New and confused

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ndlilbit
New Member


Date Joined Dec 2006
Total Posts : 1
   Posted Today 11:09 PM (GMT -7)   
Hi everyone, I have no idea what to say I guess I am a little lost... ok maybe not so little. I am 27 years old. I have been diagnosed with stage 2 phase 3 fibrosis border line cirrohsis of the liver and they are not sure what is causing it. They drew the blood yesterday and sent it away. I found out about the problem in a rather shocking way. I was going to have surgery to get the lap band on 11/30/06, when I woke the dr told me he was not able to and that my liver and my spleen were 3-4 times larger then they should be. I have no idea what to make of all this. The dr that I am needing to see is booked through Feb but said he would try to get me in to see him in the next 2 weeks as it is so urgent. I am so scared and have no idea what to expect... I want to know if I am dying and cannot muster the courage to ask. I don't want to worry my family, they do know but are very unsure themselves. Any help or advice would be great as I have not seen the dr I only have some varying information I have from other websites. I just found this site and look forward to meeting you all as we fight this together. Thanks in advance for anything you can tell me...
God Bless,
ndlilbit

Post Edited (ndlilbit) : 12/12/2006 11:13:01 PM (GMT-7)


Marg57
Regular Member


Date Joined Dec 2005
Total Posts : 446
   Posted 12/13/2006 3:19 AM (GMT -7)   
Hi ndlilbit
Welcome to the Forum.

Once you see a heptologist and get the blood results you will know more about you disease and hopefully medications will keep the liver from developing cirrhosis. Even cirrhosis doesn't mean you are dying. I have cirrhosis (caused by autoimmune hepatitis) and I plan to live to a ripe old age. I'm 58 now.

Try to relax and not worry too much before you have your diagnosis. I know that's easy for me to say. I worry about nothing. But stress cannot help your health situation.

Make sure you live as healthily as you can, avoiding alcohol, I'm not suggesting alcohol is the cause of your problem - it's too often people make this wrong assumption.

Be careful what you read on websites, especially when you don't know what has caused your liver condition.

Talk to you family. You need their support and I'm sure they want to help you.

This is very general help. Your doctor is the best person to seek advice from. Ask him what he thinks the problem may be - what are they looking for? This will give you a better idea of what to research.

Good luck. Keep us posted.
Take care.
Marg
 


frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 12/13/2006 7:57 PM (GMT -7)   
Welcome ndlilbit

Marge is so right about trying to reduce stress and waiting to see the hepatoligist. Hopefully they can get you worked in quickly and that it will eleviate some of your worries. You need to knwo what you are up against before you jump to any conclusion about the long term. We all know here that is easier said than done. A lot of doctors do not deal with the particulars of hepatitis, so the best information you can get is from someone who specializes in these type diseases. Marge is also right about watching things that you read on websites. From my own experience I know that at times they all sounded like things that were wrong with me and I ended up worrying and stressing more than I should have. Please keep us posted and I hope that you get in quickly to your doctor.

Lucy

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 12/13/2006 10:35 PM (GMT -7)   
Hello ndlilbit,
You have found the right forum. The people here are the best. Both Marg and Lucy gave you the best advice. I am a worry wort and it really doesn't do you any good to stress until you what your up against. Please take care of yourself... both body and mind. And welcome aboard the best support group around. Pink Grandma :-)
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