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Dlv
New Member


Date Joined Jan 2007
Total Posts : 7
   Posted 1/23/2007 1:10 PM (GMT -7)   
Hi everyone, I have visited the forum and read posts several times in last few months looking for answers.  I am so touched by what everyone is going through and my thoughts and prayers are with you.  My 74 year old Dad was hospitalized in November with pain in stomach and ascites.  We knew from surgery he had 4 years ago to repair damage from car accident that he had cirrhosis.  After recovering from accident (8 months) he went right back to his old habits and here we are today with more advanced cirrhosis.  He is not drinking and has not since October.  Besides being told to eat low salt diet he has been treated with diuretics and antibiotics for the toxins which just seem to cause new problems.  At this point he has stopped both meds.  He has a lot of stomach pain and is not eating.  He is skin and bones with this really big belly.  He is being seen by a liver specialist but no one else.  Can anyone give me some insight/suggestions into the stomach pain and eating problem?  Is there another kind of Doctor I should take him to?  We are going back to the liver doctor tomorrow, so maybe we can find out more then.  Thanks for any responses.     

myfather
Regular Member


Date Joined Dec 2006
Total Posts : 87
   Posted 1/23/2007 2:28 PM (GMT -7)   

eyes  hi div, welcome to the forum. you should take him to a GI DR to see if any bleeding going on in his gi track, when people have liver problems the inside of thier stomach gets inflamed, if you could get him to take his meds that would be great. my father had cirrohsis for a long time but they didnt catch it untill july of 2006, i lost him in december. you already have a liver dr ask him about the gi dr. you take care.

you will be in my thoughts and prayers

myfathers child tongue

annette


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 1/23/2007 9:09 PM (GMT -7)   
Hello Div, welcome to Livingwell. I am so sorry to hear about your father. My husband has cirrhosis also, compounded by liver cancer. He gets stomach pains also. He has 2 different diuretics that he takes that keeps his ascites down. He has only has a little bit of fluid in the stomach and a little swelling around the ankles as he is very good about taking his meds. Your father really does need to take his meds. Cirrhosis also can cause some to have gallstones which can be very painful. But if the liver is very damaged I believe it can cause pain as well. You mentioned a liver specialist. Is he a Gastro Doctor or is he a Hepotologist. The Hepo is more knowlegable about liver diseases, at least with my husband's doctors. Cirrhosis can also cause liver cancer.
My husband was diagnosed with cirrhosis about 7 years ago. He developed gallstones about 3 years ago. (They can't do surgery for them as he may bleed to death.) about 14 months ago he was diagnosed with liver cancer. They did a chemoembulazation last May which has stopped the cancer from growing so far. He is on a lot of medications which do have some horrible side affects but they are keeping him alive and hopefully healthy enough to get a liver transplant. He goes for a 2nd evalution next month to try and get on the transplant list. I hope some of this information has helped you. My thoughts and prayers will be with you and your dad. Pink Grandma

wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 1/24/2007 5:22 AM (GMT -7)   
Welcome dlv,
This is such a complicated disease,I am so sorry you are having to watch your father go through this. As Pink Grandma mentioned there may be other things going on that are causing your fathers pain, such as gallstone,,,,,,my husband had to have his gallbladder removed last May. Ask his dr to do a thorough investigation as to why he has this pain,,,,,it could be the liver but it would be awful if his pain was caused by something that can be fixed. One important thing,,,,if at any time a dr is not giving you complete answers,or is not following up the way he should with your dad,,,find him a new dr,and dont stop asking questions until you get straight answers. One thing the dr may be able to do is order Ensure,,,,if your dad is covered under medicaid/medicare,this may be paid for if its written as rx,,,,Hope to hear from you again,,,,this is a great site for support and understanding,,,alot of caring people here,,,,take care of yourself and I hope you get the answers your looking for.
trish 
Moderator for Hepatitis Forum 
 
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!" 


Dlv
New Member


Date Joined Jan 2007
Total Posts : 7
   Posted 1/25/2007 4:36 PM (GMT -7)   
Hi all, thanks so much for your responses. The Dr. is a gastroenterologist specializing in transplant hepatology. My Dad has had several AFP tests with very high numbers however his MRI did not show any cancer. The Dr. feels that with the obvious condition of my Dad (extremely weak, no appetite, age, cirrhosis, hep C, high AFP #'s) he most likely has liver cancer. HOWEVER, we did get him some medicine to hopefully increase his appetite and will be trying to help him gain some strength back. One month ago he was given Ribofaxan (please excuse spelling) which gave him diarrehea and sent his condition down really quick. The Dr. also told me that the reason the MRI did not show anything could mean the cancer has spead all over. Please keep him in your prayers. Thanks so much.

myfather
Regular Member


Date Joined Dec 2006
Total Posts : 87
   Posted 1/26/2007 10:21 AM (GMT -7)   
hi div,
my prayers are with you. its a real balancing act with the meds if you can get him to take them. sounds like you have the right drs., he would be to weak for them to do a liver biopsy now. im sure you have read some of my posts i know what you are dealing with, it can get really hard to deal with. sometimes your just going to wish its over with because they are suffering so much you have to let it take its course, and it will!!! you hang in and if you need to talk my email address is there to use. take care, and my thoughts are wth you and your father.

