Hello SeaWings, Welcome to HW. My husband does the same things to me....I am sure it has alot to do with the liver function. My husband gets very snappy, with our 10 year old son! When I tell him, he is being that way he claims he is not! He is very sensitive to anything I say. The doctor caught him being like that to me in the hospital and told him to chill! He really try's hard to control it, but I think it is something he has very little control with. I don't know how many times I have bit my tongue and said nothing to keep peace in the house. He often does not even remember saying the nasty hurtful things he says.
Seawings when did your husband have his TIPS done? My husband had his done last month. At first he gained alot of fluid, tachycardia, back in the hospital. Then 1 week after he got out of the hospital, the encephalopathy hit bad for 2 days, antibiotics were started he had a sinus infection. The fluid started coming off, around 20 lbs. in those 2 bad days. Now he is feeling better than what he was over a year ago. I hope he can stay the way he is til he recieves his give of life. Just behavoir changes and forgetfulness can be a sign of HE in the milder forms, my husband has gone into stupors and comas. It can get pretty scary, it can happen so fast!
The first time he had HE was just before he had TIPS about 4 years ago. He also had variceal bleeding and acites at that time. He had another occurence of HE after TIPS, then one more two years ago. He was doing fine until his recent procedure by a radiologist (Nov. 30) to check the shunt function. I'm sure that this recent procedure caused it. He was taking Krystolose twice a day until Monday when he showed signs of HE, then increased it to 3-4 times. The doc also gave him a prescription for oral neomycin which is supposed to lessen the symptoms of HE. Can anyone tell me more about this drug? He hasn't had a chance to call his GI back since Monday to discuss it. We have never been referred to a nutritionist about how much protein he should have daily. We were told just to limit his sodium to l,000 or less per day and not have too much protein (whatever that means). We use Salt Watchers web site to order some foods since grocers don't carry many low sodium products.
I appreciate reading about so many other experiences here. Right now his health is good compared to the suffering of others. My heart goes out to all the caregivers out there. I hope your holidays are blessed with some relief.
Well My husband has done it again!!! He started going into HE again on Christmas Eve, I thought I had it under control around 1:00 a.m. Christmas morning. I was woke by my 10 year old son around 6:00 a.m, to open Santa presents. My husband was back in a bad state, again he ended up falling....needless to say I spent most of Christmas in high stress and in E.R. of course. He has been admitted, is in restraints, still basically in a stupor, hallucinating and combative!! I am home trying to clean up the mess, then will be back up at the hospital. I hope everyone elses Christmas was better than this.
Aww Trish so sorry to hear about your Christmas!! I just don't think I could take anymore of the drinking by Mark, I know different living arrangements would have to be made if he did start drinking! Been through it can't do it again! Well Mark is getting back to himself today, I cornered a nurse and she told me Dr. Refai had not seen him and she could not call him unless "the team" consulted him, I told her thank-you and called his RNP immediately! Within less than 30 minutes the RNP was there and assure me Dr. Refai would be there shortly. They were both upset that a consult had not been done! I was hot by this time, felt like I was lied to by a medical student (intern). I asked the admitting doc to do a chest x-ray on the right side because that is where he fell, they didn't do it.....I also found out from a nurse that he had probable Staph, which is what caused the HE. Dr. Refai, told me every thing that was going on and ordered the chest x-ray that I wanted, they believe he has fractured a rib or some ribs. I will know tomorrow, for sure. Dr. Refai is hoping that the staph is just a case of cross contamination, he is hopeful that it is just the proctitis which can be chronic. They did start Mark on some Vancomycin IV, they were giving him Levaquin IV. OOOOHHH the life we live with ESLD!!!!!
Post Edited (wheredidigo) : 12/28/2006 10:04:13 AM (GMT-7)
I know Connie, and I will not put up with anymore drinking days! If Mark ever starts back, I am outta here, he will be on his own. I have been through to much #@** this year with his disease. Will not do it again!! He has been sober for almost 2 years, and I am proud of him for that!!!