I am desperatly trying to find out what is going on with my body.
It all started in Jan. 2003. One day after work I had to lay down due to the worst fatiuge I have ever had and my whole body aching. I lost my apitite and would wake up just to drink a bit. I thought I was coming down with the flu, but the cold never showed up. After about a week I started feeling alot better. I was so happy, but it was short lived. That same night I started to feel a bit weak and very sick to my stomach, I had a bad taste in my mouth and I had a burning sensation in my stomach. After a few days of feeling sick to my stomach I finally decided to go to the ER.
I was admitted into the hospital and put on IV. The next morning I was feeling better, but when the doctor came around on his visit he told me my Lft's were elevated. He was asking me if I had been out of the country and so on. Anyhow, at the same time I was sooo much better. When I told him that I felt better, he said that he wanted to do some blood tests and that I could go home that morning if my Lft's came back lower then they had been the night before. They did and I was sent home and told to have my Lft's rechecked in 3 months.
The hospital called me a week later telling me that they didnt find anything on the tests they had run. No hep, mono or any of the usual stuff they look for. I felt great, went back to work and had my Lft's checked 3 months later. They were normal.
Looking back I realized that I started having joint pains a few months prior to this episode. I hav also had general hairloss and a itchy scalp. These problems continue to stay with me and in June this year I started feeling sick again. This time it started out with a flu-like feeling. Then my bowels started to change, I had a burning pain in my back, my stomach was on fire and I could feel pressure in my upper right quadrant. They joint pain intensified even tho it was still mild and it even spread.
After a week , I was put in the hospital because I was having heavy diarreah. After a colonscopy they found ulcers through out my whole colon. I was diagnosed with infectious colitis and sent home with an appointment to a GI 2 months later. The only blood test that didn't come back normal was my wbc (it was just out of range 12,8 and so on). At the time they sent me home my bowels were alot better, but I was having spells where my feet would turn ice cold and then I would get the flu-like feeling all of a sudden. I remember telling the doctor over and over again about my feet, but it didnt seem to concern him much.
Anyhow.. at the moment my symptoms are mostly the same, I am fatigued to the point where I will fall asleep as soon as I have a chance. I have the bowel problems that seem to be under control and I have been put on a low dose of asacol for that. I still have the pain under my right ribcage and this pain has been getting worse by the day, even tho it comes and goes. My feet go ice cold and I still get the flu-like feeling. My back is full of pimple-like lesions that itch. I also have a very itchy body (had that for a while) and my palms have started itching recently. I have a burning pain in my stomach area and I have a bad metalic tast in my mouth, not to mention the joint pain and the fact that I have been having attacks of mild nausea as well.
No one is able to tell me what it could be. I am aware that it could be a whole lot of things, and I guess autoimmune hepa*** is what I am thinking about at the moment. I am actually wondering how sensitive the LFT tests are. Is it possible to have liver problems with out the Lft's being elevated?
Any ideas or opinions would be greatly appreciated.
Sorry for the long post... and thanks for your time!
Post Edited (ChristineM) : 1/17/2007 1:22:00 PM (GMT-7)