hep C and cryoglobulinemia

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

KJL
New Member


Date Joined Sep 2006
Total Posts : 6
   Posted 9/15/2006 10:43 AM (GMT -7)   
Hey, I'm new to this site and I've found some very helpful info. Thanks! I'm 30 yrs old, female, and was just diagnosed with hep C and positive for cryoglobulinemia. I'm type 3a, viral load 1.2 million, ALT in low 60's and AST mid 60's. I go for liver biopsy on Tuesday... concerned about procedure and results. If anyone can tell me what they experienced with the liver biopsy- step-by-step, I would appreciate it. I was told I will be in the hospital for the entire day (but not night). My symptoms are fatigue, chills, brain fog, and numbness in hands and feet. I have heard that the hep C tx often cures the cryo. Anyone have any info? I will start the combo treatment once my biopsy results are in, my doc says.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/15/2006 2:32 PM (GMT -7)   
Hi, KJL, and welcome to the forum! I had my biopsy in '93, which diagnosed me with chronic active hep C. I have spoken to others who have had biopsies recently, and the procedure and how everything is done seems not to have changed much. I was hooked up to a BP cuff...the kind that is automatically monitoring BP throughout. I received no sedative at all...not even a Valium. I had to stop taking ibuprofen for a week prior to biopsy. To be honest, it was a very painful thing--when the needle is plunged in. A little like being hit with a hammer with a knife on the end. They do anesthesize the skin at the site of the biopsy site. I had really bad back pain and finally gave in and accepted an injection of Demerol. I was put in a private room in the hospital until late afternoon. Had to lie on my side with a towel rolled up under the biopsy site (to prevent bleeding.) I was sore that night and the next day, but fine after that.

Sorry, I cannot help you with the cryoglobulinemia.

Are you seeing a hepatologist or gastroenterologist?

Connie

wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 9/15/2006 5:26 PM (GMT -7)   
my husbands was done through his neck,though im not sure why it was different then connies,,,but the rest is pretty much the same,except he was already in the hospital when they did it,and he wasnt released until 2 days later,,,,,,,good luck with the treatment
trish
 
 
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!" 


scrued
New Member


Date Joined Sep 2006
Total Posts : 1
   Posted 9/15/2006 7:26 PM (GMT -7)   
skull   nono Ihear ya Trish... I just got wordthat after being in Remission for 6yrs(rebetron/comb.therapy)that I am no longer in Remission...GGGRRRR!!!WHAT NOW?????

Marg57
Regular Member


Date Joined Dec 2005
Total Posts : 446
   Posted 9/16/2006 12:18 AM (GMT -7)   
Mine was through the neck also. Through the jugular vein which sounds scary and believe me i was petrified. It was done that way because of the risk of bleeding. I begged the b**ch (the only bad medical person I have encountered) for some form of medication but she said they had not indicated anything on my paperwork. I was already in hospital in liver failure. I must have looked as though I was going to feint or move or something because she ended up giving my something and I woke when it was over. No side effects afterwards. Not even any soreness in the liver area.
Hope it all goes well.
Marg
 


KJL
New Member


Date Joined Sep 2006
Total Posts : 6
   Posted 9/16/2006 5:37 AM (GMT -7)   

Hey, thanks for your replies. My biopsy will be done through the liver. I'm scared about the procedure, but even more scared the results will reveal I have cirhosis...

If anyone knows anymore about cryoglobulinemia, please let me know.


KJL
New Member


Date Joined Sep 2006
Total Posts : 6
   Posted 9/16/2006 5:39 AM (GMT -7)   
I am seeing a GI and a hemotologist because of the cryo.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/16/2006 11:44 AM (GMT -7)   
That's good that you are seeing specialists, KJL.  Good luck with the biopsy and results!
 
Connie

Marg57
Regular Member


Date Joined Dec 2005
Total Posts : 446
   Posted 9/18/2006 2:17 AM (GMT -7)   
Good luck KJL. Hope nothing sinister is found in the biopsy.
Marg
 


wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 9/19/2006 2:24 PM (GMT -7)   
oh one more thing,,,they told hubby that he might have shoulder pain,,,,,something about the liver when biopsied causes shoulder pain,,,,,,,,he did have a lil,but not too bad,,,hope all goes well
trish
 
 
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!" 


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/21/2006 7:34 AM (GMT -7)   
Scrued, just wanted to pop back in to say I am really sorry you are no longer in remission after 6 years! I don't believe I've ever heard of someone relapsing after such a long time of remission. That stinks! Are they recommending treatment again?

Connie

KJL
New Member


Date Joined Sep 2006
Total Posts : 6
   Posted 9/22/2006 6:45 AM (GMT -7)   
Had the liver biopsy... wasn't too bad. I had a bone marrow biopsy recently and that was way worse. Now I'm playing the waiting game. Hopefully I will get the results soon... I'm worrying myself to death!! confused

wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 9/22/2006 11:49 AM (GMT -7)   
kjl, glad the biopsy is over and will be hoping for good news! scrued,what does your dr say about treatment again?? sorry to hear to hear your remission is over,,,,,,,,

trish
 
 
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!" 


farflite
New Member


Date Joined Sep 2006
Total Posts : 2
   Posted 9/23/2006 1:31 PM (GMT -7)   
Sorry to hear about your relapse!That's too bad, dang it.
Hi, I'm Debbie and my husband Greg has Hep C. At the moment he has almost every symtom there is for cirrhosis. He is still drinking and will not go to the doctor. We have no insurance and he has not been able to work for over a year. We are trying to make with my business alone which is pet grooming. I'm kinda at my wits end. Any suggestions? DEB

"The questions you ask set limits on the answers you find"
Temple Grandin

Post Edited By Moderator (Admin) : 9/25/2006 8:57:41 AM (GMT-6)


Marg57
Regular Member


Date Joined Dec 2005
Total Posts : 446
   Posted 9/24/2006 5:33 AM (GMT -7)   
Hi kjl, Glad the biopsy wasn't too bad. Hope the results are good.

Hi scrued. Sorry top hear about your relapse. Hope you are able to have treatment and go back into remission.

Debbie. Welcome to the Forum. What a pity your husband wont stop drinking. It seems to be quite common in liver disease patients. He really needs specialist help if he has cirrhosis.
Are you in Australia. I was wondering about the Farflite Australian Shepherds in your sign off.

Marg.
 


wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 9/25/2006 12:11 PM (GMT -7)   

farflite,

im sorry your husband wont stop drinking,,its hard to watch a loved one who needs help,and will not get it. I will be thinking of you and hoping he changes his mind and gets the help he needs. take care of yourself..

 


trish
 
 
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!" 


NanaR
New Member


Date Joined May 2013
Total Posts : 17
   Posted 5/29/2013 10:39 AM (GMT -7)   
Is this thread still active?
NanaR

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 5/29/2013 10:53 AM (GMT -7)   
NanaR, no. The last post before yours was in 2006. I suggest that you start a New Topic and tell us about your situation. Simply click on New Topic instead of Reply. Give it a title and post away. That way more people will see your post and respond.

Welcome to the forum!

Hugs,
Connie
hep93
Forum moderator - Hepatitis


"But that was yesterday, and I was a different person then."

Lewis Carroll, Alice in Wonderland

Liver transplant recipient, Oct. 27, 2011, at Mayo Hospital, Jacksonville, FL
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 3:52 AM (GMT -7)
There are a total of 2,733,991 posts in 301,165 threads.
View Active Threads


Who's Online
This forum has 151299 registered members. Please welcome our newest member, ABBear.
225 Guest(s), 0 Registered Member(s) are currently online.  Details



Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer