything about this other treatment?
trish
 
 
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!" 


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 7/4/2006 9:43 PM (GMT -7)   
Trish, I see that kidney problems are one of the possible side effects/complications of this drug. Your husband's doctors may feel it's too risky, but I would certainly ask about it. I see that there are also some other oral meds available to treat hep B.

You are doing the exact right thing--reading and becoming educated about what is available, and therefore knowing what questions to ask. I would be interested in knowing what the doctors have to say about the oral meds. Please let us know what you find out. BTW, when I was tested for hepatitis, I also tested positive for hep B, but I had the antibody--meaning I'd had it, but my immune system kicked it out. I will always test positive for it, but can't get it again or give to anyone else. I wasn't so lucky with hep C, which is chronic active.

Hugs,
Connie

wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 7/6/2006 7:11 AM (GMT -7)   
connie,
i too had hep b and my body kicked it,and hubby tested positive for hep c the first time but then we were told,,,,,,,3 mths later,that he doesnt have hep c,that hes had it before but his body kicked it,,,,,,these drs seem to think we are not intelligent enough to have all the facts.........we are cosulting with his regular dr tomorrow about possibly changing specialists,,,,,hes got a gastro dr and there are no hepatologists in this town but ive found a few in close cities,,,one of which is at Ohio State University,,so we may start traveling. i saw the kidney problems too but i think interferon could cause this too,and many other problems,,,,,,btw his specialist is not going to see him til Jan ,,,,,,,,,,way too long i think when hes on such serious meds,,,,not to mention the other health issues he has. hubby gets anxious about changing drs,he changed regular dr a few months ago because we didnt feel his other dr knew anything about hep b,,,,we had to educate HIM when we saw him so he changed to my family dr....which hes happy about now ,,,,,,but now another change may be in order. his anxiety is so bad lately,,,,,he doesnt sleep much at one time,is up and down all night long and naps during the day for short periods of time. i asked him if he wanted to stop the injections,,,,told him its HIS body and HIS decision alone,,,that if he feels its wearing him down too much id support him all the way and wed find alternative treatments/drs,but he said ive done it this long im goin to go as long as i can. i am just so irritated that his dr didnt discuss ANY other options with us,,,,especially when his viral load is exactly what it was when starting treatment,,,,so hes weaker and sicker yet the injections dont seem to be helpin at all,,,,such hard decisions to make,,,,,i want hubby to make his decisions concerning his body but at times hes so out of it and doesnt focus well,so i just try to put it to him in simple terms and tell him what i learn and watch his reactions,,,,i just dont know what is the right thing to do,and i feel like we cant really depend on the specialist to help much,,i cant wait to talk to the family dr tomorrow,hes the only dr who seem to lay it all out there for us and talk straight. i pray every day that we make the right decisions,,,,,take care connie
trish
 
 
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!" 


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 7/6/2006 3:26 PM (GMT -7)   
Trish, I agree that Jan. is too long to wait! As for the doctor not discussing other options...he may not have been knowlegeable about them!!

I absolutely agree that it may be necessary to travel to get good medical care. Since I switched care to Mayo, I've really experienced the difference between so-so care and excellence of care. Insurance coverage can make choice of care limiting. It was sheer luck that I happened to find out about the charity program that St. Luke's/Mayo has. They pay whatever Medicare doesn't cover.

Hugs,
Connie
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