Last Monday I went to the hepatologist for the first time. It was an
unusually pleasant experience. Willie went with me. We found the
doctor to be very thorough. engaging, and even had a good
sense of humor. I was completely relaxed with the whole team at the
University of Louisville Digestive Health Center.
Also for the first time I found a doctor that would discuss in depth
details that I needed to know, rather than talking over my head or
not at all or me having to drag it out of him.
He put me on Actonel, magnesium, and gave me 1mg doses of pred. for
an easier taper.
He wants me to continue the taper, but not below 71/2 mg. He ordered
lots of blood work,
and I see him six weeks, but need blood tests every two weeks.
He said I have NASH (non-alcoholic steatohepatitis) from the looks
of the biopsy report, "fatty liver". I knew that from talking to
the GI. . BUT, the hepa doc. is not convinced that I have AIH !!!!
That was a shocker as well as a great relief. But, we won't know
until the tests are in. He said, and we all know, AIH is very hard
to diagnose. He wants to keep me on a low dose of prednisone and
most likely add cellcep. He's sending for the biopsy to look at it for
I'm so relieved to finally have a hepatologist. I suggest to anyone
starting out with liver problems, SEE A HEPATOLOGIST!!. I wish I had
gone sooner. I don't think I would have worried so much, or been in
so much confusion and fear.
I'll keep everyone posted. I was out of town from Tuesday until Fir
day. When I got home yesterday I had a message to call his office. I
will find out on Monday what that is all about.
From what he told me, if it is only NASH, and not AIH also, the
treatment will change. It is weight loss and exercise mostly..
definitely a lot easier than steroids.
I will hope and pray for the best. Thanks for the love and support that you all give to me. I pray that everyone has had a peaceful, restful and painless day.