Thank-you for your prayers and thoughts! They discharged Mark last night. He had a dazed and confused look when I got there and I mentioned it to the nurse, she just kinda threw her arms up in the air and shrugged her shoulders, and said "oh well". Then I asked her what his creatine was and she told me she could not tell me, only the doctor could. I told her I really did need to know it, because his diuretics have been on hold and if it was down he needed to get them, she stood her ground. This woman had one heck of an attitude, I told her Mark's encephalopathy had increased, she threw her arms up in the air again..........ggggggggrrrrrrr. So now Mark is at home and doing worse than what he was before he went to the hospital. His Hepatologist was not on call this weekend so he did not get the quality care he should have gotten.....
Please keep him your prayers. I feel like he is going down quick, and there is nothing I can do to stop it!
Teresa, I am so sorry Mark is doing poorly. Have you been able to contact the hepatologist? I don't know why some nurses don't understand that the caretakers know a whole lot more than they do--or maybe they do know it and resent it.
Well I spent most of the day and night, nursing Mark with the encephalopathy. I had to give lactulose every couple hours to get him to almost a normal state. His hepatologist called me, he has assured me that Mark should have a new liver in the next couple of months, his placement is up there. We are going to do more lab today and start Mark back on the rifaxan today.
Thank you all for the support you have given me! Mark is doing much better, right now. We go see the Dr. tomorrow. Hopefully Mark will stay out of the hospital for awhile. I certainly hope so anyway. I don't think I can stand another experience like we had this past weekend!!! I did vent this to the right people and they are handling the attitude and the fact that they discharged someone with a mental status change. Hope all of you are doing well! All of you are in my prayers.
Thanks for asking Jennifer, Mark's condition continues to worsen. He keeps having the renal and encephalopathy problems. He has been in the hospital twice this month, the last time he was very close to the coma state. I am getting very anxious for us to get a call. He is having so much stomach and back pain, with only tylenol to take. I don't know how much more his body can take. Just keep the positive thoughts and prayers coming this way.
Thoughts and Prayers to ALL!
Yes you found an old post. Mark got his new liver last February...He stayed in the hospital I believe 3-4 days. He is doing great. The whole family is. It is truely a miracle...
I am one of Teresa's buddies, I hear from her a bunch! If anyone would like to email her she still has the same email address...They are sooooo happy!!
Hello to All!
Hi Ya Sweet Connie Girl! Hi Ya Pink Grandma!
I am doing ok...Busy most of the time!! Tony will be put on the liver transplant in Sept in Memphis..They will also start the interferon treatments. He is stable at this time.
He has been on disability now for 2 years. His medicare starts in August...
Good to hear from you folks!
Hugs with Love to ya!