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Elli Mae
New Member


Date Joined Mar 2007
Total Posts : 10
   Posted 3/17/2007 7:17 PM (GMT -7)   

wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 3/18/2007 5:06 AM (GMT -7)   
hm hep 3? or c?
trish 
Moderator for Hepatitis Forum 
 
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!" 


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/18/2007 12:47 PM (GMT -7)   
Ellli Mae, it's good that you are getting treatment right away. You will be fine if you stick with your treatment, even if it starts to get a little rough. Hep C won't kill you--it's the possible cirrhosis and/or liver cancer that one can get without treatment. Do you know exactly what you are getting and how often it has to be taken?

Welcome to our forum. There is a lot of support and info here, so please come back often.

Connie

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/19/2007 3:21 PM (GMT -7)   
Elli Mae, you are being immunized against hep A and hep B...not receiving treatment for hep C yet. That is a good preventative action, though...getting those immunizations.

Have you ever had a blood transfusion? That is one way that hep C was transmitted, back before they screened blood for it. Regardless of how you got it, the important thing is that you have been diagnosed with it and can begin to take action against it so that you will again be healthy. You are not going to die from hep C, or from cirrhosis, liver cancer, or liver disease, if you get treatment as soon as possible.

By the way, please do not use all caps. That is considered "shouting" in the Internet world.

Good luck to you, and come back and let us know what the doctor has planned for you. Are you seeing a hepatologist. If you are not, you need to be referred to one. They are specialists in diseases of the liver.

Connie

Marg57
Regular Member


Date Joined Dec 2005
Total Posts : 446
   Posted 3/20/2007 3:09 AM (GMT -7)   
Welcome Elle Mae,
I hope you receive as much support here as I have. Someone is sure to answer whatever questions you have. Make sure you see a good liver doctor and begin treatment as soon as possible.

Happy birthday. I hope you were able to enjoy your day despite having your worrying diagnosis.

Do you have family to talk this over with. Family and friends are such a good support. Hep C may frighten some of your friends but don't worry. Getting well is the top priority.

Take care.
Marg
 


wheredidigo
Veteran Member


Date Joined Mar 2006
Total Posts : 605
   Posted 3/20/2007 9:31 PM (GMT -7)   
hi elli, I think if I were you Id ask to be refered to a liver dr NOW,,,,,,the faster you get started on treatment the better outcome,,,and the hep b series takes 6 mts to complete,,,,,not that you dont need immunized,just that you need to get into a specialist soon,,,,,sometimes the referral takes a while to get an appt with a good one,,,,,as far as not telling anyone,,,,its a personal choice,but make sure no one uses your hairbrushes, fingernail clippers,ect,,,,,,,personally i make it my mission to tell even strangers about hep and the dangers,,,,,,,there is NOT any shame in having this disease,,,many people contract it in many different ways, and its good for people to be informed about this disease,,,,,good luck and let us know how its going
trish 
Moderator for Hepatitis Forum 
 
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body,but rather to skid in sideways,chocolate in one hand,wine in the other,body used up ,totally worn out and screaming"WOOOOHOO WHAT A RIDE!!!" 


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/20/2007 11:11 PM (GMT -7)   
Hi, Elli Mae! The shots for hep A and B are for immunization against those forms of hep. They do not treat hep C. The usual treatment for hep C is a year of injections. Back in '93 when I was taking them (giving them to myself, which is the usual protocol), it was 3 x a week. There are newer treatments now. You can look up "hep C treatment" on the Internet for information. Also check out the the top of the hepatitis main page here, Hepatitis Resources, which gives links to hep C info.
 
It usually takes decades before one develops symptoms of hep C.  In my case, it was extreme fatigue.  It is getting worse, as I now sleep 12-16 hours at a time, unless I have to be someplace.

When I found out I had hep C, I didn't know much about it and told some people at work. I could see them visibly shrink away from me, as though they could catch it just by being near me (untrue--it is blood-borne.) I was also questioned a lot as to how I got it. One dentist refused to treat me, and another would only see me around lunch time, as he claimed he had to sterilize the room and not use it for an hour after I'd been there. It was very humiliating. So I'm more careful now as to who I tell, but all of my family and close friends know, as well as my doctors.

I'm not understanding what your doctor meant by your hep C being non-viral. It is a viral illness. Perhaps she meant it was not active (attacking your liver), in which case it would just be chronic hep C and would require no treatment. You definitely need to see a liver specialist as soon as possible to clear everything up and make sure you understand. My understanding has always been that they cannot tell if hep C is chronic active without a liver biopsy. That may be the next thing you need to do.

Sorry I missed wishing you a happy b.d. and glad to hear it was a good one. You must have a wonderful husband to have such a long marriage. I'm sure he will support you through your medical journey.

Best of luck,
Connie

Post Edited (hep93) : 3/21/2007 12:50:08 AM (GMT-6)


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 3/22/2007 7:12 PM (GMT -7)   
Elli May, look on page 2 of this hepatitis forum and there is a thread there where a bunch of people gave their accounts of it. It's a mixed bag of answers as everyone had different experiences with it. Hope it helps. :-) Pink Grandma

Elli Mae
New Member


Date Joined Mar 2007
Total Posts : 10
   Posted 3/22/2007 7:37 PM (GMT -7)   
thank you very much!

Jerry1
Regular Member


Date Joined Mar 2007
Total Posts : 458
   Posted 3/23/2007 11:24 AM (GMT -7)   

Ellie Mae,

I am also new to this site and have found it very helpful.  I had a liver biopsy done in November, I was so nervous because I heard so many different stories.  Well it was easy no pain at all they asked me if I wanted this drug that they give you right before they do the procedure it only lasts a few minutes but you remember nothing.  Well it worked, just as the doctor was starting the procedure they gave me the medicine and the next thing I knew it was over.  No drug hangover it wears off in minutes however, they said they usually do not offer it but if requested they will give it to you.   good luck and I am sure you will be fine.

