hi div, im pretty sure that you have to have the dr give the order, because we asked the dr when my father was in the hospital, im sure that he did. hospice is for the whole family not just for your father, the caregivers need help and sleep to. have you asked your father if he wants hospice in ? i cant see why your dr wouldnt order some help for you and your mother. i can tell you by experience that some drs just do not have what it takes when it comes to bed side manners. i think they need to learn that in medical school!!! the scary part is that some of them just dont care when the person is older, i went through it with my mother 12 years ago and i just went through it with my father, its very sad, but its the truth. the dr my father had was a m.d. internal medicine, but he knew everything there was to know about cirrohsis because his father had the same thing so he studied it very well. this disease that your father has will ware you and your mother out in a manner of a few weeks so tell the dr to get on the ball and dont waste any more time. sometimes you just have to get mad untill people hear you, good luck and god bless.
you are in my thoughts, please take care.
myfathers child annette
I believe you are right about the DRs assessment of a 6 month life expectancy, regardless of state. We didn't have to pass that hurdle because when Jim was first evaluated, he was in ICU with a platelet count of 4000 with no hope of living. He is much much improved now over that and hoping to start spending a few days a week at our local senior center next week.
However, the way I understand, life expectation is flexible because it is an evaluation based on DX and clinical symptoms, not a certainty (miracles and statistical quirks can happen), and patients can remain in Hospice even though they are still living at the end of 6 months, provided they remain Hospice eligible at the next assessment.
NE FLA is a nice place to be. I read that the Mayo in Jacksonville has the highest rate and shortest wait time for liver transplants.
Others have provided a very detailed description of hospice services. The only thing I want to add is about the recertification process my husband has to go through because he is on Medicare.
Initial diagnosis is life expectancy of six months or less. If our loved one lives beyond that time frame it is called extended prognosis. During the first six months with hospice the patient is recertified every three months; after reaching the six month mark recertification is every sixty days. There is no limit as to how long someone can remain with hospice as long as they are still considered terminal.
Gene was just recertified for the next sixty days after a close call where for the second time, Hospice wanted to discharge Gene. Hospice checked with his private Doctor and looked at Gene's medical decline during the past two months and appologized for even considering his discharge. It's scary but they cannot go by anything other than each certification period.
My husband is on rotating antibiotics without which he would be dead in a week or two as his liver no longer processes toxins. This is life extending and something many hospices wouldn't allow. We are with Vitas which allows Gene to have his antibiotics as long as we get them ourselves. But it works.
We are at the three year mark since Gene was diagnosed with esophageal cancer. Gene's liver was too fragile so surgery, Chemo and/or radiation. He has been back in hospice for ten months. It pains me to watch his decline but I am so appreciative of the extra time we've had.
Dellalita, welcome to the forum. You picked up and posted to a very old thread (from 4 yrs. ago), though the information is still appreciated. However, if you or a family member have liver disease, it would be best for you to start a new thread describing your situation and introducing yourself to the other members (click on New Topic instead of Reply.)