Just want to vent

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Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 2/27/2007 8:53 PM (GMT -7)   
I hope everyone has had a good day. Unfortunately mine wasn't so great.
First I got a call at work this morning from my husbands transplant coordinator. She said that his red blood cell count was very low and that he may need a blood transfusion. She said to call my hubby's primary care physician to make an appointment and have a transfusion ordered. I did call right away. The receptionist broke it to me that they had already taken him off the transplant list. We had been told that they would keep him on until the next CT scan the end of March. She would talk with the doctor and call me back. I waited until 4:30pm to recall her and she said that his primary called his GI and he said that they didn't need to order a transfusion unless it goes lower than 8. That she would monitor his monthly blood work. Now normal is 40 and he was at 26 last Tuesday. I emailed the coordinator and asked her to push it. I am so mad at both his primary and GI . I guess my husband has to be on death's door before they do anything.

In between time I got a call from his cancer doctor's nurse. Stating that our insurance does not want to pay for another CT scan as he just had one the first week of this month. She didn't know why his cancer doctor was requesting a follow up scan. I had to explain it all to her so she would call the insurance company back. I am so sick of fighting doctors,nurses and our insurance company. They are making me sick.
Sorry for being so negative. I just had to let it out some way so I wouldn't go postal on anyone.

Thanks for listening ........... mad Pink Grandma

wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 2/27/2007 9:37 PM (GMT -7)   
aw,,,sorry grandma,,,,,we all have those kind of days,and it is very ok that you vent went you need to,,,,thats why we are all hear,to help each other. I am so sorry things arent going well,,,,,have you considered changing primary dr? maybe G.I. too,,,,,,,my husband had to change both his GI and primary within a month of each other,,,,basically ya gotta fight to get good ones who listen and respect your wishes, and provide the best medicine has to offer.. good luck and you will both be in my prayers tonight
trish 
Moderator for Hepatitis Forum 
 
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!" 


frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 2/28/2007 5:04 AM (GMT -7)   
Pink Grandma

I am so sorry that you are having to go through all of this. It is so frustrating when you feel as though no one is listeninng to you and there is so much at risk. I agree with Trish that maybe you should go for a second opinion and doctor shop. Will keep you both in my thoughts and prayers.

Lucy

myfather
Regular Member


Date Joined Dec 2006
Total Posts : 87
   Posted 2/28/2007 12:19 PM (GMT -7)   
hi pink grandma,
i to m sorry that you have to endure this!!! i to went throu this to with my father, some times it seems like the drs just dont care. its bad enough that your worried to death about your husband some one that you love, and then you have to spend the whole day trying to get things straight and people straight. they dont care if your waiting all day, they think you have nothing better to do with your time, wrong!!!!
they forget they are getting paid for there services a life depends on wether they are right or wrong they better be right. its almost like a never ending battle with the hospitals and drs. thank god i never had any probelms wth his insurance company!! sometimes its hard to be strong but you dont have a choice your the caregiver!!
you take care, you are in my thought.

annette

ihbsn
New Member


Date Joined Feb 2007
Total Posts : 14
   Posted 3/1/2007 2:23 PM (GMT -7)   
Hi Grandma,
 
I can totally relate to what you are going threw I am going threw the same thing seems like everyone is not on the same page....... I hate it when that happens also when Dr.'s disagree.
 
You need to find out if your insurance carrier has a coordinator to help with some of these problems most due and interceed on your behalf for you if you ask them too, in the mean time keep pressing on and also NEVER take a receptionist word for anything nor the Dr.'s Office Nurse always ask to speak to the Doctor or have him call as soon as he can.  When Dr.'s are put on the spot they tend to side with the patient and family and usually will due what you ask.  If you are still having a hard time change Doctors because that one would not be working in your best interest.  The last resort is E.R. telling them your husbands plates are low and he is feeling really bad with those numbers they have to keep him and treat him.  Best of Luck hope I have helped and I will also pray for you both.
 
Cheryl

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 3/1/2007 6:55 PM (GMT -7)   
Thank you all so much, I really couldn't get through this without all your support. I got an email from the transplant team that I faxed to my husbands PC and got the ball rolling on what needs to get done. Apparently now his kidneys are doing so well and his PC is referring him to a kidney specialist. He had more blood work today to see exactly has his kidneys are doing and what his blood count is now. Today is not one of his better days........He's very tired and is running a fever again. I expect that his PC will be calling us in the morning with the results and if she doesn't I will call her.

I hope everyone is fine tonight and thank you again you guys are wonderful.

:-) Pink Grandma

Marg57
Regular Member


Date Joined Dec 2005
Total Posts : 446
   Posted 3/1/2007 11:37 PM (GMT -7)   
Hello Pink Grandma,
I hope tomorrow is a better day for you.

Good luck with all the tests you husband is having. We are all there for you, thinking and praying for you both.
Take care.
Marg
 


wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 3/2/2007 8:01 PM (GMT -7)   
Good luck grandma, hope they get it together and help your husband through this,,,,,will be prayin for ya
trish 
Moderator for Hepatitis Forum 
 
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!" 

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