Seeking Answers

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SeaWings
New Member


Date Joined Dec 2006
Total Posts : 9
   Posted 12/17/2006 3:07 PM (GMT -7)   
My husband had TIPS about 3 yrs ago and recently had it checked for function.  Drs. said it looked real good.  It was done due to ascites and varices.  Since then he had 3 episodes of encephalopathy and came out fine.  I am nervous almost daily watching for signs or signals of it recurring.  My question is that of emotional sensitivity.  He is very sensitive and accuses me of being critical and snappy at him.  He has exploded with anger at least twice (verbally).  Is this a normal condition with cirrhosis?  Lately he has seemed confused at brief times but the next minute is cohesive.  His energy level is good although he does nap and doesn't sleep more than 4-5 hours straight at night.  I feel like I have to be on pins and needles all the time lest I be accused of picking on him.  Is this normal?

wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 12/18/2006 12:39 PM (GMT -7)   
My husband has extreme emotional outburst ranging from anger to sadness,,,not sure if its all due to cirrhosis or its combined with the fear his health condition causes him,,,but alot IS in fact due to the liver not functioning properly,,,,,sometimes he doesnt even remember saying the things he does..one thing ive learned in the last year is,,,,,,,,i do NOT take everything he says seriously ,,,though its hard to deal with on a daily basis,,
trish
 
 
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!" 


TDT
Regular Member


Date Joined Jan 2006
Total Posts : 402
   Posted 12/20/2006 10:12 AM (GMT -7)   

Hello SeaWings, Welcome to HW. My husband does the same things to me....I am sure it has alot to do with the liver function. My husband gets very snappy, with our 10 year old son! When I tell him, he is being that way he claims he is not! He is very sensitive to anything I say. The doctor caught him being like that to me in the hospital and told him to chill! He really try's hard to control it, but I think it is something he has very little control with. I don't know how many times I have bit my tongue and said nothing to keep peace in the house. He often does not even remember saying the nasty hurtful things he says.

Teresa


SeaWings
New Member


Date Joined Dec 2006
Total Posts : 9
   Posted 12/20/2006 5:28 PM (GMT -7)   
:-)  Thanks for posting your experiences with this.  Monday he started having hepatic encephalopathy but I caught it in time.  I recognized some symptoms and called his GI who told me that due to the recent shunt procedure to check its function that HE following it is common.  (wish the radiologist would have warned me)  Four hours later and doses of lactulose he was back to normal.  His burst of anger occurred a week prior so I will let this also be a sign of accumulating ammonia.  I will bite my tongue as well when/if it happens again and knowing it is part of his condition helps.  Thanks for sharing.
 

TDT
Regular Member


Date Joined Jan 2006
Total Posts : 402
   Posted 12/21/2006 9:30 PM (GMT -7)   

Seawings when did your husband have his TIPS done? My husband had his done last month. At first he gained alot of fluid, tachycardia, back in the hospital. Then 1 week after he got out of the hospital, the encephalopathy hit bad for 2 days, antibiotics were started he had a sinus infection. The fluid started coming off, around 20 lbs. in those 2 bad days. Now he is feeling better than what he was over a year ago. I hope he can stay the way he is til he recieves his give of life. Just behavoir changes and forgetfulness can be a sign of HE in the milder forms, my husband has gone into stupors and comas. It can get pretty scary, it can happen so fast!

Teresa


SeaWings
New Member


Date Joined Dec 2006
Total Posts : 9
   Posted 12/22/2006 7:03 PM (GMT -7)   

The first time he had HE was just before he had TIPS about 4 years ago.  He also had variceal bleeding and acites at that time.  He had another occurence of HE after TIPS, then one more two years ago.  He was doing fine until his recent procedure by a radiologist (Nov. 30) to check the shunt function.   I'm sure that this recent procedure caused it.  He was taking Krystolose twice a day until Monday when he showed signs of HE, then increased it to 3-4 times.  The doc also gave him a prescription for oral neomycin which is supposed to lessen the symptoms of HE.  Can anyone tell me more about this drug?  He hasn't had a chance to call his GI back since Monday to discuss it.  We have never been referred to a nutritionist about how much protein he should have daily.  We were told just to limit his sodium to l,000 or less per day and not have too much protein (whatever that means).  We use Salt Watchers web site to order some foods since grocers don't carry many low sodium products.

I appreciate reading about so many other experiences here.  Right now his health is good compared to the suffering of others.  My heart goes out to all the caregivers out there.  I hope your holidays are blessed with some relief.


peaches12
New Member


Date Joined Dec 2006
Total Posts : 2
   Posted 12/24/2006 9:32 PM (GMT -7)   
it is hard when your not sure what to expect. Our dr just told me to look out for possible changes such as small halucinations. I had to chase my husband down when he thought there where people in our house stabbing him w/needles. I had to follow him in our car when he had snagged the keys to his car. I ended up checking him into the hospital. While he was there he thought the nurses were blowing powder in his face at night and that spiders were coming down to land on him in the mornings

TDT
Regular Member


Date Joined Jan 2006
Total Posts : 402
   Posted 12/26/2006 9:36 AM (GMT -7)   

Well My husband has done it again!!! He started going into HE again on Christmas Eve, I thought I had it under control around 1:00 a.m. Christmas morning. I was woke by my 10 year old son around 6:00 a.m, to open Santa presents. My husband was back in a bad state, again he ended up falling....needless to say I spent most of Christmas in high stress and in E.R. of course. He has been admitted, is in restraints, still basically in a stupor, hallucinating and combative!! I am home trying to clean up the mess, then will be back up at the hospital. I hope everyone elses Christmas was better than this.

