Cirrohsis- need help

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lucym
New Member


Date Joined Dec 2006
Total Posts : 4
   Posted 12/12/2006 6:02 PM (GMT -7)   
ok .. i just need some help understanding this.
My mom is an alcoholic and has been for 20 + years.    about 3 years ago we was having really bad nose bleeds also her skin looks awful, sores and brusing, her skin is yellow and she looks swollen... I have always assumed that her liver was gone but no real diagnosis. 
Friday she was to have gull stones removed, we were all there are the sergeon came out and told us that her liver was too bad.. that he was checking it and it would be cancer or Cirrohsis, but he recommeneded not taking out the gull bladder because of a possible bleed out.   He said the pain she was in was likely not because of the gull stones but because her liver was so damaged.
He than came back 20 minutes later and said that the preliminary of the little swap he took of the lives was not cancerous, but that didn't mean it wasn't cancer and he would do a full biopsy.   we will get the results of that on Jan2. 
He said any alcohol at all would send her into liver failure.   the surgeon also menetion Hep C ... Is hep C something that turns into Cirrhosis or dose Cirrohsis sometimes lead to Hep C? or can you have one with out the other.
I got from the surgeon that she does not have long.   I know it's bad... the surgeon said that she  needs a liver transplant but she would have to be %100 alcohol free for 6 months. If anyone could share there experience with Cirrohsis i would appriciate it.  I would just link to know what the next steps would be if she keeps drinking... I assume she is in pain but she won't tell us much.. any advice or info is greatly appriciated.
 
 

TDT
Regular Member


Date Joined Jan 2006
Total Posts : 402
   Posted 12/12/2006 9:50 PM (GMT -7)   

Hi Lucy, Welcome to HW. I am so sorry you are going through this! I am my husbands caregiver, he has HepC and cirrhosis. He is on the waiting list for a liver transplant. HepC is a blood borne virus, it can be contracted by blood transfusions, sharing needles, sharing personal items like razors or toothbrushes, and sometimes but very rarely it can be transmitted sexually. HepC can cause cirrhosis, it usually takes many years for it to do so. Cirrhosis can not cause HepC. Cirrhosis has many different causes, with alcholism being the number one cause. People with endstage liver disease (ESLD), have low platelets, albumin, red blood cells, hemoglobin, etc... This is what causes the easy bruising and bleeding. Many people with ESLD do have gall bladder problems, the pain can be quite severe at times. People who have HepC and or cirrhosis are at risk for Liver cancer. The sores that your mother has is probaly from poor nutrition, malnutrition, many ESLD have this problem. Another problem that happens often is encephalopathy, the signs are forgetfulness, sleeping alot, confusion, stupor, and coma. It usually means the ammonia level is high, infection is another cause, electrolyte imbalance can also cause this. It can be life threatening, lactulose is usually given for this, my husband also takes antibiotics for it. Portal hypertension is also another complication of cirrhosis it causes varices and ascites, propanolol or nadolol is usaully given for this. Ascites is fluid build up, it usually starts out in the legs and works it's way up to the abdomen. My husband has the appearance of a pregnant looking stomach. Many people do get a yellow color to them with ESLD, it means the bilirubins are high, or a bile duct is blocked. This causes the skin to itch from the high bilirubins. This is a very serious disease, and unfortunately in my husbands case a transplant is the only thing that will save his live. There is no other option.

If your mother continues to drink, she will not live very long at all! My husband had to have 6 months of documented sobriety, to be listed for transplant. He attends A.A meetings. I can tell you this the worse thing that I have ever had to go through in my whole life! I hope your mother will put the bottle down for you and your family!
I hope I have given you the answers, you needed.
I will put you and your family in my prayers. Hope to hear back from you!
Teresa 

Marg57
Regular Member


Date Joined Dec 2005
Total Posts : 446
   Posted 12/13/2006 3:27 AM (GMT -7)   
Hi Lucy,
I too am sorry you are suffering so much. Teresa has given you great information about hep c and cirrhosis. I hope your mother stops drinking. It's the only way she can continue to live.

