HIV and Hep C Coinfection

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Shayne L. G.-K.
New Member


Date Joined Jan 2007
Total Posts : 2
   Posted 1/9/2007 4:05 AM (GMT -7)   
Firthly, thank you to any person whom care to share or respond to my (VERY FIRST) forum posting, anywhere on the Net (and I am a Tech Spec with 25 yrs exp!).  That said..............
 
I am a 44 yr old Male with HIV, being infected in 1989, and newly diagnosed Hep C (Oct/Nov '06), ala coinfection.  I have been on Anti Retro-Virals for approx 3.5 years, and between those meds I take firstly and for the primary maladies and then the meds to offset the varying side-effects, I am currently running into 20+ substances/prescriptions going into or onto me.
 
I have rebounded in my CD 4 from the mid hundreds to in excess of 1,100 and a CD8/RNA of newly again undetectable, down from 56,000.  (I did have a 500,000+ a few years ago and almost died).
 
I have had Hep A and B.  I am Chronic in all maladies I have ever come into contact with, Sinus, HIV, Liver, MRSA, etc. 
 
My HIV Specialist has been advised by the "specialist" in their/my Cooperative that albeit my partner and I are coinfected, he apparently gave it to me, and we know for sure the infection(s) came in somewhere between Sept/Oct, there has not been enough time to determine Chronic Hep C status.  And as such, they are asking me to not be insistant in beginning Interferon and/or other treatments immediately, as I desire.
 
I have Hep C3A, with a couple hundred thousand on the viral load (hep viral load).  I am now approx into my 4 months of infection.  Ironically, I had been complaining in early October that I felt unwell and had a multitude of symptoms/problems and inquired accordingly.  Over the course of 2 months, they had yet to ascertain what was wrong with me.  I had no less than 25 tests - which is not abnormal for them or me (I get blood draws almost every week it seems).  They did everything other than test for Hep C, as I had just had my most recent test (I used to test proactively).  In November, because my partner tested positive, I asked to be tested, voila - the answer to all the other tests appeared!!!!!!!!!
 
I have effected my Due Diligence and find that almost hands down, checking John Hopkins, CDC, NIH, AMA, BMA, Lifelong, Poz, and all the other assorted resources strongly sddress the benefit(s) and/or need to incept treatment at the earliest possible opportunity.
 
I don't want to wait for another couple months, knowing that most likely I will surely test out chronic - as I have with everything else - and then start treatment in the spring, rolling into summer and nearly to my Birthday and the Holidays at Years End, instead of now, and getting down in time for a real Summer.  (I have been ill for every Summer and Birthday/Holiday Season for 4+ years now - Quality of Life!!!!!!!!!!)
 
Any Ideas, input, et al?  Thanks for reading this lengthy oration.
 
Cheers and HAPPY NEW YEARS.  Shayne/.

TDT
Regular Member


Date Joined Jan 2006
Total Posts : 402
   Posted 1/9/2007 9:21 AM (GMT -7)   

Hello Shanye, Welcome to HW. We have a very good support group here and I hope you will continue to come back. I can understand you wanting to start treatment as soon as possible, but it is possible for your system to kick the HCV, and not require treatment. The treatment can last from 6 months to 1 year or longer. Which is rather expensive treatment also. They doctors have to make sure it is chronic HepC, before they can start it, with that being said you will be still getting a early start on treatment, as people usually do not find out they have it for many years, which is why they call it "the Silent Dragon". If you do test chronic you will also have a better chance at becoming undetectable with treatment, geno type 1 is harder to treat and usually takes longer to treat. Just take a deep breath and see if your body will cooperate and kick it!

My husband has HCV and cirrhosis, he is waiting on the transplant list for a liver. Then after that he will have to start HCV treatment.

Postive thoughts going your way!

Teresa


wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 1/9/2007 4:02 PM (GMT -7)   
Hello Shayne and welcome!
It would be worth waiting the next 2 mths to see if your body can kick this virus on its on,as the infereon treatments can be brutal,,,to say the least,on your body. I had acute Hep b,which I almost died from,,,and my body kicked it completely,,,,,so take care of your liver the best you can and hope this will go your way,,,even after 6 mths,sometimes the specialist do not think the treatments risks are worth it if your viral load is reduced,,,,,,,,just have some confidence in your dr,,and if you dont,find another one. ,,,(by the way,my husband has chronic active hep b,which we discovered when I was hospitalized 2 weeks after we were married with my acute attack),,,good luck
trish
 
 
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!" 

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