Teresa


wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 12/27/2006 2:33 AM (GMT -7)   
Mine was not good either Teresa,though my husbands was brought on by the fact that he drank while I was at my grandmas,,,was wasted by the time i walked throught the door at 5pm,,,seems he would rather spend Christmas with an old drinking buddy,,,who btw,,stole from us that evening,,,,,then to spend Christmas with his wife,,,it was a horrible night,,,he threatened to ruin my pc,,,which I need for classes starting next week,,because he wanted his car keys(wasnt leaving,just wanted them in his pocket),,and I couldnt hear him from the other room where I was doing dishes and cooking,,,,had to stand between him and pc and tell him,,look MR,,,if you touch my pc,,I dont care whether your sick or not,,,Im gonna beat your ***,,,,so sit down and shut up for a while,,,,fortunatly he did and i didnt have to follow through,,how would that have been spending Christmas in jail???? and him in the hospital??? I yelled at him for about an hour yesterday morning,,,,he acted like he was gettin irritated,,,and I said,aw poor thing,,an hour of complaining and your sick of hearing it,and I had to endure HOURS of your drunkenness,,,,for the rest of the day,,i ignored him,,,hes got to find a place to go,,this is more then i can take,,,i will NOT stand by him while he drinks again,,,I have to take care of me. ,,,
sorry mark had an episode on Christmas teresa,,,I hope they get him straightened up soon..
take care of yourself
trish
 
 
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!" 


TDT
Regular Member


Date Joined Jan 2006
Total Posts : 402
   Posted 12/27/2006 5:08 PM (GMT -7)   

Aww Trish so sorry to hear about your Christmas!! I just don't think I could take anymore of the drinking by Mark, I know different living arrangements would have to be made if he did start drinking! Been through it can't do it again! Well Mark is getting back to himself today, I cornered a nurse and she told me Dr. Refai had not seen him and she could not call him unless "the team" consulted him, I told her thank-you and called his RNP immediately! Within less than 30 minutes the RNP was there and assure me Dr. Refai would be there shortly. They were both upset that a consult had not been done! I was hot by this time, felt like I was lied to by a medical student (intern). I asked the admitting doc to do a chest x-ray on the right side because that is where he fell, they didn't do it.....I also found out from a nurse that he had probable Staph, which is what caused the HE. Dr. Refai, told me every thing that was going on and ordered the chest x-ray that I wanted, they believe he has fractured a rib or some ribs. I will know tomorrow, for sure. Dr. Refai is hoping that the staph is just a case of cross contamination, he is hopeful that it is just the proctitis which can be chronic. They did start Mark on some Vancomycin IV, they were giving him Levaquin IV. OOOOHHH the life we live with ESLD!!!!!

Teresa


Marg57
Regular Member


Date Joined Dec 2005
Total Posts : 446
   Posted 12/28/2006 4:13 AM (GMT -7)   
Trish and Teresa,

I am thinking of you both and praying things improve. Life is so unfair. you two ladies are so special and you have been dealt such a bad hand.

Please take care.
Marg
 


wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 12/28/2006 10:01 AM (GMT -7)   
Teresa,
Im glad Mark is coming out of it,,,how lucky he is to have a wife like you to stand up for him! I hope he didnt crack a rib,or break it,,,very painful stuff and he doesnt need that ,,,,,take care
Marg,
I posted a reply on the other thread :)


trish
 
 
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!" 

Post Edited (wheredidigo) : 12/28/2006 10:04:13 AM (GMT-7)


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 12/30/2006 1:07 AM (GMT -7)   
Hi to Trish, Marge, and Teresa! Sorry I haven't been here for a while (I wrote a post explaining.)

Trish and Teresa, your posts take me back. I had 2 alcoholic husbands and remember very well what hell it was when they drank--which was almost daily. I've had a number of messed up Christmases. And these men did not have liver disease.

Remember to TAKE CARE OF YOU!!

Hugs,
Connie

wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 12/30/2006 9:30 AM (GMT -7)   
glad your back connie,was wondering where you diappeared to,havent read the other post yet. Im trying to take care of me:)
trish
 
 
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!" 


TDT
Regular Member


Date Joined Jan 2006
Total Posts : 402
   Posted 1/1/2007 1:04 PM (GMT -7)   

I know Connie, and I will not put up with anymore drinking days! If Mark ever starts back, I am outta here, he will be on his own. I have been through to much #@** this year with his disease. Will not do it again!! He has been sober for almost 2 years, and I am proud of him for that!!!

Teresa

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