1st Timer ?Hives & other stuff

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Myrnabelle
New Member


Date Joined Aug 2006
Total Posts : 4
   Posted 8/20/2006 8:20 PM (GMT -7)   
Greetings,
I am new to this. I have Hep C from multiple transfusions. It is estimated that I have had it for 20-27 years being diagnosed in 2000. I am wondering if anyone else suffers from the same type of symptoms I have. My doctors tell me that most people do not have symptoms and mine are not caused by Hep C.
 
I have developed autoimmune disease and have lost my thyroid after 10 years of being attacked. I have constant pain in my upper left quadrant with nausea. Recently I have been unable to tolerate food or odors and have lost 24 lbs. For the past few days I have been getting transient hives and blisters with intense itching in my hands and feet. I have developed food allergies to all nuts, legumes & soy. I have a funny taste in my mouth. I have been diagnosed with low protien S and cryoglobulenimia. I have extreme fatigue. My face is dark and my arms are red and blotchy. I have had two facial episodes of unexplained bleeding under the skin. I cannot tolerate any sun or heat.
 
I am not a candidate for Interferon therapy. Are these symptoms in my head or does anyone out there have them?
 
I look forward to hearing from you,
Marcia
 
 

Myrnabelle
New Member


Date Joined Aug 2006
Total Posts : 4
   Posted 8/21/2006 11:01 AM (GMT -7)   
Rat- Thanks for taking a minute to reply.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 8/21/2006 1:17 PM (GMT -7)   
Myrnabelle, welcome to the forum! I also have hep C, diagnosed in '93. The only symptom I've ever had is extreme fatigue. (I did have some liver pain, but that was due to a large cancerous tumor, now gone.) Why are you not a candidate for interferon? The symptoms you are describing sound to me like an allergic reaction of some kind. Are you taking any medications?

Connie

Myrnabelle
New Member


Date Joined Aug 2006
Total Posts : 4
   Posted 8/21/2006 8:32 PM (GMT -7)   
Hi Hep93, I tried therapy in 2000 and had my husband, mother, uncle and grandfather die within a twelve week period so they took me off. That is when my thyroid blew. They ablated it and it is stable now. I guess people with autoimmune involvement require more monitoring. I don't have the full support system in place that they are requiring to start again.

Today I contacted the HepC awareness group and they gave me some great info and I picked up a couple of the books they recommended. I just learned that cryoglobulenimia is a disorder hep C causes outside of the liver. Abnormal proteins attach to the hep C virus and become solid in cold temperature sometimes causing pain & discoloration. They said hives, itching and blisters were common advanced hep C symptoms. They also told me that diabetes and thyroid disorders occur when these organs get caught in the crossfire of our bodies fight against the virus. They said the liver generally takes the hardest hit with the most damage. I feel much better. The woman that sponsors the group was really nice. I wish I did that 5 years ago.

I've been taking glyconutrients (Ambrotose) for a year now. My alt, sgot & ast have dropped from the hundreds to normal (50)range. My viral load dropped from 5m to 500k with albumin back to normal. I just itch & have the other problems. Mega food allergies.

Did you undergo treatment for the tumor? Interferon? I hope you are well. Thanks for the warm welcome, Marcia

Kit-c
New Member


Date Joined Aug 2006
Total Posts : 13
   Posted 8/22/2006 12:05 AM (GMT -7)   
Hi Marcia,,
I am new here too,,
the folks here have been Kind and up on the hep-c stuff,,

I have upper to mid back pain,,,
Real tierd most times,,,
strange coloration on my feet,,,
hhmm lets see,,
Oh ya ,,hot-hot sun really takes it out of me--
dark pee,.,.tummy cramps,,geezzz enough already eh,.,.~!

I am glad you got some more support,,,helps when
people can talk the same talk--

Take care---Kit--
OH--
OH ,,Hey Connie ,,how is your liver now,??The tumor is all gone ,,thats great,,how Interferon,,,?
see ya,.,.G

Myrnabelle
New Member


Date Joined Aug 2006
Total Posts : 4
   Posted 8/22/2006 10:11 AM (GMT -7)   
Hi Kit,
Your symptoms sound alot like mine. The books recomended to me are Dr. Melissa Palmer's guide to Hepatitis & liver Disease, and Living with Hepatitis C a survivor's guide by Gregory T. Everson. Both books include all your symptoms. I am a little angry & surprised that doctors don't know more about this disease and that they are so dismissive. Knowing what to expect will make living with the illness alot easier for me.

Best wishes, Marcia
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