newly diag. Autoimmune Hep.

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itsme
Regular Member


Date Joined Mar 2007
Total Posts : 44
   Posted 3/29/2007 9:32 PM (GMT -7)   
Hi.  this has been one hell of a rollercoaster ride. Got sick in December.  Yellow just wasn't a good color for me.
Seeing a liver specialist, but it's all trial and error.
Up the meds, down the meds, try a new med.....
and now my blood sugar is up from the pred.
 
Fix one thing, break another.  Dr. is talking about 6mp now.. has anyone had any experience with it....
 
any advise or suggestions would be great.
 
This can be overwealming at times.
 
Thanks
 

frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 3/31/2007 7:26 AM (GMT -7)   
Welcome itsme

Dealing with this or any other chronic disease is a total rollercoaster ride. With AIH it does appear that it is a trial and error and what drugs will be the most effective to control it. I have not heard of the 6mp drug you are referring too but you maybe able to do a search and find out more about it.
Again welcome to the forum and I hope you find the support here that you are looking for.

Lucy

joanne123
New Member


Date Joined Mar 2007
Total Posts : 12
   Posted 3/31/2007 2:12 PM (GMT -7)   
Hi itsme:

I have AIH too and I take Imuran only, and didnot heared aobut 6mp either. take care of your self.

Joanne

Marg57
Regular Member


Date Joined Dec 2005
Total Posts : 446
   Posted 4/6/2007 1:53 AM (GMT -7)   
Hi Itsme,
Welcome to the Forum. 
 
There are about five people here, (I think) who have AIH. 
I am fortunate that the doctors seem to have found meds (9mg Prednisone now, and CellCept)that are keeping everything under control.  I have not heard of 6mp.  I also recommend you research it, ask lots of questions.
Do you know what caused your AIH? 
 
I hope you find lots of support here.  I certainly have.  There is always someone to share the good times and be supportive in the not so good times.
 
Take care.
Marg.
 


DGinSD
Forum Moderator


Date Joined Apr 2007
Total Posts : 839
   Posted 4/7/2007 7:57 PM (GMT -7)   

Hello Everyone,

I'm new here too...just signed up today!  I was diagnosed with AIH mid January this year.  I'm right there with you on the rollercoaster, itsme!  I started getting sick in December, turned the lovely yellow on New Year's Day.  By the time I got on pred I was almost orange...bilirubin was up to 23.3.  Anywho, I was on pred at 40mg for almost 6 weeks and it was driving me insane with hyperactivity and insomnia....I had enough of both pre-illness!  I started at 40mg pred and a week later started 1gram CellCept.  I'm down to 15mg pred and up to 1.5gram CellCept.  They have me on a schedule now for decreasing the pred and finally only going in every 2 weeks for bloods...my vein is very happy about that.  However, they will be switching me at the end of April to Imuran as it has a longer history and once they get me off the pred...they are hoping my body will let them...they'll leave me on the Imuran only...looking forward to that and leaving the moonface and extra hair behind me!  So that's my story....Google the 6mp...there's plenty of info out there...it's similar to Imuran and used a lot for Crohn's disease...

I wish you all the best and look forward to chatting on here with everyone....I'm happy to have found this site.  You all seem so supportive.

Dany

 

 


frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 4/9/2007 4:48 AM (GMT -7)   
Welcome DGinSD

I hope you find the supportiveness that I have found on this site. There are several of us that have this illness, which I have found makes me feel so not alone. In the area in which I live I have found noone that has even heard of this let alone has to deal with it.

Again welcome

Lucy
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