myfathers child
annette

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/26/2007 11:48 AM (GMT -7)   
Div, when your dad had the MRI, was it done with a contrast material by IV called Gadolinium? I also have liver cancer, though not cirrhosis. I have had this test a couple of times and was told that if there is cancer anywhere, it "will light up like a Christmas tree." You might ask the ordering doctor about this. I had a very large tumor, which showed up on sonogram, but they wanted a better look at it, so did more testing. I also had chemoembolization, which worked beautifully for me, killing most of the tumor. I also took part in a drug study for Therasphere (microscopic beads filled with radiation), which is inserted into the tumor. Almost all of my cancer was killed, but there were some cancer cells remaining. The next step was to surgically remove the right lobe of my liver. However, I took a 4-month break to have a critical hip reconstruction. I went in for blood work and CT scans with contrast on Wed. Was supposed to go back early today for results and plan, but had to reschedule to next Fri. due to inability to get to sleep until very late last night. I have hep C, which caused the liver cancer, but I do not have cirrhosis. I have only had some liver pain after the chemoembolization, whiich I was told was the tumor dying. The only symptoms I have are terrible constant fatigue and a distended belly.

I am not a candidate for transplant, as my liver function has remained quite good, with no really high numbers.

I hope something can be done for your dad to make him feel better.

Hugs,
Connie

Dlv
New Member


Date Joined Jan 2007
Total Posts : 7
   Posted 1/28/2007 8:01 AM (GMT -7)   
The Dr. did say there was another test that we could have done which used dye.  I don't think there was dye used with the MRI, but I'm not really sure.  However he did not offer much hope if the cancer was found. Maybe what I should do is just push on, tell him we want the additional tests and see what comes.  At the moment we're just trying to make it through each day and trying to get him to eat.  Thanks for your response I do appreciate hearing from everyone.  dlv

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 1/28/2007 9:54 AM (GMT -7)   
In my own experience, it is impossible to know what treatments to have, if any, if I do not know exactly what is going on. If the doctor indicated there is another test they can do with dye, I would go for it. It should tell what your dad is facing, and whether the cancer has metastasized. If it has, then there is really nothing to be done but make him comfortable. Sometimes, treatments directed at a main tumor, such as mine, will shrink not only the tumor but any metastasis, as well. Miraculously, this is what happened for me. I really believe that prayer played a part, but also the excellent skills of the oncology radiologist at Mayo who treated me.

Hugs,
Connie

Dlv
New Member


Date Joined Jan 2007
Total Posts : 7
   Posted 1/30/2007 6:11 PM (GMT -7)   
I have an update .. My Dad had a paraenthesis yesterday.  I ask for a copy of his labs from last week and the AFP numbers had gone up.  I called his Dr. today asking for him to be put him in the hospital because he still is not eating.  I was told his urine test indicated he had a uti so antibiotics were called in and the Dr. said we will touch base in the am to see if he's any different.  Bless is heart he just doesn't understand why noone can help him feel any better.  He has never been a  very big man but he is down to 118 this evening. dlv

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 1/30/2007 9:26 PM (GMT -7)   
Dlv, so sorry that your dad isn't doing better. My thoughts and prayers will be with you. Pink Grandma

Magaroo
Regular Member


Date Joined Oct 2006
Total Posts : 24
   Posted 2/13/2007 11:08 PM (GMT -7)   
Hi everyone. I am 22 years old and have hepatitis C as well as Panic disorder. I just took my first shot today and I can't sleep for the life of me. I already have troubles with insomnia at time, and I can't possibly lose any more sleep than I already do. I ran my appointments off of only 2 hours of sleep today and thought when I hot home I would crash. I did fall asleep for about an hour and a half, but since then I have been experiencing awful night sweats and can't get back to sleep for the life of me. Anyhow, I took a sleeping pill and now I am worried that maybe it will counter-act with the treatment. I'm completely anxiety ridden that I may begin to hallucinate (as I already have fears about going crazy as a result of my panic disorder). I'm worried that I may have a physical or mental breakdown... is it okay that I took this sleeping pill following my treatment today? I'm taking Temazepam @ 15 mg's as my primary sleeping aid at the moment. Please let me know if I am worrying myself for nothing? Thank you all so much!

wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 2/14/2007 7:55 AM (GMT -7)   
magaroo, you need to call your dr and ask about ANY medicines you might take during your treatment,and make sure what you can and cant take. I assume you are talking about pegintron or interferon? the sweats are very normal for the first few times,my husband had them for about 2 mths, or 8 shots. He didnt have a problems with not sleeping,,,,,,,he slept too much,but had broken sleep so was always tired. also many medicines affect your liver,,,,,are you seeing a hepatologist? you should have been informed about your meds, take care and welcome to healingwell:)
trish 
Moderator for Hepatitis Forum 
 
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!" 

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