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onthepath
New Member


Date Joined Jul 2006
Total Posts : 5
   Posted 7/29/2006 6:40 PM (GMT -7)   
Hi, my name is Doug. I went thru peg interferon treatment last march till october and the next 4-5 months getting back to normal. It was very tough mentally and emotionally. I met a girl I wanted to marry and she the same, but one month after we met, I started treatment. Over time my depression and anger got worse. I never yelled at her etc... but I found myself angry alot of the time. I would take little issues and make them big. To make a long story short, she broke up with me saying I was too moody. I now feel cheated because thats not who I am. For a girl to tell me she loves me and wants to spend her life with me, that is a hard pill to swallow. Treatment partially worked, my liver enzymes are normal now, but the virus is still here. I recently did a biopsy and will have the results in August, then further treatment. Anyone have any advise on the anger, moods, and the misunderstanding of my girlfriend as to who I am ?? Thanks, Doug

wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 7/29/2006 8:44 PM (GMT -7)   
doug
im not sure,,,my hubby is hard to deal with and we had already developed a good relationship BEFORE he started treatment,,,,,so i can imagine a new relationship would be hard to begin,unless it was someone REALLY patient,,,,,,it must not have been meant to be for ya,or at least not the right time,just take care of your health issues and the rest of your life will then fall into place,,good luck
trish
 
 
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!" 


onthepath
New Member


Date Joined Jul 2006
Total Posts : 5
   Posted 7/29/2006 8:59 PM (GMT -7)   
Thank you Trish. Its so easy to judge someone else's behavior as normal, but when you go on meds like this you understand just how hard it is. Thanks for your prayers and thoughts

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 7/30/2006 5:13 AM (GMT -7)   
Onethepath, did you explain to her (and family/friends) that you were experiencing side effects from treatment? Or to let you get through treatment and get your health under control, and try the relationship again? I will say that chronic health problems are hard on a relationship, whether it is a new one or one that you have been involved with for years. I've seen my 12-year relationship go through a
lot of changes. Right now it is on a best friend level.

Trish is right, though. Take care of you first and everything else will fall into place more easily. Don't try to push a relationship. Use all your strength to fight the hep C.

Best of luck,
Connie

III
Regular Member


Date Joined Feb 2006
Total Posts : 91
   Posted 7/30/2006 5:28 AM (GMT -7)   
Hi All,
Thats what I did talked to my family before hand and explained my mood swings and my anger that my doctor said I was going to have. They really didn't believe me until I had an outburst Are yoiu taking any anti's like zoloft???.....

Big hugs
eileen

onthepath
New Member


Date Joined Jul 2006
Total Posts : 5
   Posted 7/30/2006 7:13 PM (GMT -7)   
My doctor was like a clam. He didnt counsel us as to the side effects, although she knew it affected me. I think she just chose to believe I was an angry/depressed man. It really hurt to not be givin the benefit of the doubt, but she left me at the end of treatment before I came back to normal. As for the anger, I know what you mean about the outbursts or the negative feelings that bring this on. Im not sure why these meds do that, or perhaps its because of the lenght of time feeling bad. Anyways, I may have to do it all over again. Will find out in the next weeks. I will have to trust God for our breakup and the future. I cant do anything to change her beliefs about me, only he can.

