Hi Everyone, sorry I haven't posted lately, My daughters and granddaughter were visiting most of last week and the house was wild. I did enjoy them but, I am glad we have our home back. Nice and quiet! Mark has not been doing very well either. We just got back from the Dr., today and the Dr. is making arrangements to put Mark in the hospital for about 5 days, he is going to put a cath in Marks abdomin and drain the fluid off of Mark daily, hospitalized. His kidney's just are not working very well and he is trying to see if this will get them functioning more normally. He is just staying full of fluid, his weight is up to 203 lbs., his normal weight would be around 160 lbs. Other than that we are praying for the call to come for a new Liver.
Trish, we were first given a date with a 5 month wait for a hepatologist. Mark was hospitalized, a social worker was talking to me and I told her I had just about had it with the doctors not knowing how to treat Marks disease. I also told her I was not beyond, checking my husband into a hospital E.R., where they had a Liver transplant clinic. Well she went all out and got Mark transported to one via ambulance and with a hepatologist agreeing to take his case. Sometimes you have do or say what you must to get what you need. How did the CT scan go? Rick really does sound like he is having a hard time, I will keep you both in my prayers!
Connie, have you gotten your schedule for your appointments? I know it is going to be another busy month for you! My thoughts and prayers are with you! Please keep us posted!
Ma, so sorry you had a reation to the antidepressant, but sometimes you just need to keep an open mind, there are others out there that may that you can try! Hopefully they will find the one that is right for you! glad to hear Pa is doing better. The dates sound like a wonderful idea! Love you!
Love and Hugs,
Hi Everyone, Well Marks doctor called today, and told us his lab results were worse and that he wanted Mark to be admitted to the hospital today! The creatine was much higher, the renal function is pretty bad right now. They have stopped all diuretics, for now. Mark is having blood cultures done to confirm he is infection free, then in the morning he will go to radiology and have a pigtail cath put in via fluoroscope. They are going to pull fluid off of him at intervals with albumin replacement for 5 days. They are hoping that the renal function will come back. I was doing fine earlier, but I am now feeling the after effects from my day of stress. I guess I need to get to bed, so I can handle whatever tomorrow brings. Thanks for listening. Hope everyone is doing okay!
Hugs and Prayers,
Well, Marks procedure went well today. They took off 5 liters of fluid, so it gave him a little relief. The Renal function is still down. He is in decent spirits. Michael and I are home for the night. I do appreciate the support that all of you give me. Ma thanks for being there for me! Trish hope all is going well for you and Rick, hope the flu bug stays away! Connie hope all is well with you.
Thank you, Trish. Get some rest and keep us posted on Rick.
Hi all, Mark was discharged from the hospital yesterday afternoon. His renal function is a little better. His weight is down considerably. They took the pigtail cath out from his abdomin a few hours before discharge and had trouble with fluid just pouring out of the cath site. They sent him home with supplies for dressing it, they say it could leak for awhile. (sigh) I have dressed it a few times already. He see's the hep doc next Monday.
Connie, sorry to hear about your hip problems! I know it is a very hard decision to make! Both are serious problems! My prayers continue for you.
Dona, hope you some relieve with the back and Tony' gallbladder straighten's out some.
Patty, sorry to hear about the Sundowner's.
Love, hugs and prayer's,