Hi Everyone I am a new member looking for information on ESLD. My husband
was diagnosed with it in 2002 and since then he has been in an hepatic encephalopathy episode and hospitalized a bunch of times prior to Tips which resulted in the TIPS being put in he has since then has had it unblocked several times. The last unblock and additional ones put in resulted in a blood infection after the procedure. He is now on a less strong antibiotic through a pic line - which he will have to be on forever according to the infectious disease doctor. He is not able to be on the transplant list due to alcohol intake which finally ended this last go around just several weeks ago. He developed an infection and discitis. He is in a lot of pain and is trying to not take pain pills. He also has had plural effusion in his left lung which just was (fluid removed) at the end of 2006, and yes he still smokes. He has trouble sleeping and loss of desire to eat – Mood swings are great, I am trying to find out what is coming. Everything I research gives the symptoms which he has all but nothing else about stage 3 or so. It has been a rough battle for me and I would like to prepare myself for what is next as far as next stage – I know the end is coming I just want to have a idea as to what that will be as far as body function etc.
Thanks anyone for your help!!
hi everyone, this is my fatherschild i havent posted for a while because i just couldnt, dealing with my father being so sick for so long and not being used to it, but i have been watching and reading everyday on this forum. great place to go and great people!! i had to responed to this, it has hit home. mommyangel you are a very brave little girl. i m twice your age at least. i lost my father in december with cirrohsis but we didnt know he even had it untill july of 2006. towards the end the lactolose doesnt even work the amonia levels just stay high, like your dr said they go into a coma. and yes pinkgrandma they sometimes do have bleed outs that what my father did after that its just a matter of time the best thing you can do is just make them as comfortable as you can, you cant give them lactolose after that it irritates the GI Tract and makes it wrose. i have taken this very much to my heart so i read everything i can about cirrohsis. my thoughts and prayers are with everybody on this forum. the pain has end for my father and he is in a better place with my mother, but i still have a hard time with this horrible horrible disease!!! i dont think i have seen anything like it. i just cant imagine being such a young age and having to go threw this, life gives us tough choices and sometimes they arent fair, but we have to deal with it we have no choice in it. mommyangel my prayers are with you and angel2 and pinkgrandma hopefully they wont take your husband off the transplant list i pray!! i guess now that both parents are gone im feeling a little sorry for myself, and its time to stop, because life will go on. everybody please keep in touch.
love hope and prayers
p. s excuse my spelling its not the best i do.
Welcome to our new members!
Annette, it is good to see you posting again. I have thought of you often and wondered what happened with your dad. I know the pain of your loss, but you certainly did all you could for him. Please post when you feel your knowledge can help another--or just to say "hi."