Hi Shel, I am glad that you did it! Yes it is very exhausting, but it is well worth it! I know it made you happy, to see Robert open up and agree to the chemical dependency program. They are so right, about being listed for the transplant the sooner the better!
Great news that he is going to be listed for transplant! Im glad the long days are over for you both. Now try to catch up on your rest:) take care
Congratulations on your husbands listing. He now joins the rest of us on a tough journey. I too was placed on the list but told that if my health remained the same (only liver problems) that I could be on for a long time. I will not mince words....the waiting is hell. Be prepared for a quality of life that is affected by the meds side effects, the frustration and impatience of having a chronic illness, a loss of independence, missing work and feeling worthwhile (at least in my case...I am on disability). THE most important things to concentrate on are that he is in the hands of the MAYO CLINIC (all transplant patients should be so fortunate) he has a wonderful support group (that's you sweetie! and others you might not have told us about), and that it is expected that he be frustrated, impatient, feel crapy, etc., etc., etc.! So hang in there! Focus on the positive you can find. Deal with the negative in the best way you can. And most important...let God know you are depending on him.