Keep us posted about your situation. Everyone here is kind and supportive are always there when needed.

Marg
 


lucym
New Member


Date Joined Dec 2006
Total Posts : 4
   Posted 12/13/2006 5:47 AM (GMT -7)   
Teresa  & Marg,
Thanks so much for your information.. It does help me understand  Cirrhosis better.  It gets so confusing reading medical websites and i just wanted to hear it from a real person.   I am not surprised that my mother has this ... she has had symptoms for many years.   
I don't see her much because i really don't like her much as a person... I love her because she's my mother  but i hated to be around her while she was drinking so i just stopped going around.. last year i got married..... i saw her maybe 4 times last year.      and this year about the same amount so I don't know fully what worst symptoms she is having.   I have talked to her everyday since Friday and she sounds good... which makes me think that she has been having a few drinks to maybe take the edge off.  If not,  i would think that she would be in full withdrawals by now.. she says that she hasn't had a drink in a week.       From reading things on this board i am understanding that this is going to be a very long, painful process for her.  Do you know what i can expect if she continues to drink.   All the doctor told us was that with even a drop of alcohol she will go into liver failure.    What can we expect from liver failure?    I appreciate all your help, advise and information.    Lucy

TDT
Regular Member


Date Joined Jan 2006
Total Posts : 402
   Posted 12/13/2006 3:31 PM (GMT -7)   

Hi Lucy, If your mother has stopped drinking, she won't necessarily have the DT's. Things that happen in ESLD, are going to be very obvious swelling, yellow tinted skin and profound confusion. They will not be able to function at home without help. My husbands abilities vary from day to day. It hit him pretty fast. Thank goodness the doctors have watched him close as he would be dead if they had not. He has been in comas and has had severe problems with fluid. The disease is a very cruel one, alot of dignity can be lost with it.

Teresa


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 12/13/2006 11:00 PM (GMT -7)   
Lucy I am glad you found this forum. It is a sanity saver for me. I am so sorry about your mother. I know how you feel when you said that you didn't like her but that you loved because she was your mom. My mom was an alcoholic also. She past away when I was 17. I hated her drinking, she could become very nasty when she was drunk. But when she was sober I loved her to death. She didn't go to doctors. But when we finally got her to one it was to late. It's been well over 30 years but you know I still have the love hate feelings for her. Let your mom know how much you love her and that you willing to help her through this. It's going to be one heck of a ride. Take care of yourself. Everyone who's read your post will be thinking and praying for you and your mom. Pink Grandma

myfather
Regular Member


Date Joined Dec 2006
Total Posts : 87
   Posted 12/19/2006 4:07 PM (GMT -7)   
hi, i lost my father yesterday because of cirrohsis he was 88 yr old, we found out in july of this year that he had it. he was in and out of the hospital 6 times since july. it wasnt from drinking or hepatitis, he worked in a chemical factory for thirty years and was gased once with co2 gas, after that he wasnt quit the same.
about 6 years ago this legs started to swell took water pills they went down, then about 3 0r 4 years ago he was always tired. didnt care about his appearance. every time the dr did blood work his blood would be thin, and then we had the aneima. high blood pressure.
all these things added up to cirrohsis but the dr he had then didnt get it even with all the signs and blood work. we changed drs and hospitals and they caught it late. his amonia levels were high enough 3 times to but him in a coma state, i didnt think anything about cirrohsis, i would never have guessed it. in the last 5 and 1/2 months my fathers life was a total nightmare for the whole family, he had swollen legs, stomach, brusies, not being able to talk, forgetfulness, bleeding . he was home a total of 6 weeks. yesterday he passed, it was for the best.  if it wasnt for the cirrohsis my father even at 88yrs would still be alive and healthy. and all he was doing was making a living taking care of his family.

Jim's wife
Regular Member


Date Joined Dec 2006
Total Posts : 31
   Posted 12/20/2006 7:33 AM (GMT -7)   
I am so sorry, My Father's Child. Cirrohsis is a horrible disease that robs its victims of quality of life. And yes, some DRs can't seem to put the symptoms together into an appropriate diagnosis.
 
