She saids she has already done her assesments with hospice and there just waiten for the ok I guess. One thing I dont understand is why arent they putting her on hospice if the liver is dead and not functioning ya know.
I did read something about the liver producing dead liver enzymes when it get as far as it can go before shutting down. Is the next step cancer or is it death.
Her doc said a year ago that her liver is severly de-compensated and cirrotic from the disease.
Well what ever the outcome of this terrifying illness, I just hope she has a chance to feel that her family loves her and
we are there when its close to her time.Her doctor said that even though her pain meds affects are much more stronger do due liver not working he said thats the key to keeping her comfortable because her meds wiil soon be no help. And then he was real blunt and said if she is lucky she may have a year,giving her a greater chance oh devolping cancer, or she may have as little as 6 months.
The strangest about all this is that she is for the most part feeling ok.
she is in pain from her liver hurting her pretty bad and she is tired.
but her ammonia levels are high and she isnt confused yet. she takes neomyicn and lactalose for hepatatic encephalopathy. she got that for years ago when she was diagnosed with esld.
Doctor said because of them being so high it takes more time to build up. But she is showing sign of her nerves acting delicate. well I'm going to miss her but it will all be good stuff that i think about my mom when i miss her. Hey Ive been told that I'm being to hard on myself and im much stronger than I think and I know that i StILL Dont want to give her up yet im only 22 my daughter is only two 1/2 and I just am going to miss my best friend.