Fiance had HCV, cirrhosis, ESLD, ascites, and portal hypertension. Was transplanted June 2004. Now, on interferon and ribavirin. Hepatitis C is back.
Thank you for your encouragement. My husband and daughter have really helped me get through this. My problem is the rest of my immediate family. My father and sister seem to think that my mother caused all of her problems herself. Isn't it a shame that even when someone is dying they can't show compassion. When I took my mom to the Er they thought she was going to die. As soon as she opened her eyes and could speak they both left. And they haven't been back.
I understand what you mean about not saying what you will regret later. I know by saying anything it will start a fight. So I just say nothing. I have had to do everything by myself since they left. I'm not feeling sorry for myself, it is what it is. But I do feel like they don't care about the toll this will take on me and my family.
Have you had any experiences with going on vacation or taking a trip with your ill mom? I was talking to mine about going on a trip after she gets out of the rehab (physical therapy). If her ammonia levels go up will it fly up in one or two days? I would really like to take her some nice places while she is feeling better.
Tiff 40 and adlady16,
Glad to see that you found each other.
If there are any questions that I can try to answer, please let me know.
Jennifer moved your post to a new thread. I'll try to answer your questions there.