I am so sorry that your father suffered so long, and that the last few months have been a nightmare for you all.
 
Please try to remember the good times with him and how much he cared for his family.
Venita and Jim
Wlmington DE

TDT
Regular Member


Date Joined Jan 2006
Total Posts : 402
   Posted 12/20/2006 9:45 AM (GMT -7)   

My Heart goes out to you My Father's child!!! This disease is so hard on everyone, especially the family!!! I am so sorry your father and family suffered so much!! I know the pain is hard right know, but time is the only thing that does ease it. I lost my mother 2 years ago and the pain is not as bad, I still miss her very much!! My Prayers go to you and your family!! Be kind to yourself!

((((HUGS))))

Teresa


myfather
Regular Member


Date Joined Dec 2006
Total Posts : 87
   Posted 12/20/2006 4:37 PM (GMT -7)   

hi tdt and jims wife, i thank you for the support. its hard being a care giver for this disease, i have to say i,m glad its over with for him in pain. i feel like i,m a expert on it in just in 5 months. you just have to make sure your always on top of things when they are in the hospitals, even some nurses didnt know much about amonia levels or what the lactouse even does, its hard to believe. and i,m already thinking about the good times. i will bury my father friday with full milatary :-)  honors. and i wish all the best for you and your love ones who have this horrible disease. please if you dont mind i still would like to keep in touch with everybody, i want to hear good news instead of bad.

myfathers child :-)

 


TDT
Regular Member


Date Joined Jan 2006
Total Posts : 402
   Posted 12/21/2006 9:09 AM (GMT -7)   

Hi My Father's child, we do get forced into learning about this disease very quickly! There are alot of nurses that really know nothing about Liver disease, I use to be one of them. My husband has given me a crash course! I will be thinking about you tomorrow! Please come back and visit!

((((HUGS))))

Teresa

myfather
Regular Member


Date Joined Dec 2006
Total Posts : 87
   Posted 12/21/2006 11:04 AM (GMT -7)   
HI TDT, YOUR RIGHT WE DO GET FORCED INTO THIS DISEASE. I WASNT SLAMMING ALL THE NURSES SORRY!! SOME OF THE CARE MY FATHER RECIEVED WASNT 100 PERCENT I THINK EVERY BODY IN THE HOSPITALS NO MATTER WHAT AGE SHOULD GET NOTHING LESS THAN THAT. THANKS FOR YOUR SUPPORT AND HUGS. MY FATHERS CHILD IS 54 BUT I FEEL LIKE A LITTLE GIRL RIGHT NOW.
THANKS FOR LETTING ME VENT.

ANNETTE

TDT
Regular Member


Date Joined Jan 2006
Total Posts : 402
   Posted 12/21/2006 11:58 AM (GMT -7)   

Annette, I did not think you were slamming the nurses. The health care industry is not very educated with ESLD, they don't have that many nurse with the knowledge unless they are in the specialty area for liver disease. I found I was educating them often with our hospital stays. There are definitely nurses out there that slack in their duty's. I have encountered the same treatment with my husband, everyone deserves 100%. It seems they have never been in a hospital bed or they would definitely have different attitudes, and they would give more respect to the patient!!! I know I feel like a little girl when I hurt and I am 46 years old! We all need to vent and this is a good place for it!

:-) Teresa

myfather
Regular Member


Date Joined Dec 2006
Total Posts : 87
   Posted 12/21/2006 12:37 PM (GMT -7)   
HI TERESA, YOU HIT THE NAIL RIGHT ON THE HEAD. I,M GLAD I FOUND THIS SITE WITH REAL PEOPLE ON IT, I KNEW I WASNT THE ONLY ONE, BUT YOU ALWAYS THINK YOU ARE AT THE TIME. WISH YOU AND YOUR HUSBAND WELL. HAVE A NICE CHRISTMAS AND NEW YEARS. I WILL BE BACK ON IN A DAY OR TWO.
THANKS SO MUCH

ANNETTE
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