Hi Maustin, Welcome to HW. I am so sorry you are going through these hard times! I have been going through this for a year now. He has been listed for a transplant since June. He has been in the hospital several times this year. Stable is only short lived here. He has gone through many confused states to the point of stupor and coma. When the confusion increases we up the doses of lactulose. There are many things that can cause the confusion (encephalopathy), high ammonia levels, infection, electrolye imbalance, etc... My husbands has turned out to be a infection of the prostate, since being treated for it his mind is clear as a bell. My husband has the nutrition problems like your wife, I have my husband eating small meals several times a day, I am giving him Boost High Protein to help combat his very low albumin levels, the doctor has told me to do this for him (always check with the doctor before adding supplements). It is suppose to help with the fluid accummulation, ascites. They were tapping him every week always taking more than 10 liters. They put a TIPS in him last month, he started getting fluid everywhere face, arms, legs, stomach. The doctor says it is because of his poor nutrition. Right now it looks as though the ascites and fluid are easing up. Someone also told me regular water tends to cause the fluid build up too and to have him drink flavored water, well to my surprise he has lost 2lbs. of water in the past 2 days. They have switched my husbands diuretics around so much trying to find the right combination, don't know if it has been found yet! He has been hospitalized from the potassium getting to high also, the aldactone will do that.
Now for your answers, everybody is different, my husband no longer shuffles or falls. He is able to write his name and even take notes. But he would not be able to do something like calligraphy. He is also able to bath himself and dress. He also can carry on conversations of intellectual content. When she becomes more stable, she will be able to do these things. She really sounds like the encephalopathy is not under control. My husband has gone through this! My heart goes out to you, I have been dealing with this for a year now! I have been able to work, most of the time except when the encephalopathy kicks in.
Keep us posted on whats happening, It always helps to let it out!!
Post Edited (wheredidigo) : 12/7/2006 6:12:38 AM (GMT-7)
It's good to learn about others' experiences with this. Her doctor tells me she has "classic symptoms" but he doesn't really go into the detail I'd like about what to expect or what he sees with other people. We have an appointment to see her neurologist next week on Tuesday for a follow-up to her last hospital stay. He ordered a CT and found some damage, but I'm not entirely sure the CT is sufficiently revealing or even the right diagnostic tool at all. Her neuropathy gets so bad sometimes.....
Anyway, thank you all *so* much for this information and the support!