Hi Lucy, Welcome to HW. I am so sorry you are going through this! I am my husbands caregiver, he has HepC and cirrhosis. He is on the waiting list for a liver transplant. HepC is a blood borne virus, it can be contracted by blood transfusions, sharing needles, sharing personal items like razors or toothbrushes, and sometimes but very rarely it can be transmitted sexually. HepC can cause cirrhosis, it usually takes many years for it to do so. Cirrhosis can not cause HepC. Cirrhosis has many different causes, with alcholism being the number one cause. People with endstage liver disease (ESLD), have low platelets, albumin, red blood cells, hemoglobin, etc... This is what causes the easy bruising and bleeding. Many people with ESLD do have gall bladder problems, the pain can be quite severe at times. People who have HepC and or cirrhosis are at risk for Liver cancer. The sores that your mother has is probaly from poor nutrition, malnutrition, many ESLD have this problem. Another problem that happens often is encephalopathy, the signs are forgetfulness, sleeping alot, confusion, stupor, and coma. It usually means the ammonia level is high, infection is another cause, electrolyte imbalance can also cause this. It can be life threatening, lactulose is usually given for this, my husband also takes antibiotics for it. Portal hypertension is also another complication of cirrhosis it causes varices and ascites, propanolol or nadolol is usaully given for this. Ascites is fluid build up, it usually starts out in the legs and works it's way up to the abdomen. My husband has the appearance of a pregnant looking stomach. Many people do get a yellow color to them with ESLD, it means the bilirubins are high, or a bile duct is blocked. This causes the skin to itch from the high bilirubins. This is a very serious disease, and unfortunately in my husbands case a transplant is the only thing that will save his live. There is no other option.
Hi Lucy, If your mother has stopped drinking, she won't necessarily have the DT's. Things that happen in ESLD, are going to be very obvious swelling, yellow tinted skin and profound confusion. They will not be able to function at home without help. My husbands abilities vary from day to day. It hit him pretty fast. Thank goodness the doctors have watched him close as he would be dead if they had not. He has been in comas and has had severe problems with fluid. The disease is a very cruel one, alot of dignity can be lost with it.
My Heart goes out to you My Father's child!!! This disease is so hard on everyone, especially the family!!! I am so sorry your father and family suffered so much!! I know the pain is hard right know, but time is the only thing that does ease it. I lost my mother 2 years ago and the pain is not as bad, I still miss her very much!! My Prayers go to you and your family!! Be kind to yourself!
hi tdt and jims wife, i thank you for the support. its hard being a care giver for this disease, i have to say i,m glad its over with for him in pain. i feel like i,m a expert on it in just in 5 months. you just have to make sure your always on top of things when they are in the hospitals, even some nurses didnt know much about amonia levels or what the lactouse even does, its hard to believe. and i,m already thinking about the good times. i will bury my father friday with full milatary honors. and i wish all the best for you and your love ones who have this horrible disease. please if you dont mind i still would like to keep in touch with everybody, i want to hear good news instead of bad.
Hi My Father's child, we do get forced into learning about this disease very quickly! There are alot of nurses that really know nothing about Liver disease, I use to be one of them. My husband has given me a crash course! I will be thinking about you tomorrow! Please come back and visit!
Annette, I did not think you were slamming the nurses. The health care industry is not very educated with ESLD, they don't have that many nurse with the knowledge unless they are in the specialty area for liver disease. I found I was educating them often with our hospital stays. There are definitely nurses out there that slack in their duty's. I have encountered the same treatment with my husband, everyone deserves 100%. It seems they have never been in a hospital bed or they would definitely have different attitudes, and they would give more respect to the patient!!! I know I feel like a little girl when I hurt and I am 46 years old! We all need to vent and this is a good place for it!