Jerry1

 


Elli Mae
New Member


Date Joined Mar 2007
Total Posts : 10
   Posted 3/23/2007 1:04 PM (GMT -7)   
thank you jerry! i have been reading all morning trying to absorb all i can on hep c. i am really scared. i just don't no where it came from. i haven't told my family at all. i am afraid they might reject me. just my husband and i are the only ones that know and that is how i want to keep it. i go back to the doctors on 4-9 and get my last hep a or b shot. i am not sure which one. there has been no talk yet about getting a biopsy. i am sure i will know alot more on tuesday. thank you for listening jerry. i will keep you informed on my progress

elli

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 4/18/2007 12:31 PM (GMT -7)   
Elli Mae, I know that you must be worried sick. But you should be asking your doctors exactly what that means and what you need to do for it if anything. My husband was diagnosed with Hep C at least 10 years ago. I met him about 1 year later. When I finally got him to a doctor to find out what was going on and what to do. His primary care physician ran a bunch of blood work and said that my husband was extremely lucky as they could not detect it anymore and that it must be in remission. But he did refer him to a GI and we found out that my husband had cirrohsis but he did not seem to think that we needed to know anymore than my husband had to quit drinking. about 2 years later the GI referred him to the transplant team. At the time my husband weighed over 300 pounds and all that they said that he needed to lose at least 100 pounds and quit drinking. No futher information was given to us. What I am trying to tell you is that you have to be your own advicate and ask and keep asking for more information. Had I known that Hep C and/or cirrohsis could develope into liver cancer I sure would have started hounding the doctors on medicines/diet/treatments, etc. Most doctors don't volenteer information. His doctor just started treating the symtons as they developed. We had know no idea what my husband was in for. You have to ask and educate yourself on the disease. I ended looking on the internet but by that time my husband already developed the cancer.
I am not trying to scare you but doctors are only human and they have alot of patients and patients who are the most vocal get the information and treatments that they need. If they say you need a test every 3 months or what ever you have to remember and make sure that they schedule the test. The more educated that you are on your disease the better off you will be. You'll know what questions to ask and be a big part of your treatment. My thoughts and prayers will be with you.

Pink Grandma

Elli Mae
New Member


Date Joined Mar 2007
Total Posts : 10
   Posted 4/21/2007 7:29 PM (GMT -7)   
hi everyone, here it is saturday night and i am sitting here worried and really scared about what comes next. i got my last hep a shot last week. my doctor is on vacation. when we last talked she said my blood work just barely showed hep c. they had to do the test twice and both times it came back that way. so does that still mean that i have to get a liver biopsy? does mean that i will get liver cancer and cirrhosis reguardless of what i do? i am so scared i don't know what to do. my doctor doesn't seem to be that worried about it. she said i might need a booster down the road but, no word of liver biopsy or anything like that. is it possible that my liver healed itself since it barely showed up on my blood test taken twice. also i have a little yorkie pup can he get hep c also? i asked my doctor and she had no idea. also what about the hairbrush. everyone i hate doctors and i am so afraid i just want this to all go away. if i get another blood test and it is clean does that mean i won't give cirrhosis or liver cancer? i am really scared.
elli

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 4/21/2007 8:54 PM (GMT -7)   
Elli Mae, Google hepatitis C there's alot of information on it. Dog's can get a form of hepatitis but not the human kind. It's strickly a canine strain. And you can't expose anyone to it with a hairbrush as long as it doesn't have any of your blood on it. But if you share your toothbrush or razors you can. One of the things that I have read on Hep C is that you need to stay away from alcohol and drugs from now on. There are medications that the doctor can put you on if they feel you need it and the liver biopsy is to see if you have developed any damage to your liver. So unless they think that you have liver damage they probably won't have you do a liver biopsy. The key is to get educated on how to take care of your self so that you control the progress of the liver damage. People live for years and years with it as long as they follow their doctors orders. If your doctor doesn't explain everything to you once you have asked her maybe it is time to starting looking for another doctor who can educate you and put you more at ease with it. And like I said .........my husband has had it for at least 10 years and also drank like a fish for at least 6-7 of those years before he actually start having any symptons. Hope this helps. Thoughts and prayers.........
Pink Grandma

Elli Mae
New Member


Date Joined Mar 2007
Total Posts : 10
   Posted 4/21/2007 10:56 PM (GMT -7)   
Dear Pink Grandma, Thank you so much for the info. You have made me feel sooo much better. I haven't had a drink since Jan 26 2006 is that amazing or what? I just decided on that day i didn't want to drink anymore and I was drinking every day. I have been living in such fear that my doctor put me on 90mg cymbalta. That has helped a great deal. I was making myself sick with worry. The thought of liver cancer was more than I could handle. I was losing sleep and having nightmares every night. Your mind sure can play tricks on you. I was so worried that I gave hep c to my little dog [mr. wilson] that was eating me up inside. He's my little baby. I have no childern and if I had done that to him I don't think I could forgive myself. Pink Grandma you have no idea how much better you have made me feel tonight. I am real sorry to hear about your husband. I will say a prayer for him tonight and for you also. I do believe I will be able to sleep a little easier tonight. I feel like a big weight has been lifted off me. The word cancer just scares the hell right out of me. I have lost so many good friends from that nasty disease. I hope that we can continue to keep in touch with each other. I have a lot more to say to you lol. But, for right now I want to thank you sooo much for making me feel better. My husband is calling. It's time for his bedtime snack. o.k. Pink Grandma I will let you go. I will a prayer for you and your husband. Goodnight and may God bless you.

Sincerely, Elli mae
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