So far the ascites has not been infected. But he kept getting encephalopathy really bad, to the point of comas and near comas. Well last month he was in the hospital for 12 days, they were thinking he wasn't compliant with the lactulose, he started going into a coma under their care. They found he had a prostate infection and does take the lactulose. Mark is having another MRI next week, to make sure the spot on his Liver is not growing, our doctor told us if it is cancer he will be transplanted asap. I hope they get your brother a liver soon, sounds like he needs it! They are making arrangements for Mark to get a TIPS this week. Today he is to have a doppler of his right arm to rule out DVT, last month (a week and a half ago) while in the hospital they transfused him with blood and it infiltrated. Now he has a large knot on his arm that is painful. Just keep faith and our guys will get a new liver very soon!!
The doctors are just monitoring the spot with MRI's every 3 months to make sure it is not growing. We do have a member that has had the chemoembolizations and I think she also had the radiofrequency abalation. My husband went into a coma in 2001, he got better and didn't have any problems until last November. He has been in and out of the hospital since. They told us in December that he needed a transplant. He has had every thing except bleeding varices. He has had alot of trouble with his kidneys they are very sensitive to drugs and as we recently found out dyes that they use in procedures tend to cause him to go into renal failure.
They ruled out the DVT to the right arm today. Still no word on the TIPS procedure, as to when. I will be on the phone in the morning if I don't get a call soon, because if they don't do it this week they need to get him in for a paracentesis by Friday. His potassium was high so I had to go pick-up Kaolate and sodium bicarbonate to get it down. It is always something!
Your brother really sounds like a "go getter". Mark just doesn't have the energy, when there is no crisis. He will help around the house more, but just a few minutes and he is worn out.
SORRY FOR WRITING IN ALL CAPITALS. I'M NOT YELLING. I'VE HAD A STROKE & CAN'T USE MY LEFT ARM. SAD BECAUSE I USE TO TYPE 70 WORDS A MIN, NOW DOWN TO ONE FINGER.
MY HUSBAND HAD ASCITIES IN SCROTUM. VERY PAINFUL. NOT A HAPPY CAMPER EITHER. I FINALLY TALKED HIM IN GOING TO THE HOSPITAL. HE WAS THE TALK OF THE HOSPITAL. LUCKY FOR THEM WE BOTH HAVE A SENSE OF HUMOR. ONCE HE HAD HIS BELLY TAPPED HIS SCROTUM WENT BACK TO ORIGINAL SIZE.
ARE YOU ON THE LIVER WAITING LIST? WE ARE GOING TO SAN ANTONIO ON MON. THE 13TH TO START HIS EVALUATION. I DON'T KNOW HOW LONG IT WILL BE BEFORE WE KNOW IF HE'LL BE ACCEPTED OR NOT.
THAT IS WHY I WANTED TO TALK TO OTHERS about THEIR SITUATIONS.& HOW THEY HAVE OR ARE DEALING WITH EVERYTHING. MY GUY HAS HEP C & CIRROSIS OF THE LIVER. 2 YRS. AGO THEY DIDN'T HAVE MUCH HOPE FOR HIM BUT LOTS OF PRAYERS, GOOD CARING DOCTORS & MANY HOSPITAL VISITS HE'S STILL WITH US. HOW ARE YOU FEELING? GOOD WE HOPE. LOOKING FORWARD TO HEARING FROM YOU. TEXAN GRANDMA
Welcome Texan Grandma, my husband is listed for transplant. My husband has HepC and cirrhosis also. His ascites has been quite extreme! SisterMo, I know that Mark's AFP marker was 8 the last time they checked it.