cured4real?
Veteran Member


Date Joined Dec 2005
Total Posts : 1944
   Posted 8/7/2006 9:09 PM (GMT -7)   
Onthepath--
I had a problem similar to yours. I did not have insurance because I found out I was sick with acute Hep C during the last year of college with no job prospects and a 3 year old son and no insurance. I made contact with an old friend, who had gotten his life together and we started dating. I never lied to him, they told me I had a year to live. I had no family there for me, they acted like I was hypercontagious and like HepC was airborne or something. They wouldn't visit me at all till way after tx. This friend offered to marry me and take care of my son. Unfortunately, by the time all this happened, my immune system had been extremely damaged and I had diabetes (hypoglycemia) from the Hep C and no one knew. I had terrible problems on interferon and went psycho, I developed severe anxiety and anger, screaming and crying, and just going nuts, and I developed severe allergies to any psych drugs they tried to give me and they tried them all. Eventually I got so sick he just felt sorry for me, and I accepted that. It was better than fighting. We went to counseling but the counseler couldn't deal with us. My psychologist saved me, she had terminal cancer (unbeknownest to me) and she helped me keep the medicine effects separate from myself, although the docs act like you're just injecting water and any side effects are some separate unrelated mental illness you always had. At one point, everyone abandoned me, or I drove them away. I kept it together in front of my son, he was the bright spot, but it must have been really hard for him. I was also in excruciating pain during the whole thing. My now exhusband learned to understand that it was just the medication, though my own family would have nothing to do with me or pick fights with me. They had no idea how to talk to me or what I was going through. I didn't know how I was coming off to people, I thought I was normal and they were all just being really insensitive, and maybe they were. They just cannot understand. Later in life I was able to help my grandmother through her chemotherapy by reassuring her that it was just the drugs messing with her, she was ok. She told me she would never forget what I did for her, that I really helped her by simply being on her side. There shouldnt be sides. I think if I had that kind of reassurance, I could have done better. The bottom line is that you do what you want to in terms of your relationship. Life is too short for regrets. If you can try to explain to her how you feel, I felt like ripping my guts out I felt like my body was full of creepy insects or crawly things. Also, my symptoms were bad because of other problems. My diabetes and autoimmune problems made things really bad and so many doctors won't do the testing but just give you mind altering drugs which your liver may have trouble processing and don't as expected, but may make things worse. If my doc would've tested my insulin, done a GTT, tested my ANA and thyroid for antithyroid antibodies, my experience would have been totally different and I'm sure my moods would've been much less severe. Nowadays, I guess they can alter the dose or something too. back in the day they wouldn't. I hope this helps. I wish you the best. It's never good to end on a bad note and I hope that she is openminded enough to realize that she can't possibly know how difficult it is and that you may find a way to at least maybe be friends and be there for each other if you want that. Connie is right, stress reduction is best and relationships can be exhausting, but in my case, if it weren't for my exhusband, I'd probably be dead. I don't know your feelings only you do. Sorry this is so long. I hope it helps. Sometimes its less stress to be in a bad relationship than to be completely alone. Maybe you are in pain, I developed severe arthritis and other problems that put me in excruciating pain and went through tx on stadol nasal spray. I'll never forget what my friend did for my son and me and I really wish I could've made things easier for him. He made a huge sacrifice for several years of his life for me. She may be afraid of catching HepC, she may be afraid of being hurt, and so she seems insensitive. You may be feeling the same. Right there, you have common ground. Being on interferon is like being on an acid trip I think. Reality is not what it seems. You two should be fighting together at the disease, the disease is the problem, the drugs can be a problem, even your girl might be a problem. You cant count on these things to change, how you handle them can.
Marji --Evoxac, Plaquenil, HCTZ, Glucophage, Klonopin, Ultram, Robaxin...
"...brain, what is brain?"
--Kara, one of the "givers of pain and delight", aka woman of Sigma Draconis VI, "Spock's Brain" episode 56 season 3 of Star Trek


onthepath
New Member


Date Joined Jul 2006
Total Posts : 5
   Posted 8/9/2006 4:48 PM (GMT -7)   
Cured4real. Thank you for sharing that with me. I relate alot to what you said. The interferon was hell. And to compensate, i ate alot which sent my sugars to 24 regularily which also affected my moods. They put me on more anti-d's which messed me up even more. Since I came off medications, I have tried to explain to her it was the meds, but she wont listen. The last time I talked with her 2.5 months ago, she was cruel with me and told me we cant be friends after all this and I want nothing to do with you anymore. I was crushed. We had a very special, close relationship and she even told me she has never found someone she can talk with like me. I felt the same and I got along with her kids better than great. I feel the love she professed was a lie, because she hasnt made any effort to contact me in any way or understand or forgive me. We go to the same church, but I have not been going because it hurts too much when she is there and I feel betrayed by God. I hoped God would work things out between us. Tommorrow a.m. i get the results of my liver biopsy and i may have to go on treatment again. All i know is that i lost someone i really love and cant change her opinion of me. Im so sad as she was the first girl i ever wanted to marry. I cannot figure out why she is so angry towards me and cold. my faith has been rocked, and i am now all alone with my hopes for the future seemingly gone.  I wish things would change. If i had known this would happen, I would not have gone on treatment at all. Tell me what you think please.

wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 8/10/2006 1:31 PM (GMT -7)   
onthepath,
hope the liver biopsy shows not alot of damage,,,,,as for the girl,she may not be at a point in her life to deal with the emotional issues,,,which are GREAT ,,,,,,but that should NOT effect you taking the treatments your dr thinks is right for you,,,,,its not goin to do much good to have a woman in your life,if ya let this disease take over your body. bein hurt is hard to get over,especially when goin through medical problems,,,,,but you hold ya head up,ya shoulders back,and fight this disease,,,,,someone special will come along who is just right for you,,,trust me
trish
 
