AIH - First visit with the Hepatologist

How many people with liver disease have fatty live? Nash?
1
I do - 50.0%
1
I don't - 50.0%
0
I do not know. - 0.0%

 
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judyinky
Regular Member


Date Joined Aug 2006
Total Posts : 254
   Posted 2/3/2007 4:57 PM (GMT -7)   
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Last Monday I went to the hepatologist for the first time. It was an
unusually pleasant experience. Willie went with me. We found the
doctor to be very thorough. engaging, and even had a good
sense of humor. I was completely relaxed with the whole team at the
University of Louisville Digestive Health Center.

Also for the first time I found a doctor that would discuss in depth
details that I needed to know, rather than talking over my head or
not at all or me having to drag it out of him.

He put me on Actonel, magnesium, and gave me 1mg doses of pred. for
an easier taper.
He wants me to continue the taper, but not below 71/2 mg. He ordered
lots of blood work,
and I see him six weeks, but need blood tests every two weeks.

He said I have NASH (non-alcoholic steatohepatitis) from the looks
of the biopsy report, "fatty liver". I knew that from talking to
the GI. . BUT, the hepa doc. is not convinced that I have AIH !!!!
That was a shocker as well as a great relief. But, we won't know
until the tests are in. He said, and we all know, AIH is very hard
to diagnose. He wants to keep me on a low dose of prednisone and
most likely add cellcep. He's sending for the biopsy to look  at it for
himself.

I'm so relieved to finally have a hepatologist. I suggest to anyone
starting out with liver problems, SEE A HEPATOLOGIST!!. I wish I had
gone sooner. I don't think I would have worried so much, or been in
so much confusion and fear.

I'll keep everyone posted. I was out of town from Tuesday until Fir
day. When I got home yesterday I had a message to call his office. I
will find out on Monday what that is all about.

From what he told me, if it is only NASH, and not AIH also, the
treatment will change. It is weight loss and exercise mostly..
definitely a lot easier than steroids.

I  will hope and pray for the best. Thanks for the love and support that you all give to me. I pray that everyone has had a peaceful, restful and painless day.

 

Judy


"Hope is seldom found in the things we can see;it is the sweet fragrance of grace."

             

 




frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 2/3/2007 7:18 PM (GMT -7)   
Judy

What wonderful news. I am glad that you are so happy with your new doc. It is totally wonderful to have someone really talk to you about your own body and listen to you about your concerns. I will keep you in my thoughts and prayers that an easier road is ahead of you. Please keep us posted.

Lucy

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 2/3/2007 10:32 PM (GMT -7)   
Judy, that is wonderful news! It is SO important to have a good hepatologist that is not only knowlegeable, but also will answer your questions and be straight with you.

Please come back and let us know how you are doing.

Hugs,
Connie

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 2/5/2007 9:39 PM (GMT -7)   
I agree Judy, Hepatologist know so much more about the liver than the GI's. My husband's GI is almost worthless. I say almost is only because he did refer my husband to a transplant doctor. But other than that he has been hardly any help at all. He couldn't answer any of my questions. Blew us off big time. On on the other hand, all the hepatologists on my husbands transplant team makes us feel like he is their only patient. We do not feel rushed. And they take the time to explain and answer any questions that we have. Since we now have the experiance of good quality doctors we hate going to his GI. But it is a necessary evil right now. I also am so glad that you had a great experiance with your hepatologist. I think that they must be a different breed of doctor. :-) Pink Grandma

judyinky
Regular Member


Date Joined Aug 2006
Total Posts : 254
   Posted 2/6/2007 3:47 AM (GMT -7)   
Hey all,
I've been sick for two days with a head cold, headache, and sinusis.. guess that's the whole ball of wax.
Thanks so much for all the respones. It feels so good to get support and friendship. I won't write much now. I'm feeling pretty crappy. I will get on tomorrow and share more.


Hugs,
Judy
"Hope is seldom found in the things we can see;it is the sweet fragrance of grace."

             

 




Marg57
Regular Member


Date Joined Dec 2005
Total Posts : 446
   Posted 2/8/2007 4:00 AM (GMT -7)   
Hi Judy, Hope you are feeling better. What good news if you do not have AIH. Hope everything goes well with the new doc. Keep us posted.
Marg
 


wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 2/8/2007 6:56 PM (GMT -7)   
Judy,,
I am glad you are happy with your new dr, that is so important. I hope you dont have AIH,,what a relief that would be for you! take care and hope to hear updates from you.
trish 
Moderator for Hepatitis Forum 
 
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!" 

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