 
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!" 


onthepath
New Member


Date Joined Jul 2006
Total Posts : 5
   Posted 8/10/2006 7:11 PM (GMT -7)   
Thank you for the words of encouragement. My biopsy revealed normal alt/ast with mild inflammation and moderate fibroisis. My doctor thinks I should wait 3 months in hopes of trying a new mediction if i qualify for treatment. If I dont qualify then I have the choice to go back on interferon. The virus is not attacking my liver at present, but I still have the virus. As for the girl, I hope she comes. Its hard to be misjudged and shunned and abandoned

Heppy
New Member


Date Joined Aug 2006
Total Posts : 15
   Posted 8/27/2006 6:29 PM (GMT -7)   
Hi Doug,

I was diagnosed in 1999 with Hep B and C. I did some research and started taking MILK THISTLE. The Hep B was gone but I was stuck with the Hep C of course. I never went on the interferon treatment because I am epileptic. I read about it and everyone agrees that it can cause seizures. Since I can not relate to the mood swings and anger that your treatment caused you to have, I can say one thing. I have to agree with the others about using your energy to fight this monster. Although we all would love to have a significant other to comfort us, love us, and make us feel safer, sometimes the stress from the relationship can worsen our condition. I am terrified to start any treatments. Doctors today want to prescribe drugs because they get a percentage from every prescription that they write. I have told many doctors NO to anti Ds. I don't like medication, because of my epilepsy, I can not really take anything. I am frustrated with how people are cruel and insensitive; especially doctors.

Doug, my advice to you is to accept your lonliness first, and then find other ways to fill the void. I had an idea. If it were meant for me to be with someone, maybe it would be with someone who could relate to my illness. I don't think that I could be comfortable with someone completely healthy while I am walking around filled with creepy crawly things inside of my body. I also don't want to accidentally infect someone with Hep C. This is my first time even sharing my disease with anyone on a chat line. I feel out of place, uncomfortable, and embarrassed.

I hope that I haven't typed anything offensive to anyone, if I have, I apologize. I recently purchased books on my disease and know this now. We are not alone even though it feels that way. We just need to learn how to make contact with the right sources. For me personally, relationships are stressful. I am looking forward to making friendships instead. Everyone is different though. I am learning how to create outlets and find ways to communicate with other people like me. Doug, I don't understand what moderate fibrosis is, so I don't know if I should say GREAT or HOW CAN I HELP. As for the girl, I think her focus could have been on your health by leaving. Or, her focus could have been on her health because of the stress. Either way Doug, don't beat yourself up. I do believe in one thing. I think that it would benefit everyone here. "Everything happens for a reason."

My oldest daughter of 24 told me that and I thought it sounded so cruel. I later found out that some things are just out of our hands for no reason and the sooner we accept that fact, the sooner we can look in a more positive direction. For whatever reason I have Hep C, it happened for a reason and my life is important to me. My health is important to me. I use all of my energy to fight this disease and will finally seek some sort of treatment that is safe for me. And last, but not least, I DO BELIEVE IN MIRACLES.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 8/27/2006 9:15 PM (GMT -7)   
Heppy, I just responded to your first post. I don't recall your mentioning your seizures in your introductory thread. I would think that would make a difference in what treatment, if any, you can have. Do you take medication for the seizures?

Connie

Heppy
New Member


Date Joined Aug 2006
Total Posts : 15
   Posted 8/28/2006 4:38 AM (GMT -7)   
Connie,

I didn't mention epilepsy in my thread because I got so caught up talking about all the unfortunate things that happened to me. I did mention that I took milk thistle. That is because it does not affect my epilepsy at all. I do take medications for epilepsy and I read that interferon treatment is pretty rough to go through. I do feel helpless at this point about interferon treatment and seizures. I am stuck between a rock and a hard place. Any suggestions?

Heppy

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 8/28/2006 12:48 PM (GMT -7)   
Heppy, maybe someone in the Epilepsy Forum might have some experience or suggestions. Knowing nothing about the combination of seizure disorder and interferon, I can't begin to suggest or recommend anything to you. However, I can appreciate your feelings. Also, if the milk thistle is working for you and not causing harm, I'd continue with it.

Connie
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